Lupus Adventurer and Two Interviews
Lupus, the Adventure Between the Lines
by Lupus Adventurer
7M ago
New Chapter of Life and New Resume A new chapter of life in retirement requires a new resume, so it was time to get busy and draft a new personal marketing tool for a desired new part-time career. After going back to college to wrap up my unfinished degree with four years of college in music, Bible, and general education classes, evenings were spent in a two-year degree completion program ending with a bachelor of science degree in Business Administration. Upon a careful review of the initial four-year transcript, an academic minor in music was also granted, along with cum laude honors at grad ..read more
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Lupus Adventures and a Hospital Covid-19 Unit: Pneumonia
Lupus, the Adventure Between the Lines
by Lupus Adventurer
1y ago
It all started out on the Saturday morning before Thanksgiving. After my husband had started coming down with something we hoped wasn’t Covid-19, then we both woke up with the same cough and congestion he had experienced the previous night. We reached out to a house-call doctor. She came to the house, checked us out, and collected nasal swabs that she took to the lab that same Saturday morning. By Monday morning, her email arrived with news from the lab we were both positive for Covid-19. The first three days were a lot like having a miserable type of flu. Fever, deep cough, loss of taste and ..read more
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Lupus and Telecommuting in a Soft Spring Breeze
Lupus, the Adventure Between the Lines
by Lupus Adventurer
3y ago
It began shortly after hanging my new calendar.  Just after the holidays, we were filled with the spirit of new beginnings and rearranged our home office.  My husband and I did not know it would soon become my “new normal” workplace.  For several years, ever since the great recession of 2008, my workplace has closed down one day each week to save on utility expenses.  As a result, most employees work a 4-10s schedule now, starting at 7:00 a.m. Mondays through Thursdays. With Lupus, mornings were already an incredible challenge, so the idea of 10-hour days starting that earl ..read more
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Short List of Definative Reads about Lupus and COVID-19 Coronavirus
Lupus, the Adventure Between the Lines
by Lupus Adventurer
4y ago
Where can I get reliable information about Lupus and COVID-19?  The Internet is simply swarming with articles discussing Lupus and giving incredible attention on the commonly used lupus medication Plaquenil (Hydroxychloroquine).  It can be extremely difficult right now to find definitive and accurate information about coronavirus issues that focus specifically on the needs and interests of Lupus patients. The following is my short list of the most highly recommended and medically reliable reads discussing COVID-19 Coronavirus and issues specific to Lupus patients.  https://www.lupus.org/resou ..read more
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Lupus and Getting By the Gatekeepers
Lupus, the Adventure Between the Lines
by Lupus Adventurer
4y ago
Life can be measured by in four-week increments by lupus patients receiving monthly Benlysta infusions.  Just four weeks and one day ago the results from my COVID-19 test came back negative, and it was possible to resume infusions after a bad case of bronchitis postponed them.  After returning to work for only two days my office closed down and many of us began daily telecommuting.  Going to work now involves a quick stop at the coffee pot and a walk through the living room to my home office. Today was infusion day again, but now, things at the doctor’s office were different!  An email had be ..read more
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Lupus and Longing for a Normal Life
Lupus, the Adventure Between the Lines
by Lupus Adventurer
4y ago
Whatever normal is, it is not this! Today was somewhat like yesterday, and but this month is certainly not starting out like last month did! After over six weeks of working mostly from home as a telecommuter, I am finally starting to get the knack of connecting with support staff and colleagues who are not down the hall from me. We have rediscovered the original purpose for telephones – conversation. But, it does not seem quite right to call this the new normal. Something in me just refuses to accept the idea of living in this state of isolation and social distancing forever! Perhaps it is mo ..read more
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Lupus and Living Gratefully – Coronavirus Social Distancing
Lupus, the Adventure Between the Lines
by Lupus Adventurer
4y ago
Unexpected arrivals can interrupt our game plan, but sometimes are blessings in disguise.  When bronchitis suddenly showed up aggressively and urgently during a mid-February 30-minute drive home from a morning appointment, the urgency of symptom onset caused an in-auto (hands free) phone call to arrange a same-day doctor visit on the way home.  Diagnosed with bronchitis and a sinus infection, the next stop was medications at the pharmacy, followed by a week in bed, and then two more weeks quarantine. In retrospect, my perspective on the experience is simply gratefulness!  Just as the Coronavi ..read more
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Lupus, Laughter, and Loving Support
Lupus, the Adventure Between the Lines
by Lupus Adventurer
4y ago
Valentine’s Day was a telecommute Friday, at the end of an odd week.  Mid-week saw a couple of days diverted due to a sudden respiratory infection, but after seeing the doctor and taking some antibiotics, all was much better. The house whispered soothingly throughout a productive day.  Alone with my tea and laptop the hours passed computing quietly about business issues and communicating to other colleagues working remotely.  My chair was enveloped in warm indirect light streaming through a living room window.  My winsome little dog curled up on the rug next to my feet, as the melody of windch ..read more
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Lupus and Choosing the Victimless Life Despite Physical Scars
Lupus, the Adventure Between the Lines
by Lupus Adventurer
4y ago
Victimless life Perhaps some conclusions about the issue of victim-hood can apply to Lupus.  In our society today, there is constant conversation about people who are victims.  While addressing vast socioeconomic issues in contemporary public debate would be daunting, discussing the possibility and options to a victim mindset in chronic illness, such as Lupus, is a worthy effory. Those of us with Lupus do not want to have it.  The idea of being a victim of lupus seems like it might be a personal choice, not an inevitable consequence of Lupus.  Being a victim of a physical flaw, injury or heal ..read more
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