The Hate Race at the Malthouse Theatre
Carly Findlay
by Carly Findlay
3w ago
This is a gifted post, containing spoilers. I saw The Hate Race at The Malthouse Theatre today. It’s an adaptation of Maxine Beneba Clarke’s memoir of the same name – exploring her childhood in the Western suburbs of Sydney in the 1980s and 90s.  Maxine, played by Zahra Newman, is sassy and smart, yet uneasy in her African identity. She dreams of a white version of herself, and then realises the strength in her identity.  Maxine and I are close in age, both Australian born, to migrant parents, raised in a very white Australia. (Her parents are Guyanese and Caribbean, via England; mi ..read more
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Rare Disease Day 2024
Carly Findlay
by Carly Findlay
3w ago
Today is Rare Disease Day – raising awareness and generating change for the 300 million people worldwide living with a rare disease. When parents get their child’s diagnosis for a rare disease, doctors often say, “I’m so sorry”. They apologise for life not turning out as planned. They unwittingly instil fear and shame. And adults with rare diseases continue to face loneliness, stigma and feelings of deficit and misunderstanding. I have a rare disease – Netherton’s Sybdrome, which is a form of Ichthyosis. Netherton’s Syndrome is very rare. According to the National Organization of Rare Disorde ..read more
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Valentine’s Day dinner at NEL Restaurant in Sydney
Carly Findlay
by Carly Findlay
1M ago
image: Nelly Robinson and Carly Findlay in NEL Come with me to NEL. A couple of weeks ago, on Valentine’s Day, I took myself out on a date while I was in Sydney for work. In 2022 I got to meet and work with the wonderful Nelly Robinson, head chef and owner of NEL. We filmed four episodes of The Cook Up for SBS Food, hosted by Adam Liaw. NEL is a super fancy restaurant, serving a degustation menu. The current menu concept celebrates native ingredients – including a pepperberry jaffle, smoked burra (eel), bush tomato damper, kingfish carpaccio, warrigal and saltbush taco, kangaroo kebab, anise ..read more
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Face Equality is a social justice issue
Carly Findlay
by Carly Findlay
1M ago
It’s World Day of Social Justice – a United Nations sanctioned day that reminds us each year of the need to build fairer, more equitable societies.  For me, social justice, when applied to Face Equality, means that people with facial differences are respected and valued and feel safe in society. It means that we can report acts of discrimination and our experiences are validated and are acted on. It means being protected by the Disability Discrimination Act – or the equivalent act in your country.   It means that we can feel proud of our facial differences, and not conceal ..read more
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Stop asking marginalised people to work for free
Carly Findlay
by Carly Findlay
1M ago
Exposure doesn’t pay the bills! Stop asking writers to write for free. Stop asking speakers to speak for free. Stop running unpaid advisory and consultation committees. Stop asking marginalised people to share our lived experience and expertise for free. Value us. Especially when you’re paying everyone else but us. It’s not just an article or speech we are writing and delivering. It’s the years of experience we’ve had honing our skills. Its the time it takes to write, rewrite and practice. It’s needing to put aside money for tax and superannuation. It’s the time we spend travelling to and from ..read more
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Ichthyosis and digestion issues
Carly Findlay
by Carly Findlay
1M ago
Let’s talk Ichthyosis and digestion issues! This fortnight has been a doozy (or should I say a poozy?!). Something I don’t talk about much is that the type of Ichthyosis I have (Netherton’s Syndrome) is linked to digestion issues. Many people with Ichthyosis have food allergies – sometimes multiple. I’m lucky that I don’t – but I do get a reaction on my hands and lips if I touch shellfish (I’m really holding out to let shellfish go!). And most people with Harlequin Ichthyosis and Netherton’s Syndrome experience failure to thrive as babies and children – because our bodies burn so much energy ..read more
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I was targeted by scammers – via podcast guest invitations
Carly Findlay
by Carly Findlay
1M ago
There’s a Facebook hacking scam going around where scammers impersonate podcaster/celebrity managers, inviting content creators with large Facebook page followings onto a podcast, which they ask to do via Facebook live paid events. During the podcast briefing, the scammer tries to take control of the creator’s Facebook page through the back end of Meta. I almost got scammed. (On two separate occasions.) Here’s one story – the other was quite similar but they didn’t go through my agent. Both times I had alarm bells – I was more prepared for this one. I was invited on a podcast via my agent, an ..read more
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Getting into advocacy – do the thing you love!
Carly Findlay
by Carly Findlay
2M ago
A friend asked me to write about success and how to move into disability advocacy and/or a career that makes you happy. I wrote this, and thought it would be useful to share here. I am a writer and speaker, trainer, arts worker and activist. I started by having a side hustle – writing a lot. I found success in the field of writing, speaking and the arts. I did a side hustle for many years – blogging , which led to publication in news outlets, volunteering on community TV which led to mainstream media work, and speaking gigs. I went from working full time in the government with a side hustle ..read more
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It’s ok if all you did this year is survive.
Carly Findlay
by Carly Findlay
3M ago
I’ve just posted my highlights of 2023, and I’m very aware of my privilege. For many people, their 2023 was a really difficult year. It’s ok if all you did this year is survive. It’s ok if your highlight reel comprised of seeing a beautiful sunset and enjoying a cup of tea, rather than grand statements of achievements. To everyone struggling right now – I see you. So many people I know are doing it tough, with disabling barriers and bodies and minds, the impacts of Covid, the cost of living crisis, housing and job insecurity, racism, transphobia, abusive behaviour from others, grief and loss ..read more
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Highlights of 2023
Carly Findlay
by Carly Findlay
3M ago
This year has been huge! Mostly great, but of course, there have been some hard times, too. Thank you to everyone who has been a part of making the year amazing – there were many pinch me moments Here are some of my highlights of 2023: Fun with Adam (he’s smiling!). Seeing Darren Hayes play in Melbourne & Sydney & meeting him. Being nominated for the Marie Claire Australia Women of the Year awards in the Changemaker category – the nomination and being in the room with incredible women was a win for me! A working holiday with my Mum to the Sunshine Coast thanks to Visit Queensland ..read more
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