It is with profound sorrow that we announce the passing of our beloved CEO, Tess (Teresa) Harris, who peacefully passed away on March 1, 2024, at the age of 68. Tess began her journey as a tireless advocate for Polycystic Kidney Disease (PKD) in 2004 when she joined the PKD Charity as a trustee. Always one to roll up her sleeves, Tess's early days in the charity were spent diligently stuffing envelopes and licking stamps to circulate newsletters and other communications aimed at raising awareness and improving education of PKD. From the outset, Tess exhibited visionary management and an unwav ..read more

For World Kidney Day this year, alongside sharing crucial kidney facts and statistics, we're celebrating the unsung heroes who've been with us through thick and thin.  Whether your kidney Hero is a friend, family member, healthcare professional, a life-saving donor, or even a beloved pet, we'd love to hear your stories of the people who've made a real difference in your kidney journey. After all, heroes come in all shapes and sizes, as PKD patient's Asif and Martin testify.   Asif's Story "Living with Polycystic Kidney Disease has presented me with numerous challenges over the ..read more

Studies in animal models of autosomal dominant polycystic kidney disease (ADPKD) showed in 2019 that a ketogenic diet may have positive effects on cystic kidneys. Ketogenic diets are low in carbohydrate and high in fat. In animals fed this diet, cyst growth slowed. Also, their kidney function didn’t decline as fast as usual.   These promising findings attracted a lot of attention among kidney specialists, scientists and patients.1 People rightly wanted to know more, and began to question: Should patients with ADPKD eat a ketogenic diet? And what would that involve?   To answer this ..read more

Professor Wilson is an honorary Professor of Medicine at University College London leading research into polycystic kidney diseases and renal development. She is also a PKD Charity trustee ..read more

Paediatric nephrologists at Evelina London Children's Hospital are in the process of creating an animated information video to help children (Aged approx. 8-10yrs) and their families learn more about Autosomal Recessive Polycystic Kidney Disease (ARPKD ..read more

In the 12 years since 48-year-old Katie was diagnosed with PKD, her kidneys have grown so large she is frequently asked "When's it due?" or "Boy or girl?" by people who innocently assume that she’s pregnant. Which is why the mum of 2 from Swansea has taken the brave step to share the naked truth about this distressing and lesser-known symptom of the disease.   ..read more

Keto diets are a hot topic in the PKD community. What are these diets and how much evidence is there that they work ..read more

Artificial kidneys may sound like something from a science fiction movie, but these ground-breaking new treatments are currently being designed and tested across the globe ..read more

PKD Charity would like to announce a new starter, Sophia Rapley! Sophia Rapley will be covering Madeleine Martin’s maternity cover as our Community and Events Fundraising Manager ..read more

How well are vaccines working for Kidney patients? What about antibody testing? How do you continue to stay safe from Covid-19? Hear what the experts had to say at the recent Covid-19 Question Time ..read more