April 10, 2024 | by Khashayar Eshaghi, PennNeuroKnow and IAES Collaboration A message from IAES Blog Staff: The staff at IAES is proud to present to all of you another wonderful article/blog from the amazing team at PennNeuroKnow. Since 2019 IAES has been extremely lucky to be in partnership with the PennNeuroKnow(PNK) team to help us all better understand complex medical issues related to AE and neurology in general. The talented PNK team continues to keep us up-to-date and help clarify the complexities we face each day along our AE journey, and we are eternally grateful! You can find out m ..read more

March 27, 2024 | by Christopher (Topher) McLaughlin Introduction from the IAES Blog Team: It is an honor to present a heartfelt poem IAES member Topher McLaughlin wrote during Autoimmune Encephalitis Awareness month 2024. It speaks or, maybe, screams to the resilience and positive attitude this mighty warrior has in the face of an unwelcome illness that came knocking on his door! — Moving Forward Day 6 of AE Month: 76 pages of hallucinations later. 9 months later. 4 flar- ups later. I was an athlete. I was confident. I was funny, wild, life of the party. I was maimed. Shattered. Shredded ..read more

March 13, 2024 | by Kara McGaughey, PennNeuroKnow and IAES Collaboration A message from IAES Blog Staff: The staff at IAES is proud to present to all of you another wonderful article/blog from the amazing team at PennNeuroKnow. Since 2019 IAES has been extremely lucky to be in partnership with the PennNeuroKnow(PNK) team to help us all better understand complex medical issues related to AE and neurology in general. The talented PNK team continues to keep us up-to-date and help clarify the complexities we face each day along our AE journey, and we are eternally grateful! You can find out ..read more

March 6, 2024 | by Tabitha Orth, IAES President and Founder Introduction March 2nd was Dr. Seuss’ 120th birthday. In celebration, we wanted to share these pieces by Tabitha Andrews Orth, IAES Founder, and President. Using Dr. Seuss’s characters, she found a unique way to help people understand what it was like to experience Autoimmune Encephalitis. The Cat in the Hat on Autoimmune Encephalitis: My Balance is off, it’s hard to walk. My speech is slurred, I can not talk. Maybe I can’t find a word… My Memory loss is quite absurd I think a thought and then…it’s gone. It’s hard to handle when thi ..read more

February 28, 2024 | by Tabitha Orth, IAES President and Founder Thank you UCB for sponsoring all 2024 AE Awareness Month blogs. —- Some of you may be aware that IAES is completely powered by a volunteer staff. Volunteers are either caregivers or patients who have walked this walk and come out on the other side. After experiencing the trauma, they harbored a strong desire to create change so no one else would have to go through the experience without the help and support they so desperately needed. Some volunteer “AE Warriors” (a term I came up with in 2014 to denote the difference between a ..read more

February 14, 2024 | by Joseph Stucynski, PennNeuroKnow and IAES Collaboration A message from IAES Blog Staff: The staff at IAES is proud to present to all of you another wonderful article/blog from the amazing team at PennNeuroKnow. Since 2019 IAES has been extremely lucky to be in partnership with the PennNeuroKnow(PNK) team to help us all better understand complex medical issues related to AE and neurology in general. The talented PNK team continues to keep us up-to-date and help clarify the complexities we face each day along our AE journey, and we are eternally grateful! You can fin ..read more

January 31, 2024 | by Laura Zendejas Introduction from the IAES Blog Team: A diagnosis of Autoimmune Encephalitis can be devastating and overwhelming. It is difficult for patients, family members, caregivers, and medical teams. Watching a loved one suffer can be excrutiating. Being a parent of a suffering child is a level of mental pain that no one ever wishes to encounter. We share with you a beautiful poem written by Laura Zendejas that speaks to the heartbreak a loving Mother feels for her sick child. —- NMDAR encephalitis You took away my child You took away my peace You took away my fee ..read more

January 24, 2023 | by Ryan Rahman, PennNeuroKnow and IAES Collaboration A message from IAES Blog Staff: The staff at IAES is proud to present to all of you another wonderful article/blog from the amazing team at PennNeuroKnow. Since 2019 IAES has been extremely lucky to be in partnership with the PennNeuroKnow(PNK) team to help us all better understand complex medical issues related to AE and neurology in general. The talented PNK team continues to keep us up-to-date and help clarify the complexities we face each day along our AE journey, and we are eternally grateful! You can find out ..read more

January 10, 2024 | By Tabitha Orth, IAES Co-Founder and President Our son, Matthew is watching Rudolph the Red Nose Reindeer tonight. It triggered the memory of a wise, insightful observation he had given me several years ago when I was recovering from a brain injury caused by autoimmune encephalitis. My executive functions had taken a long vacay. They were MIA.  I rarely did something right. My memory took the hardest hit, especially my short-term memory. I needed a lot of help. That said, I was still “ME”. I was just – making a lot of mistakes. Matthew put his arm around me and tucked ..read more

December 27, 2023 | by Jeri Gore, Editor-in-Chief of the IAES Blog Each year since I have had the honor of having this job as Editor-in-Chief for IAES we have created a calendar. This calendar can be used and shared by all administrators at IAES to note important information that may be coming due. We use it to note events such as seminar schedules, publication dates, anniversary dates of import, dates to have jobs and other projects completed, and anything any of us need to remember and/or have all of us keep in mind regarding what is coming up.  Creating a general calendar is somethin ..read more