Fasciculation. noun. fas· cic· u· la· tion fə-ˌsik-yə-ˈlā-shən, fa- : muscular twitching involving the simultaneous contraction of contiguous groups of muscle fibers. The most common question and worry that I am asked more than anything else over on my TikTok page relates to muscle twitches. I receive a handful of messages or comments each day from people who are likely to have consulted ‘Dr Google’ with these symptoms. Having done this myself, pre-diagnosis, it shows hundreds of thousands of results, and from my own personal experience, leads you into a rabbit warren of worry and numerous med ..read more

Well, we didn't do very well in keeping the blogs coming, to realise that it's now been six months since our last update! However, during that time, a lot of things have been happening and this update will serve as a summary of all that happened over the last six months. So grab yourself a drink of your choice, pop your feet up and get comfortable. We might be here awhile… Firstly, July 2023, marks 3 years since little man came home. It feels like he has always been here and to reflect on the last three years, he simply isn't the same little boy that came home in the summer of 2020. Recalling ..read more

It has been quite some time since we last visited the vlog. After some much-needed time away, it felt right to return to social media and to continue sharing what we have done, albeit with a few differences. You may have seen details of the video we shared back in March 2022 following my diagnosis of motor neurone disease. We took some time away to try to come to terms with the diagnosis and to live life to the fullest, ticking off lots of bucket list dreams in the process! During that time we have been championing the work of the Motor Neurone Disease Association (MNDA), who have provided so ..read more

It's hard to believe it's been six months since my diagnosis of motor neurone disease. The last six months have been extremely challenging, emotional, and tougher than I could ever have imagined. However it has taught me a lot about life, about family, about friendships and most of all who is there for you and sadly, who isn't. Never in my wildest fears did I ever think I would be facing a terminal illness, some days it freezes me in fear but other days it has given me a fire in my belly that has pushed me to do new things, old things and to live every single day to the full. The last six mont ..read more

Today marks Global MND Awareness Day 2022, a day prior to 5th March 2022 I had never heard of, nor had any connection to. Now four months post diagnosis I have firsthand seen and been part of the amazing work the MND Association do each and every day. I have been shown compassion, sensitivity and a team of lovely supporters whom I speak to often, who guide me through the most painful of times as I navigate my way forward and learn to accept how life will be. I was asked by the MNDA if I wanted to be part of an online exhibition and to be photographed by Richard Cannon who has captured many fam ..read more

A month post diagnosis and with a few more appointments over the last few weeks, it’s been a strange time to say the least. I don’t think its really sunk in as to the reality of the situation but I know that whenever something gets thrown my way, i’ll turn it into a positive. The last four weeks have seen me put my efforts into fundraising via my Go Fund Me page which has surpassed £6,000 - I’m well on my way to the £50,000 target! I’ve tried to maintain a sense of normality by doing all the things I would normally do and that has helped in keeping me going. There have been wobbles along the w ..read more

You Make Freshly Squeezed Lemonade! Sadly you may have seen that I have recently been diagnosed with Motor Neurone Disease, a huge blow to me, my family and friends. Unimaginable at best. However, the only thing that I know is to search out the positives and to live and enjoy every moment. So here it is, Sam's Bucket List. As of 11/3/2022 - 23 complete, 77 to go! 100 moments, experiences and memories that I want to take with me before I go. If you can help in anyway in making them a reality - please do let me know! Make Fresh Lemonade, of course! Fall in love - Done! I met my beautiful hu ..read more

We’ve been meaning to write and share this blog for a long while now, but you know, life has been really busy. Before you know it the weeks and days roll on by and we see ourselves approaching the end of 2021. Before we write one of our final blogs of 2021, we wanted to blog about the online community of adopters as there is a huge online presence if you didn’t know it already! The internet is where most prospective adopters find themselves seeking information about adoption. This is where we found ourselves and let’s face it - the internet is a minefield at the best of times. Our very first s ..read more

We originally planned for this blog to appear back in the Summer - but you know, things got a little busy as the world finally started to return to ‘normal’. So by way of an Autumnal update from our recent vlog - read on dear reader to see what’s been happening with us as we head to the end of a very busy year! The end of Summer saw Little Man saying farewell to nursery and forest school and the friends he had made during his time there. For us as his parents, we could see how the last year had changed him, watching him develop and grow and to see him really settle into the routine of it all ..read more

The words our Son said to us after we asked him to not do something and what may happen if the object broke. No raised voices. Nothing said in anger but he believed that if something broke, he would not live at home anymore. For a year he has referred to it as home and now he saw it as our house without him. We’re pretty sure there was no intention behind the words spoken, as young children of similar ages are not aware of the meaning behind the language used. However this was heartbreaking for us to hear. We recently shared this moment on our Instagram and Facebook as it’s important that we s ..read more