We have exciting news to share. CLL Advocates Network, CML Advocates Network and Acute Leukemia Advocates Network is launching the Leukemia Patient Advocates Academy – a groundbreaking program designed to empower and educate patient advocates. This is an opportunity for patient advocates to be a part of a repeated course which is aimed at building capacity in both smaller and larger patient advocacy groups and will help to ensure sustainability in advocacy efforts.   All CLLAN members are invited to enroll to this FREE COURSE! “Building Relationships wit ..read more

The CLL Advocates Network (CLLAN) Steering Committee are pleased to announce the 5th International CLL Horizons Conference, a hybrid event scheduled for 27th – 29th September in the stunning city of Barcelona, Spain.  Save these dates in your diaries! The CLL Horizons Conference 2024 has been strategically coordinated to overlap with the ERIC International Meeting, New Frontiers in CLL Research, also in Barcelona. This alignment opens doors to enhanced networking, educational opportunities, and the cultivation of collaborative endeavours between the global CLL c ..read more

Nicole Schröter, a valued colleague, is leaving her position as Project Manager at CLL Advocates Network (CLLAN) after four years of dedicated service. We bid her farewell with heavy hearts as she embarks on a new chapter in her career. Nicole joined CLLAN in March 2020, bringing valuable experience and professionalism. As CLLAN Project Manager, she played a key role in keeping the network running smoothly and coordinating tasks effectively. From managing communication among Steering Committee members to building partnerships with our members and other networks, Nicole led many successfu ..read more

We are excited to have Jan joining our Team! Jan will be supporting projects and managing stakeholder relations. We look forward to moving the mission of CLLAN forward with Jan’s help. In 2011, at the age of 39, Jan was diagnosed with CLL. Jan had an opportunity to take part in a clinical trial in the UK for a novel therapy in 2014 and is presently doing well on treatment. In 2017, she and her husband Michael founded Chronic Lymphocytic Leukaemia Ireland, a patient-led advocacy group and registered charity that aims to support others with CLL along with their care partners and families. Jan si ..read more

CLL Horizons, the international conference of organisations representing people with CLL, is designed to build capacity in patient advocates and grow their skills on medical and advocacy topics. It is a unique opportunity for patient advocates and patient organisation representatives supporting CLL patients to: Learn about the disease, treatments and latest research from leading doctors; Hear from fellow advocates on key topics, including awareness, education and drug access; Meet and network with others doing similar work, giving them the opportunity to discuss issues facing CLL patients. B ..read more

Chronic lymphocytic leukemia (CLL) is a type of cancer of the blood and bone marrow. It is the most common leukemia in adults. Every 1 September, the global CLL community unites to raise awareness about chronic lymphocytic leukemia (CLL) and give those affected by a diagnosis of CLL a much needed voice. On World CLL Day we come together to share resources to improve understanding of the life of those affected by a diagnosis of CLL. World CLL day offer opportunities to share information and initiatives to improve their quality of life, experience and outcomes. For this year campaign updates and ..read more

We are delighted to share news of the official launch of the CLLAN Advocacy Toolkit – a CLLAN initiative that represents a significant milestone in our ongoing commitment to supporting organisations in their journey of assisting CLL patients and carers. The CLLAN Advocacy Toolkit is more than just a compilation of resources; it is a dynamic platform that aims to support the initiation and development of CLL support groups, particularly in regions where external support is scarce. This tool is dynamic, with ongoing additions of content and resources, the pillars will become more comp ..read more

Download COVID-19 Patient Booklet here In late 2021, a multi-stakeholder coalition consisting of representatives from the global patient advocacy and clinical community formed the International COVID-19 Blood Cancer Coalition (ICBCC) to address the specific impact of COVID-19 on immunocompromised blood cancer patients (both acute and chronic), like those living with CLL and other Non-Hodgkin lymphomas (NHLs). The CLL Advocates Network (CLLAN) as the coalition secretariat is proud to announce the launch of the ICBCC COVID-19 Patient Booklet entitled “Navigating a post-pandemic world: A guid ..read more

We wish everybody lovely Christmas and a successful start of a happy and healthy 2024. Please find our Christmas greetings here: The post Happy Holidays and Merry Christmas from the CLLAN team appeared first on CLL Advocates Network ..read more

We are thrilled to share the latest findings from The Association of Cancer Patients in Finland Cancer and Work Survey 2023. Conducted in April-May 2023, this survey focuses on the experiences of working-age cancer survivors in Finland and provides valuable insights into their professional lives. The Cancer and Work Survey 2023 received an impressive 769 responses, offering a robust dataset that reflects the diverse experiences of cancer survivors in the Finnish workforce. The detailed results are available only in PDF format. Results in English and Finnish: English: www.syopapotila ..read more