My Parkinson's Life Blog
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Hello, My name is Darren, and eight months after my 40th birthday, March 2019, I was sent a three-line letter from the NHS. It was news, that my DaTscan points to an underlying young-onset Parkinsonian disorder. So, after talking with my better half, I decided to write this blog about my journey with Parkinson's, in the hope this blog accomplishes a few things.
My Parkinson's Life Blog
3M ago
Levodopa is the precursor to dopamine. Most of the time doctors, constulants et al, commonly prescribe levodopa, as a dopamine replacement agent for the treatment of Parkinson disease. It is supposedly most effectively used to control bradykinetic (slowness of movement) symptoms. Let me tell you that levopoda according to Google, became commercially available in 1975, so that’s now 48 years old. Now what’s the problem with that you ask? Well, I will tell you! It’s the most comman and most potent medician for us parkie’s, but by “potent” they mean it doesn’t actually work all that well, th ..read more
My Parkinson's Life Blog
3M ago
The doctor who wrote the article, starts with a headline on the Parkinson’s News Today website with, and I quote “Tiny fragments are ‘highly toxic’ and inflammatory”. Well that’s a very moody start, if I do say so myself! I have written two previous posts on this (both posts linked below) and the Alpha-synuclein topic keeps rearing it’s head. If your interested in the full article it’s here: Parkinson’s News Today – Alpha-synuclein and the old posts are; MPL – Second post (update ..read more
My Parkinson's Life Blog
7M ago
Here are two poems, from very different angles about Parkinson’s. One light, one dark and both were taken from the Parkinson’s UK website and they kick off this section pretty nicely I think. A poem, by Molly Gray. Parkinson’s doesn’t define a person Parkinson’s is part of that person We live with it, we love it, we dance with it Life goes on and life is beautiful This beautiful dancing Parkinson’s life. A poem, by Alison Blevins. Fading, vanishing, nipped away Like birds pecking apples I was here yesterday At least I thought I was Now I’m not so sure Now I am less When I thought I was more.
T ..read more
My Parkinson's Life Blog
7M ago
Parkinson’s is so much more than you see Once it gets a grip you can’t get free It can change who you are Who you wanted to be The future is unclear As we people disappear.
The post A poem, by unknown. appeared first on My Parkinson's Life ..read more
My Parkinson's Life Blog
7M ago
Above is chart/list of the numerous (and varied I would say) motor and non-motor symptoms we have on offer as PD sufferers. But as I always say, not everyone with the disease will get all of them, or even if we do, the severity will different for everyone. So you can’t say Parkinson’s isn’t unique, can you ..read more
My Parkinson's Life Blog
7M ago
Saint Jude Thaddeus is the patron saint of desperate cases and lost causes and sometimes I’m afraid to say, that is how I feel about Parkinson’s. Some days when I’m a little blue, it becomes apparent all over again that it’s a slow and steady degrative disease without end. So when I’m thinking on it (too much) and need a quiet word with myself, I look to Saint Jude and run through my head something of a bastardised prayer, I got engraved on the back and it gives pause and a new thought. So I thought I’d share it with you and it goes like this; PD doesn’t define me, but let me find my strength ..read more
My Parkinson's Life Blog
7M ago
I have issues with motivation, or drive, or should I say the sometimes the severe lack of. Being devoid of motivation is one of my major non-motor symptoms. I would like to be honest though. I’ve never really been at the top of food chain when it comes to being driven, ambitious and ruthless, but now that my brain struggles to find that scrap of dopamine it so desperately craves, what I did have, seems to have gone along on it’s own merry way and it would belike trying to catch wisps of smoke. Which has caused some problems, because I’m sure it’s been taken, or viewed as (according to the Oxfo ..read more
My Parkinson's Life Blog
7M ago
Another, plus another, yearly update. Symptoms started early January 2018 and now forty eight months (yes you heard it right), forty eight months later, were now in January 2022, and this is where I’m at…. I’ve included the link to my, thirty six month update as well, because a lot has changed. 36 months later It’s just a list, but it’s my list of symptoms and don’t forget, we’re all different us parky sufferers! So, in no particular order, here we go I may update that list, because I’m bound to have forgotten something!? What it does highlight, is that things are slowly and inevitably getting ..read more
My Parkinson's Life Blog
7M ago
Here’s a list of drugs related to me, with some links below to other more science based pages, from Parkinson’s UK, MJF Foundation. All very light reading, promise (maybe)! Levodopa Levodopa is the most common first-line treatment prescribed to Parkinson’s disease patients and is generally prescribed for all stages of the disease. Levodopa is used to manage Parkinson’s symptoms such as tremors, stiffness, and slowness of movement. It is absorbed in the intestine and is transported to the brain, where it is converted to dopamine. There are several adverse effects associated with levodopa t ..read more
My Parkinson's Life Blog
1y ago
Saint Jude Thaddeus is the patron saint of desperate cases and lost causes and sometimes I’m afraid to say, that is how I feel Parkinson’s. Some days when I’m a little blue, it becomes apparent all over again that it’s a slow and steady degrative disease without end.
So when I’m thinking on it (too much) and need a quiet word with myself, I look to Saint Jude and run through my head something of a bastardised prayer, I got engraved on the back and it gives pause and a new thought. So I thought I’d share it with you and it goes like this;
“PD doesn’t define me, but let me find my strength when ..read more