Your chance to win BIG prizes is here!
Dystonia UK
by
2w ago
? ?Roll up, roll up do we have a treat for you!  ?️?  ? Exciting news! ? Your chance to win some fab prizes is here! We’ve got something for everyone with prizes including: ? 2 bottles of Cabrini Wine and a Tote bag ? Luxury Fortnum and Mason Hamper ? Classic Car Driving Experience ? Comedy Night for Two ?️ Overnight Coastal Stay for Two ☕ Luxury Afternoon Tea for Two ? A Dystonia UK picnic set full of fab merch ? Exclusive signed rugby ball Tickets cost £5 and the money raised will go towards projects supporting people living with dystonia. Head to the Givergy website, cho ..read more
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Dystonia UK Awards 2024 nominations now open!
Dystonia UK
by
1M ago
Do you know a Dystonia Superstar, Masked Hero or Young Champion? The 'Dystonia UK Awards' are back! This year, we're reintroducing the classic category 'Dystonia Superstar' but opening it up for a winner from each nation: England, Scotland, Wales, and Northern Ireland! We're also thrilled to announce the addition of a special solo national category for our young champions. And let's not overlook the cherished 'Masked Hero' category, a fan favourite! ?Dystonia Superstar Award? The ‘Dystonia Superstar Award’ is your chance to recognise a superstar in the dystonia community – whether they have dy ..read more
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Dystonia Medication standards
Dystonia UK
by
2M ago
We want to set standards to improve the care children and young people get - and we need your help to make sure we get it right! Dystonia in children can present with pain, affect normal function, and interfere with participation. Ultimately, we know from listening to you, the huge impact dystonia can have on quality of life for your children. Managing the dystonia can be challenging for clinicians and families alike. While there are several medications to help manage symptoms, at the moment there is no strong evidence base to guide their use. Medication choices are currently guided by expert ..read more
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Dystonia UK and the BBC
Dystonia UK
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5M ago
Our Director of Fundraising and Communications, Dayna Ferdinandi, joined Ben Boulos from BBC Breakfast, to film a piece raising widespread awareness about dystonia. Yesterday our Director of Fundraising and Communications, Dayna Ferdinandi, joined Ben Boulos from BBC Breakfast, to film a piece raising widespread awareness about dystonia and the challenges faced by those living with the condition, shedding light on the impact it has on individuals and their families. The opportunity came about as Ben had mistakenly thought in an interview with specialist guest (Teresa) that she was shaking her ..read more
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A clinical tool for real-time visualization and analysis of neck muscles for cervical dystonia
Dystonia UK
by
10M ago
Dystonia UK was pleased to award seed funding in 2016 to Professor Ian Loram and his team at Manchester Metropolitan University for their research project. In this article, Prof Ian Loram explains the learnings and next steps for turning the proof of concept into a robust clinical tool. Dystonia is a neurological movement disorder caused by incorrect messages from the brain to the muscles. Symptoms for cervical dystonia (CD) include uncontrollable muscle contractions in the neck which cause awkward postures, discomfort, and pain. Following diagnosis, Botulinum NeuroToxin (BoNT) treatment is th ..read more
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Dystonia UK Awards 2023 voting open!
Dystonia UK
by
10M ago
A big thank you to everyone who took the time to submit a nomination in the Dystonia UK Awards 2023. Reading through all the reasons you gave for shining a light on your heroes and superstars was really heart-warming. Our judging panels have been busy behind the scenes with the incredibly difficult job of narrowing down your nominations to create a shortlist and we're very pleased to announce that voting is now open in all 3 categories!   ? Masked Hero ? ? Dystonia Superstar ?   Popular Podcast  Voting closes Monday 7th August 2023 at ..read more
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#BackThe1in6 petition hand in at UK parliament
Dystonia UK
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11M ago
Over 19,000 people affected by neurological conditions and 100 organisations back Neuro Taskforce petition. Dystonia UK is one of 100+ organisations and over 19,000 people who #BackThe1in6. Joining other neurological charities including Parkinson's UK, The MS Trust and The Brain & Spine Foundation, we supported The Neurological Alliance at the UK parliament in Westminster for the #BackThe1in6 petition hand in event on the 5th June 2023. The event was held in recognition of the 19,000 people across the UK who signed the petition calling for more to be done to improve ser ..read more
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Lancaster University research study
Dystonia UK
by
11M ago
Dystonia UK supports the work of researchers and students to help further understand dystonia and its impact on individuals. We work to support research projects in a number of different areas including research into the causes, treatments and management of dystonia. Dystonia UK has a history of working with students on the Clinical Psychology doctoral course at Lancaster University to support their research projects focused on the psychological effects of dystonia. A current study is looking to understand more looking at how coping strategies are used and experienced by people with neck (cerv ..read more
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Dystonia UK's 40th party
Dystonia UK
by
1y ago
Dystonia UK turns 40! Join us for pizza & a pint or a prosecco as we celebrate the 40th anniversary of Dystonia UK with our fantastic community! In one of a few celebrations up and down the country we'll be partying with live entertainment and fun! When: Friday 30th June, 6:30 - 10pm Where: 'The Main Stage - At night' @ INNSiDE, Newcastle Tickets: £25 per person. 10% discount for members. Tickets must be bought in advance. Published: 14th June 2023 ..read more
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Dystonia UK Awards 2023 nominations now open!
Dystonia UK
by
1y ago
Nominate your ‘Masked Hero’ and ‘Dystonia Superstar’! Following the amazing success of the inaugural ‘Dystonia UK Awards’ last year we are thrilled to celebrate members of our dystonia community once again in 2023! Nominate your ‘Masked Hero’ and ‘Dystonia Superstar’ before 23rd June 2023. We will then make a shortlist available for voting, which will include your chance to vote for your most ‘Popular Podcast’ of the ‘Dystonia Matters Podcast’ season 2. The winners of each category will be celebrated in ‘Dystonia Awareness Month’ this September. ? Masked Hero Award ? The 'Masked Hero Award' is ..read more
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