The lovely woman I’m about to introduce to you all this week is perhaps one of the most resilient human beings I have come to know. Her posts are honest, raw and give a clear picture of what life with autoimmune disease(s) is like. Even though she has been through plenty of trials and tribulations, Kenzie has faith and remains beautiful and looks for the good through it all. Her motto, #bethecactus, is so fitting to describe her. Make sure to check her and her sweet dog Ophie out on her website here and Instagram @accordingtokenz Thank you so much for sharing your story Kenz!  You ar ..read more

When I woke up from the anesthesia after my colonoscopy in 2013, I was told that I had Ulcerative Colitis and that there was no cure. I was told there were treatment options available and we would discuss them next week.  And that was it.  I wish that there was not any more IBD diagnosis. Unfortunately, it is becoming more prevalent and pediatric cases are increasing as well. Every year 70,000 people are diagnosed with IBD. Let’s give these people some hope. I recently found out that the office I used to seek treatment for my Ulcerative Colitis will not hand out the new patient packe ..read more

I was lucky enough to meet Jordan in person at an Ulcerative Colitis Patient Panel hosted by Pfizer about a year ago. He was one of the first patients with a jpouch that I had ever met in person, and he gave me hope that if I ever had to take that route for treatment, my life wouldn’t be over. Instead of letting the diagnosis of Ulcerative Colitis shatter his life, he’s taken this new lifestyle as a second chance to enjoy as much as possible. Thanks for taking the time to answer a few questions and share your story, Jordan! When were you diagnosed with Ulcerative Colitis?  I was diagnosed ..read more

Cheers to another Hope Warrior Wednesday! This week our featured warrior is Nicole. Nicole is a sweet mom, wife and fellow spoonie who shares her faith and hope on her blog and instagram posts. Make sure to stop by and tell her hello, and find some delicious recipes on her website! Thank you, Nicole! What chronic condition or illness are you currently battling? When I was 24 I was diagnosed with endometriosis.  However at the time my doc didn’t explain how it’s an autoimmune disease or how to help support my body.  So life went on and I lived in blissful ignorance.  At age 31 I ..read more

Today I bring you, in my humble opinion, the guru of IBD (inflammatory bowel disease): Amber Tresca. Amber is an IBD advocate. She works hard to bring forth the facts about IBD, answer questions and support patients as the navigate the confusing paths that these diseases take us down. She does amazing work on her blog, podcast, twitter chats and all of the articles she writes. Amber is the real deal when it comes to advocacy, and I’m so honored to share a bit about her here. Thanks for participating and all that you do, Amber!  When were you diagnosed with Ulcerative Colitis? I was diagno ..read more

Have you ever come across an Instagram post and just thought, “YES! This is my language! Finally someone is speaking it.” Well, Callie at @riverandquill is this person for me. I found myself nodding my head, smiling, laughing, tearing up and saying OH MY GOSH YES to so many of her interview responses. She has an amazing talent for writing, and I think many of you will find her journey with chronic illness, hope, and grief very relatable. Grab a cup of tea or coffee and settle in to read my interview with Callie to below. Make sure check out her social media and then blog here as she writes abo ..read more

I’ve received a lot of requests for this post over the last year, and figured our first anniversary would be a good time to answer those questions. Here are my top 5 tips for enjoying your wedding day despite a chronic illness. Make time for yourself.  Eaton Rapids Wedding Photography – Millers Dairy Farm – Phil Black Photography The morning of our wedding was absolutely gorgeous. I spent some time alone in the morning before everyone arrived at the house doing yoga, sipping on a cup of coffee and writing a letter to my soon to be husband. (Instead of sand or candles, we decided to wri ..read more

My birthday wish this year is not for a cure for IBD.  This year, I’m asking for something that might be much harder to accomplish: better care for patients. My wish is that no one ever wakes up post colonoscopy to be told:  “You have a disease with no cure, come back in two weeks.” Instead, I wish for an IBD army of advocates to be in every hospital, with arsenals of accurate information and resources they are ready to provide to that new patient so they are filled with hope instead of fear. Let’s avoid the Doctor Google search and arm patients with the facts right from the start.&n ..read more

Good morning! I’m writing to you from my Lazy Boy chair. My dog is under my feet and the cat is to my left contemplating walking over my keyboard. I have a cup of yogi tea this morning, Blueberry Slim Bliss Green Tea to be exact. So yummy. I just finished a delicious breakfast of leftover gluten free pancakes topped with a ton of strawberries and maple syrup. My husband made a huge batch of the GF pancakes yesterday, and we finally got the recipe right where they taste like real pancakes, not biscuits. Today mostly though, I feel relief. This last week was a struggle, and I’m ready for a new w ..read more

Good morning friends. No smoothie to share today as my husband is still sleeping and I didn’t want to wake him with a roaring blender. I do have a cup of Tazo Earl Grey tea sitting here though. I love the smell of Earl Grey. That hint of lavender is delicisou Do you have a favorite kind of tea you’ve been drinking lately? I’m always looking for new ones to try. I still don’t think I am recovered from daylight savings. Monday was great, and it all went downhill from there. I’ve missed my morning yoga practice every day. Just can’t quite wake up out of the fog. It could be this weather too. It’s ..read more