
CLL Ireland Blog
25 FOLLOWERS
Chronic Lymphocytic Leukaemia (CLL) Ireland is a patient led voluntary group and is the only charity focused on CLL in Ireland. The aims and objectives of CLL Ireland includes to support CLL patients, carers and their families and advocate with them and on their behalf, to raise awareness of CLL amongst the public and the political body, and to encourage ongoing research into CLL.
CLL Ireland Blog
1y ago
Letter to Minister Stephen Donnelly 5th January 2022
Read here
OPEN LETTER TO MINISTER DONNELLY
Following a meeting with David Cullinane today – he posted the following on Twitter.
The post Advocating for Protection appeared first on CLL Ireland ..read more
CLL Ireland Blog
1y ago
SAVE THE DATE : Highlights from ASH – CLL
Hosts: @LeukaemiaCareUK & @CLLAdvocates
Speaker: Dr Piers Patten
Date: Feb 10th 03.30pm
TOPIC: Latest updates on CLL and what this means for you
Chronic Lymphocytic Leukaemia Advocates Network and Leukaemia Care are delighted to announce our collaborative webinar for patients, family members, carers and advocates.
This webinar is aimed at patients and advocates to provide an overview of latest developments in the treatment of CLL that were presented at The American Society of Haematology (ASH) Conference in Georgia, US, December 2 ..read more
CLL Ireland Blog
1y ago
Jan Rynne CLLI speaking with Declan Meehan East Coast Radio 21/01/22
http://clli.ie/wp-content/uploads/2022/01/VIDEO-2022-01-22-10-08-54.mp3 ..read more
CLL Ireland Blog
1y ago
Giving Care to the Caregivers
A recent webinar presentation from the CLLSociety
PLEASE TAKE PART IN THE SURVEY BELOW and HELP MAKE A DIFFERENCE
Do you have a leukemia diagnosis? Do you want to contribute to policy-changing work?
The Global Leukemia Patient Experience Survey is now open! Acute Leukemia Advocates Network CML Advocates Network CLL Advocates Network Leukaemia Care
Take part here PATIENT EXPERIENCE SURVEY
Read more about it here https://acuteleuk.org/project/patient-experience-survey/
The questionnaire is about your diagnosis, care and treatmen ..read more
CLL Ireland Blog
1y ago
Click here to add your own text
Living with CLL
What is Leukaemia?
What is CLL?
Symptoms & Diagnosis
Stories from the CLL Community
Healthcare Teams
Complications
Living Well
Treatment
Prognostic Markers
iwCLL Guidelines
Questions for your Doctor
Staging CLL
Managing Treatment
Chemotherapy
Biological Therapies
Clinical Trials
Supportive & other therapies
Stem Cell Transplants
Support
During Cancer Treatment
Caregivers
Telling children & teenagers
Legal support & advice
Benefits & Allowances
Financial support & advice
Community & Research
Community grou ..read more
CLL Ireland Blog
1y ago
Letter to Minister Stephen Donnelly 5th January 2022
Read here
OPEN LETTER TO MINISTER DONNELLY
Following a meeting with David Cullinane today – he posted the following on Twitter.
The post Advocating for Protection appeared first on CLL Ireland ..read more
CLL Ireland Blog
1y ago
Irish Cancer Society says cancer patients must be afforded the best possible protection against Covid-19
CLIP • 8 MINS • 24 SEP 21 • MORNING IRELAND
The Irish Cancer Society says it understands people who are immunocompromised will be offered a third dose vaccine ‘in the coming weeks’. However, the charity says it believes more details are needed to identify who exactly will be eligible for the third dose.
Listen Here
https://www.rte.ie/radio/radio1/clips/22008530/
The post Morning Ireland Interview Jan Rynne CLLI and Dr Rob O’Connor ICS appeared first on CLL Ireland ..read more
CLL Ireland Blog
1y ago
Uncovering the Value of Real-World Data for Blood Cancer
Organised by Janssen, in partnership with an alliance of blood cancer charities – the Irish Cancer Society, BCNI, CLL Ireland and Multiple Myeloma Ireland – the Uncovering the Value of Real-World Data for Blood Cancer roundtable brought together thought leaders on data, oncology and haematology, patient representatives and decision-makers to foster new ideas and build partnerships on the availability, access to and use of cancer data in Ireland.
Blood cancer care is evolving rapidly due to improved understanding of the disease and t ..read more
CLL Ireland Blog
1y ago
Living with CLL
What is Leukaemia?
What is CLL?
Symptoms & Diagnosis
Stories from the CLL Community
Healthcare Teams
Complications
Living Well
Treatment
Prognostic Markers
iwCLL Guidelines
Questions for your Doctor
Staging CLL
Managing Treatment
Chemotherapy
Biological Therapies
Clinical Trials
Supportive & other therapies
Stem Cell Transplants
Support
During Cancer Treatment
Caregivers
Telling children & teenagers
Legal support & advice
Benefits & Allowances
Financial support & advice
Community & Research
Community groups
International groups
CLL Statis ..read more
CLL Ireland Blog
1y ago
Living with CLL
What is Leukaemia?
What is CLL?
Symptoms & Diagnosis
Stories from the CLL Community
Healthcare Teams
Complications
Living Well
Treatment
Prognostic Markers
iwCLL Guidelines
Questions for your Doctor
Staging CLL
Managing Treatment
Chemotherapy
Biological Therapies
Clinical Trials
Supportive & other therapies
Stem Cell Transplants
Support
During Cancer Treatment
Caregivers
Telling children & teenagers
Legal support & advice
Benefits & Allowances
Financial support & advice
Community & Research
Community groups
International groups
CLL Statis ..read more