Advocate Spotlight: Kim Praitano
Cancer Support Community Blog
by Rachel Solomon
4y ago
Monday, July 13, 2020 - 11:00am By Rachel Solomon Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Kim, President & CEO of Gilda’s Club South Florida, and her passion for psychosocial support in cancer care. If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network ..read more
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A Step Toward Increasing Patients’ Voices in Clinical Trials
Cancer Support Community Blog
by Kim Czubaruk
4y ago
Wednesday, July 8, 2020 - 12:00pm By Kim Czubaruk The Cancer Support Community welcomes the FDA’s new pilot program, Patient Project Voice, as a thoughtful first step toward the development of a comprehensive and consistent method of sharing patient experience data (PED) collected in clinical trials with patients and providers to help inform treatment decisions. For years, the CSC has been in conversations with the FDA on the importance of collecting PED and specifically, in incentivizing manufacturers to examine PED through a pilot program. We are very encouraged to see the agency pursue this ..read more
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Advocate Spotlight: Rachel Gerstenfeld
Cancer Support Community Blog
by Rachel Solomon
4y ago
Friday, June 12, 2020 - 10:15am By Rachel Solomon Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Rachel, a graduate student at the University of Maryland getting a Master of Public Health degree with a concentration in Health Policy. If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network ..read more
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What is the Federal Government Doing to Help People Impacted by Coronavirus?
Cancer Support Community Blog
by Elizabeth Franklin, Rachel Solomon
4y ago
Wednesday, June 10, 2020 - 10:00am By Elizabeth Franklin, By Rachel Solomon If you are a person impacted by the novel coronavirus (COVID-19), are living with cancer, or are immunocompromised, one important way to maintain some sense of control in what might be an anxiety-provoking time is to understand what is being done from a policy perspective to help respond to the pandemic, and how these changes have the potential to actually impact you and your community ..read more
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What Cancer Patients, Survivors and Caregivers Need to Know about the Coronavirus
Cancer Support Community Blog
by Elizabeth Franklin, Rachel Solomon
4y ago
Wednesday, June 10, 2020 - 1:00pm By Elizabeth Franklin, By Rachel Solomon For many cancer patients and survivors with compromised immune systems, the reporting on this public health emergency may likely be source of anxiety. At a time when information is coming at us at a rapid pace, we are putting resources for you here, in one place. Read on to view a list of the resources we have and the actions CSC are taking to provide support to individuals affected by cancer ..read more
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Holding Fear in its Proper Place
Cancer Support Community Blog
by Nancy Sharp
4y ago
Friday, June 5, 2020 - 12:15pm By Nancy Sharp Everywhere you turn people are grappling with fears both real and imagined. There are no easy answers but amid such fraught times we have to find ways to continually challenge our fears. Nancy suggests three simple things to try ..read more
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CSC Counters COVID-19
Cancer Support Community Blog
by Cancer Support Community
4y ago
Wednesday, June 3, 2020 - 11:15am By Cancer Support Community Thanks to the generous support of individuals and corporate partners, the Cancer Support Community (CSC) has taken swift action to adapt and increase the availability of its free patient-focused support and navigation services during this unprecedented global public health challenge ..read more
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Perspective Is Everything
Cancer Support Community Blog
by Nancy Sharp
4y ago
Wednesday, May 27, 2020 - 3:15pm By Nancy Sharp With all the disruption and upheaval in our lives, it’s been a real struggle to feel joyful about welcoming the happy moments this month typically brings. Everyone Nancy knows seems to be riding this rollercoaster: fearful and anxious one day, grateful and calm the next. This is to be expected in the throes of such global uncertainty. Nancy was in a real funk at the start of the month, and a bit conflicted at having to be the face of resilience when she felt anything but resilient. But then two things happened that shifted her perspective ..read more
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What is the Federal Government Doing to Help People Impacted by Coronavirus?
Cancer Support Community Blog
by Elizabeth Franklin, Rachel Solomon
4y ago
Friday, May 15, 2020 - 10:00am By Elizabeth Franklin, By Rachel Solomon If you are a person impacted by the novel coronavirus (COVID-19), are living with cancer, or are immunocompromised, one important way to maintain some sense of control in what might be an anxiety-provoking time is to understand what is being done from a policy perspective to help respond to the pandemic, and how these changes have the potential to actually impact you and your community ..read more
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Advocate Spotlight: Courtney Lozano
Cancer Support Community Blog
by Rachel Solomon
4y ago
Monday, May 11, 2020 - 2:30pm By Rachel Solomon Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Courtney and her advice for people impacted by cancer during this anxiety provoking time. If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network ..read more
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