Scleroderma Research Foundation News
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The Scleroderma Research Foundation (SRF) was founded in 1987 by Sharon Monsky, an entrepreneur, businesswoman, and person with scleroderma. Guided by Sharon's passion for a cure, SRF has become the largest nonprofit investor in scleroderma research in the United States. Their blog features articles on the Rare Disease Diversity Coalition, donations, foundation-related news, annual..
Scleroderma Research Foundation News
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The post Samantha’s Birthday Fundraiser for Scleroderma Research in Memory of Her Father appeared first on Scleroderma Research Foundation ..read more
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The post It’s Not Too Late to Join the 2024 Research Challenge – Help Us Reach Our Goal! appeared first on Scleroderma Research Foundation ..read more
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The post SRF eNews: July 2024 Edition appeared first on Scleroderma Research Foundation ..read more
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The post SRF eNews: June 2024 Edition appeared first on Scleroderma Research Foundation ..read more
Scleroderma Research Foundation
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Throughout June, we invited you to join us in the #SayScleroderma campaign by sharing your own stories and pictures on social media. The response has been incredible. Your posts, photos, and reflections have helped spread the word about what it means to live with scleroderma.
As Scleroderma Awareness Month draws to a close, it’s important to remember that this effort does not have to end here. Every story shared and every conversation started brings us one step closer to a future where everyone knows what scleroderma is and what it does. By joining us to #SayScleroderma, you help ..read more
Scleroderma Research Foundation
1M ago
“I have scleroderma, so I’m asking you to say it.” —Cynthia, dx 2021
Why #SayScleroderma? Many people are unaware of what scleroderma is and the impact it has on those affected. This lack of awareness can lead to delays in treatment and diagnosis, and hinder progress in finding a cure.
In this video, Cynthia opens up about her difficult experiences seeking care for scleroderma and highlights the crucial need for awareness and education about this disease.
Thank you so much to Cynthia and her brother for making this project to spread the word about scleroderma.
Watch the Video on our You ..read more