Today I started to cry.  I don’t know the reason why.  Nothing provoked me.  No specific lupus thoughts or events preceded my weeping.  My lupus crying commenced when I was alone.  Sometimes I prefer sniveling in seclusion.  Nobody there needing an explanation for my tears.  No judgements.  No words necessary. Don’t get me wrong.  Having someone with me to partake in a crying episode is truly cherished and never taken for granted.  Being cocooned in arms full of empathy and love can be more helpful then a therapy session, and easier on the wallet. What the Heck is Lupus Crying?  Sometimes lup ..read more

I apologize for my lengthy leave of absence on my blog.  I have a rock-solid excuse.  There has been dissention in my body – lupus complications won’t stop plaguing me.  Those bastards!  An uprising of rebellion emerged in my body. The strife began a few months ago with symptoms of mystery origin.  At random moments when I stand up, my head screams with unbearable pressure, the feeling of my legs vacate and I often feel like I may lose bladder.  Thankful that hasn’t happened – yet.  However, I’m keeping an eye out for sales on Poise products. These new wayward lupus symptoms deflate my spirit ..read more

Last night I made salad for dinner.  Tears blurred my sight and I lost bearing of the blade on my knife as I chopped romaine lettuce.  I kept chopping and tossing various vegetables into a giant ceramic bowl.  Everything in my body hurt – lupus pain was in rare form last tonight. I let myself cry away as I risked slicing a finger, mistaking it for a carrot or tomato.  Stubbornness wouldn’t permit me to rest while someone else made the salad.  Controlling desire to execute the salad precisely how I wanted, wouldn’t allow anyone else to take over the task.  I’ve lost so much control already.  D ..read more

While I am not looking to date someone, because I’m blessed to be in a relationship, I got to thinking.  What if I was single?  Would I be brave enough to venture into the online dating scene, and what would I disclose in my profile?  I’m complicated.  Simply being a woman explains that statement.  But more accurately, I am sick with lupus and chronic illnesses.  My ailing reality unleashes hindrances and struggles within every day living.  If I were single, how could I possible find a grain of energy to date someone?  My nature is to remain reticence where I am safe.  But the desire to find a ..read more

I’m honored to share a guest article written by Emily who has lupus.  She authors a blog which she credits as being her “online diary of life with a chronic illness”.  Emily’s fluid writing style reads as if she’s having a conversation with you.  I admire her candidness about how lupus affects her life.  You can find Emily’s blog at memyselfandlupus.wordpress.com and her Twitter handle is @chronicallyem_ “Why I Choose To Be Open About My Illness” Health is viewed as something that should remain private, something between yourself and your doctor.  I understand why people are taken aback by ho ..read more

  It has been a while since I posted an article that I authored and I humbly apologize for my lengthy absence.  I do have a justified explanation, though.  A short while back, I was in a car accident.  Dealing with the post-accident aftermath of communicating with car insurance companies, extra doctor appointments, physical therapy, getting my vehicle fixed, etc. has been overwhelming.   The entirety of it all has engulfed my life and devoured all of my unused energy molecules, which are always quite scant. Right now it feels as if I am subsisting on will power alone.  I’m physically spent ..read more

I am honored to feature this article written by a special guest author.  The article below is written by Sarina.  She is an adorable, young lady who is plagued with more than one chronic illness.  However, she doesn’t let that fact stop her from living life as much as her diseases will allow.  Despite her physical challenges, she keeps a positive attitude and her enthusiasm is infectious.  Plus she loves animals, which is near and dear to my heart.  Sarina loves to write and I encourage all of you to please check out her blog and subscribe to it so you will receive notifications of her new pos ..read more

I haven’t written for a while and I apologize.  Lupus dominated my life over the past couple of months.  The physical and emotional stress all culminated into a lupus meltdown. What Happened? Here are the events and details the led up to my, let’s say outpouring of emotions, to describe it gently.  A couple of weeks ago, I moved into a new home.  My boyfriend and our friends handled all the heavy lifting, naturally.  I was not content to impersonate a bystander, watching all the activity from my comfy recliner.  So I participated cautiously, lightly packing and unpacking, and handling matte ..read more

I have a dilemma.  I don’t like singing my own praises or bragging of any sort.  In spite of this, I want to share some happy lupus blog news with you and I promise to explain my reason why at the end.  (No cheating and scrolling to the end. Remember Santa is watching.) My Lupus Crazy blog was recently included in the The 10 Best Lupus Blogs according to Medical News Today.  I’m just as shocked as you are!  I am reverently honored and befuddled at the same time.  (It’s all very confusing inside my mind – I warn others not to go in there.)  My reaction when I found out was literally, “I don’t g ..read more

What’s a lupus loop?  During one of my countless online research quests, searching for the elusive treasure chest that holds the answers to the lupus mysteries of my rebellious body, I stumbled upon this:  “Lupus (say: loop-us)” Reading it tickled me and I couldn’t help but smile.  “Loop-us” made me envision a giant animated purple butterfly donning a cowboy hat (purple colored, of course) chasing a bunch of us who have lupus, while trying to rope us with a lasso. Back from the land of unicorns and treasure chests, I found myself contemplating more profound and sentient possibilities.  Seeing ..read more