Getting a Better Grasp on Genital HSV-1
Herpes Cure Advocacy
by Patient Advocate
1M ago
One current challenge in the field of genital herpes is improving the diagnosis and management of patients with genital infections caused by herpes simplex type 1 (HSV-1). While HSV-1 and -2 are closely related, they differ in important ways. Perhaps most notably, up until now HSV-2 has overwhelmingly been the more prevalent cause of genital herpes infections. Accordingly, researchers and clinical experts have spent a great deal more time and resources studying HSV-2—looking at everything from natural history to diagnostic tools to drug development. In the last two decades, however, the field ..read more
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Herpes Advocates Town Hall Meetings
Herpes Cure Advocacy
by Patient Advocate
1M ago
Hi all, We’re re-establishing a schedule of our Town Hall Meetings led by the HCA Patient Task Force. These meetings of the Herpes Cure Advocacy Patient Task Force are now open to the public and all advocates (and professionals!) are welcome to join. Learn more about: Urgent Advocacy Initiatives How to Advocate for Change Overcoming Stigma in Advocacy How to get Involved with the Task Force Meeting Dates: 3/27 5:00 PM PST 6/26 5:00 PM PST 9/25 5:00 PM PST 12/18 5:00 PM PST DIAL IN: Join Zoom Meeting https://us04web.zoom.us/j/76291710684 Meeting ID: 762 9171 0684 Passcode: j2p0Wr About He ..read more
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HCA Welcomes Dr. Christine Johnson
Herpes Cure Advocacy
by Patient Advocate
2M ago
Talk and Q&A with Dr. Christine Johnston: Genital HSV-1 Infection: New and Emerging Research Did you know genital HSV-1 is the fastest growing type of genital herpes? Dr. Christine Johnston will give us an update on genital HSV-1 infections including results from a recent large study of the natural history of genital HSV-1 infection.  She will discuss what we still need to learn about HSV-1 infections.  There will be time for questions! Please send questions in advance to info@herpescureadvocacy.com. Genital HSV-1: New and Emerging Research March 5th, 6pm EST About Dr. Chr ..read more
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BD Gene Presents data on possible Herpes Keratitis Cure
Herpes Cure Advocacy
by Patient Advocate
5M ago
Chinese company BDGene from Shanghai continues to lead in the global race for a herpes keratitis cure. We reported on its progress – which it has published in the top international academic journals Nature Biotechnology and Nature Biomedical Engineering. Their gene editing treatment for viral keratitis (BD111), developed based on BDmRNA delivery patent technology, has completed 3 human clinical trials of IIT. It is the only technology of Cas9 mRNA delivery by lentivirus in the world, and also the second human clinical research project of CRISPR-Cas9 gene editing treatment ..read more
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Herpes Cure Pipeline 3.0
Herpes Cure Advocacy
by Patient Advocate
6M ago
Welcome to the latest clinical pipeline for Herpes Simplex Virus types 1 +2, the Herpes Cure Pipeline 3.0. Here we’ve updated, removed, and added new projects (preclinical research and in-human clinical trials) that have occurred over the last year, since the 2.0 edition was published in March 2022. Download Herpes Cure Pipeline 3.0 ..read more
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Herpes Awareness Day 2023: Rally for Change
Herpes Cure Advocacy
by Patient Advocate
6M ago
Join for a live Rally to talk about the need for change. Want to help rally for a Herpes cure?  Herpes Cure Advocacy (HCA), is a grassroots membership-based, international non-profit 501c3 advocacy organization with a goal of treatment, cure and prevention for Herpes Simplex Virus types 1 + 2.  Our mission is to eradicate the world of Herpes Simplex Virus (HSV-1 and HSV-2) so carriers can be healthy and improve their quality of life.  Founded in 2020, Herpes Cure Advocacy was born out of collaborative efforts with patient advocates worldwide ..read more
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Herpes Awareness Day is October 13
Herpes Cure Advocacy
by Patient Advocate
6M ago
We’re celebrating with the release of Herpes Cure Pipeline 3.0. Herpes Cure Advocacy is the only patient advocacy organization globally tracking the clinical pipeline for HSV. If you want to get the news first – please subscribe to our newsletter by clicking here today. Herpes Awareness Day Advocacy Alerts Advocates, We need you to take action today to use your voice to advocate for change. How can you help today? Contact President’s Advisory Council on HIV/AIDS (PACHA) Chair Participate in 50 State Challenge Details below! 1. White House Task Force for Herpes In July 2023, Herpes Cure ..read more
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50 State Challenge: Help us Find Advocates Across the US!
Herpes Cure Advocacy
by Patient Advocate
6M ago
Hello advocates! We need you and your voice to help continue the momentum for change in Washington, DC. In order to do this, we’re looking for an advocate (or two!) in all fifty states. 50 State Challenge Willing to help? Please let us know where you live and the names of your elected representatives. Find your elected representatives in the United States by clicking here. This advocacy activity is anonymous but will require a meeting with your elected representatives staff. Submit this form, and a member of the Herpes Cure Advocacy task force will follow up with you on next steps. Please ena ..read more
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Call to Action: Group Letter to President Biden
Herpes Cure Advocacy
by Patient Advocate
6M ago
Join hundreds of ID experts, HCPs, and patient advocates in the call for change. The White House 1600 Pennsylvania Avenue NW Washington, DC 20500 July 24, 2023 Dear President Biden, I am writing in support of a federal response to address the cure, treatment, and prevention of Herpes Simplex Virus in the United States. Herpes is widely recognized as a driver of the HIV/AIDS epidemic – more than any other infection. Research indicates that 30% of new HIV cases may be linked to herpes. Recent work has suggested herpes may also be a major player in Alzheimer’s disease. It is a plausible theor ..read more
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Highlights from the Herpes Cure Pipeline with Dr. Anna Wald
Herpes Cure Advocacy
by Patient Advocate
6M ago
Highlights from the Herpes Cure Pipeline 3.0 w/ Dr. Anna Wald September 20th 6pm EST  Herpes Cure Advocacy Meet the Experts series returns this Fall with Dr. Anna Wald and an overview of the clinical pipeline for Herpes. Dr Anna Wald is Professor in the Department of Medicine, Epidemiology and Laboratory Medicine & Pathology at the University of Washington and in the Vaccine and Infectious Diseases Division at the Fred Hutchinson Cancer Research Center.   Dr Wald co-directs the University of Washington Virology Research Clinic, a clinic dedicated to the study of epid ..read more
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