https://www.meresearch.org.uk/european-me-alliance-report-a-shocking-indictment-of-european-research-and-healthcare-policies-for-myalgic-encephalomyelitis/ The European ME Alliance (EMEA) has produced a lengthy and retailed report based on the online responses of over 11,000 individuals from across Europe (and beyond – in total 44 countries had respondees) and “stands as a first attempt by patient organisations to bring forward information that can be applied by governments in Europe, and by EU institutions, in order for them to take responsibility for addressing this high burden, under prior ..read more

http://bible.christiansunite.com/Morning_and_Evening/chme0412.shtml “The king’s garden.” Nehemiah 3:15 Mention of the king’s garden by Nehemiah brings to mind the paradise which the King of kings prepared for Adam. Sin has utterly ruined that fair abode of all delights, and driven forth the children of men to till the ground, which yields thorns and briers unto them. My soul, remember the fall, for it was thy fall. Weep much because the Lord of love was so shamefully ill-treated by the head of the human race, of which thou art a member, as undeserving as any. Behold how dragons and demons dwel ..read more

https://www.meresearch.org.uk/shortcomings-in-the-management-of-children-and-young-people-with-suspected-severe-me-cfs/ From the ME Research UK website – Severe ME/CFS is an under-researched area, and even more so in relation to children and young people. Yet it has a profound impact on quality of life, and as described in a 2021 article  by Dr Faith Newton – “Very seriously affected children are often too sick for doctor’s office visits, let alone school attendance… The severely ill receive little help from their schools, and are socially isolated.” In a recently published study, Dr Ale ..read more

https://meassociation.org.uk/2024/03/failings-in-the-care-of-patients-with-very-severe-me-by-dr-nigel-speight/ The ME Global Chronicle In the UK over recent years there have been a succession of cases of very severe ME who have been mismanaged by the medical profession, in the worst cases with fatal consequences. There is a repeated pattern of failings in these cases which I will attempt to analyse, and then use individual case reports to illustrate these patterns. Background problems For many doctors, either family doctors, paediatricians or physicians, being confronted with a case of very s ..read more

The Joy of Easter O the joy of that the first Easter morning, When Jesus rose victorious from the grave. O the gladness of the new day dawning, For those He came to save. This life with all its joys and golden hours, Passes as swiftly as a tale well told. So soon forgotten, all man’s greatest powers: Death takes both young and old. Long separated by our sin from One Whose holiness we could not stand before. We now draw near, sin’s barrier is gone; Jesus, for us, the Door. For when on Calvary’s cross the Saviour died, Bearing His people’s sin and punishment, Pardon was purchased by the Crucifie ..read more

https://www.theguardian.com/commentisfree/2024/mar/12/chronic-fatigue-syndrome-me-treatments-social-services George Monbiot From harmful ‘therapies’ to social services referrals, the notion that this illness is psychosomatic is having devastating effects It’s the greatest medical scandal of the 21st century. For decades, patients with ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) have been told they can make themselves better by changing their attitudes. This devastating condition, which afflicts about 250,000 people in the UK, was psychologised by many doctors and scientists, a ..read more

From the ME Association website – https://meassociation.org.uk/2024/03/magenta-trial-get-is-not-an-effective-treatment-for-me-cfs/ ME Association Comment The MAGENTA trial (Managed Activity Graded Exercise in Teenagers and Pre-Adolescents) investigated the safety and effectiveness of graded exercise therapy (GET) in children and teenagers with mild or moderate ME/CFS. The trial started in 2016 with a feasibility study, and compared GET with an activity management (AM) protocol. It was funded by the National Institute for Health Research (NIHR) as part of a research fellowship award for paedia ..read more

C H Spurgeon’s Morning Devotional for 3 March http://bible.christiansunite.com/Morning_and_Evening/chme0303.shtml “I have chosen thee in the furnace of affliction.” Isaiah 48:10 Comfort thyself, tried believer, with this thought: God saith, “I have chosen thee in the furnace of affliction.” Does not the word come like a soft shower, assuaging the fury of the flame? Yea, is it not an asbestos armour, against which the heat hath no power? Let affliction come-God has chosen me. Poverty, thou mayst stride in at my door, but God is in the house already, and He has chosen me. Sickness, thou mayst in ..read more

From the ME Association website – https://meassociation.org.uk/2024/02/nih-study-of-me-cfs-points-to-immune-dysfunction-and-brain-abnormalities/ For decades, [ME/CFS] was considered a women’s condition, and patients were told it was in their heads. Now research leaves no doubt: ME/CFS is a disease with clear biological hallmarks. Extracts A new, detailed study from the National Institutes of Health takes the most rigorous look yet inside the bodies of patients with the condition. The 70-page manuscript, published in Nature Communications on Wednesday, took almost eight years and over $8 milli ..read more

From the ME Research UK website – https://www.meresearch.org.uk/disbelief-attitudes-culture-and-me-cfs/ Two separate broadcasters, Channel 4 and the BBC, covered the plight of those affected by ME/CFS on 19th and 20th February 2024 respectively with common themes arising – lack of care provision, disbelief, negative attitudes to ME/CFS, and cultural resistance to acceptance of ME/CFS within the ‘caring professions’. Channel 4 news featured a 12 min segment ‘M.E.: Lives devastated – and sufferers are told it’s made up’ which inteviewed Clare Norton (mother of late Merryn Crofts) and Sean O’Nei ..read more