During the past few years, I've been away from my blog. I've written several posts in my head, but unfortunately those posts have not yet made it to the internet. I've been dealing with depression, anxiety, health issues, teaching during a pandemic... but I've also had the joy of family, friends, students. I've been reignited by the HealtheVoices conference, podcasts, and Instagram posts to continue my advocacy work. I don't report on policy or pharma. I want to share my story.  The story I was looking for when I was diagnosed. The story that many of us are looking for. Medical informati ..read more

 Until I get my blog up and going again, please find me on Instagram ..read more

Why am I here? I've been thinking a lot about this question lately. Especially since my stroke in February. We all question our purpose, but when faced with a situation that could be fatal. I don't like to think about it, but even though I came out ok from my stroke, the fact is that I could have died if it had hit a different part of my brain. I am thankful every day that I am still here, but that still brings up the question... Why am I here? This is a question I have been asking myself. Is there a purpose for my life? I'm meaning beyond the raising my children and being here to see my gr ..read more

This is a post that has been going around in my head for two months now. I know I want to... need to... write this. Not just for others, but mainly for myself. I need to get my thoughts and emotions out. That is the reason for my blog. To explore what I'm dealing with as a person with chronic illness. If by sharing I help one person who is also struggling know they are not alone, I have me my purpose. People dealing with a chronic illness know that, quite often, the medical file usually doesn't stop with one diagnosis. Whatever the cause - genetic, autoimmune, illness, or just pure luck - rar ..read more