CMTUK is looking to recruit someone for the above position. Administrator/Communications Coordinator (Part-time)  25 hours per week  £22,500 pro rata  Monday to Friday 9am – 2pm (some flexibility may be possible). Occasional weekend/evenings may be required.   CMTUK is a charity that supports people living with Charcot Marie Tooth disease, a group of peripheral neuropathies.  Context – Raising awareness of CMT and CMTUK is one of the main aims of CMTUK. Along with supporting members, this role will build on the existing communications, and activities to achieve th ..read more

2024.02.28_data-update_ENDownload The post Pharnext progresses in analyzing data from pivotal Phase III study ofPXT3003 in Charcot-Marie-Tooth disease type 1A appeared first on Charcot-Marie-Tooth UK ..read more

Can you help with Charcot-Marie-Tooth clinical research? If you have Charcot-Marie-Tooth disease, live in the United Kingdom and would like to be involved in clinical research, then you can now sign up to the UK CMT research database. The database is open to both adults and children. The post CMT Research Database appeared first on Charcot-Marie-Tooth UK ..read more

Confirmed speakers: Professor Mary Reilly, Lorna Ryan on Nutrition, Magdalena Dudziac on Balance and Falls with CMT. The post CMTUK In Person Conference 2024 appeared first on Charcot-Marie-Tooth UK ..read more

PXT3003-press-release-1223-1Download The post Pharnext intends to prepare registration and marketing authorizationdossiers for PXT3003, its drug candidate in Charcot-Marie-Tooth diseasetype 1A appeared first on Charcot-Marie-Tooth UK ..read more

PXT3003-topline-results-2Download The post Pharnext reports topline results from the pivotal Phase III clinical trial(PREMIER trial) of PXT3003 in Charcot-Marie-Tooth disease type 1A appeared first on Charcot-Marie-Tooth UK ..read more

The post Messages of Support for CMT Awareness Month appeared first on Charcot-Marie-Tooth UK ..read more

finalisation_bd_enDownload The post Pharnext enters the final stretch for the signature of a licensingagreement for its drug candidate in Charcot-Marie-Tooth disease type 1A(PXT3003), enabling it to capitalize on its assets and put an end to theOCEANE-BSA financing line appeared first on Charcot-Marie-Tooth UK ..read more

The post CMT Awareness Month: October 2023 appeared first on Charcot-Marie-Tooth UK ..read more

CMTUK: Membership Reimagined: Q&A We hope our letter above sets out clearly the decision to move from a subscription-based membership fee to a donation funded charity, serving those affected by CMT without the mandatory cost burden. If you have any questions or concerns about this, do please ask: as ever you can email us at enquiries@cmt.org.uk or telephone the office on 01202 474203. That said, we hope the following will address some of your questions. Q1. What changes are being introduced? From 1st October 2023 CMTUK will no longer require a mandatory annual membership fee. We will ask m ..read more