Hi everyone. One of our family members (60M) was diagnosed with GBM in November 2023. Since then, two surgeries, one round of chemo, radiation, and some Optune use. He recently had an MRI done which showed great progression of the tumors. Doctors have told us there is no further treatment that can be done as he is very weak. I think the largest growth is about 1.5 cm from what I read on the MRI report. He is confused much of the times and barely eating. Does anyone have any insights that may help us during this time? How can we get him to eat and build his strength up? And honestly, how much ..read more

Hello, I’m trying to figure out where hormone receptor testing is done for brain tumour samples. Here in Canada, it is only offered for breast cancer patients. My neurosurgeon is frustrated with me for asking. If anyone out there has had any kind of genetic, molecular, biomarker, hormone receptor status testing do e, could you please tell me the hospital or lab where the testing was done? Or, any contact info from a pathology report might help. I want to find out if I can get testing done privately — at a minimum so that I can know what to avoid or add re: supplements, diet etc —- since it is ..read more

Does immunotherapy (like Keytruda) work for the brain? submitted by /u/Several_Dragonfruit1 [visit reddit] [comments ..read more

I’m writing this because I haven’t found a whole lot of information on our cancer situation. Maybe someone else will see this and not feel alone. As if 2020 wasn’t weird/bad enough, in December of 2020 my wife (42 at the time) went to the ER for crazy weird migraines and noticed later in hindsight that her left peripheral was going too. They did a CT scat and saw something big in the right rear part of her brain. An MRI later would reveal it to be a tumor. All but 5% percent of it was able to be removed because of it sitting on the thalamus. That was the easy part. The pathology had a couple ..read more

Okay so odd question I could save but curiousity is killing me. My partner has grade 2 oligodendroglioma in one large mass where it cannot be removed, so a part of our treatment plan is proton followed by chemo therapy. My question is... What happens to the tumor? It currently holds motor controls within it as we saw with our functional MRI which is why I assume we will see a potential impact on motor and cognitive functions when we get to that point but is the tumor just.... Goo? Temporarily inactive hardware that will eventually lead to resurgence? I know it kills the cells ability to do it ..read more

30F, with a LGG that has been barely growing since 2012 (still under 1cm). I had two kids before diagnosis (in 2012 it was labeled as a migraine spot and this was just recently rediagnosed as a LGG since it has grown from 4mm-8mm) and there is nothing to make us believe that those pregnancies caused the spot to grow faster. We are currently under the “watch and wait” protocol but this could go on forever and we don’t want to keep putting our life on hold! My husband and I wanted a 3rd kid and the NO thinks that this is definitely possible and fine with this size of tumor, but it makes me real ..read more

My husband had a golf ball sized meningioma removed just over a year ago after having a seizure. Everything went really well, they got it all and he hadn’t had another seizure, has been off the kepra and was allowed to drive again since around February. Everything had gone pretty much back to normal apart from a few small things. Tonight he had another grand mal seizure and is in an ambulance on the way to emergency. I can’t call anyone to talk as it’s 2am, I’m so worried and I’ve got so many thoughts going on. I’m mostly worried that it’s returned, and he’ll need more surgery. Or it will be ..read more

29F. Looking for neurosurgeons experienced with skull base tumors, specifically in the Austin area. Trying to get second and third opinions before going to a bigger/more specialized facility. Mass is centered in foramen of Magendie and extends into inferior fourth ventricle. 26x7x11mm. Husband and I moved down here not too long ago. Currently looking at MD Anderson, Cleveland Clinic, or OSUCCC for actual surgery/treatment - as our entire support system is in Ohio. Thanks in advance. submitted by /u/Desperate-Moose-9494 [visit reddit] [comments ..read more

Hey everyone. Just working on processing the day so feel free to scroll on by. My wife (36. Grade 4 idh-mutant astrocytoma) is transitioning to hospice. Was too advanced and deep for any surgical resection. She did well after the initial round of whole brain radiation. Seems like maybe temodar didn’t do much (thinking because un-methylated?). She went downhill rapidly the last few weeks, and doctors tried to add in avastin and additional radiation but she’s struggled with confusion and that’s made it impossible for her to continue with radiation. Doctor’s best guess is she has 4-6 weeks. I do ..read more

Okay. my partner is in the phase of his cancer treatment now where he’s completed his six weeks of radiation/chemo, now he’s on a stronger dose of chemo five days a month for a year and we’ll be getting scans every 2-3 months. he just finished his first month and it was hard, way harder than the lower dose of chemo he was on during radiation. for context, he was also already knocked down by a head cold, so he started this round already depleted. I’m hoping that it just made it worse and that it won’t be like this every month. During the dose days, he could barely hold even liquid down, couldn ..read more