Aiden has always been a very bright and sweet little boy. His parents noticed his speech delay was more and more evident with time. Today, at nearly three years of […] The post Meet the Kids – Aiden! appeared first on Variety KC the Children's Charity ..read more

Arthur’s mom Bess shared this regarding his disability, “Art has a rare (so far four kiddos in the world have this) genetic mutation. He is our medical unicorn-complicated, uncharted, surprising […] The post Meet the Kids – Arthur! appeared first on Variety KC the Children's Charity ..read more

David was diagnosed with autism and focal epilepsy. He turned two without being able to use any words and having no understanding of words that were spoken to him. However, in the last year he has made great strides in the understanding of language. His expressive language has come a long way too, but he […] The post Meet the Kids – David! appeared first on Variety KC the Children's Charity ..read more

Recently we received a letter from Seynab Mohamed, the mother of Nasiib Mohamed an adorable toddler born with a genetic disorder called WWOX.  It is a very rare disease and there is no medical intervention or cure for WWOX related syndromes. Medications are given to relieve the symptoms of the disease. These symptoms are seizures […] The post Meet the Kids – Nasib appeared first on Variety KC the Children's Charity ..read more

Chase had a rough start in life with years of multiple hospitalizations, nationwide doctor visits and an unknown diagnosis. Finally, we received answers from a genetic diagnosis that put the pieces together. He was diagnosed with Cardiofaciocutaneous syndrome is a disorder that affects many parts of the body, particularly the heart (cardio-), facial features (facio-), […] The post Meet the Kids – Chase appeared first on Variety KC the Children's Charity ..read more

Kaden for President! That’s right, he aims high. And why not, he has already accomplished so much in his short life. Kaden’s diagnosis is Spinal Muscular Atrophy type 1. This presents some communication barriers, but you would be amazed by how well he makes himself understood by simply blinking “yes” or “no.”  The problem is, it’s […] The post Meet the Kids – Kaden (for President) appeared first on Variety KC the Children's Charity ..read more

We recently received this note from some Variety KC parents, “Brigham is 4-years-old and all boy. He has strengths and struggles just like most children. He could ride a bike and learned to swim at age two. He has impressive problem-solving skills and likes to get into mischief. However, Brigham has his struggles too. He was […] The post Meet the Kids – Brigham Gets a Voice! appeared first on Variety KC the Children's Charity ..read more

  Franklin’s mom shares the first three years of her sweet son’s life: “My kind affectionate son had an interesting first two years of life. Just a few months old, he was diagnosed with Cutaneous Mastocytosis a rare skin disease with clusters of allergy cells on the surface of his skin. He has approximately 20 […] The post Meet the Kids – Franklin! appeared first on Variety KC the Children's Charity ..read more

Samuel was diagnosed as Level III on the Autism Spectrum last fall. He participates in multiple therapies and works so hard. His hard work is especially noticeable in Speech Therapy where he is beginning to verbalize a bit when using an iPad and apps. Like so many kids, when Samuel can’t make his needs and […] The post Meet the Kids – Samuel! appeared first on Variety KC the Children's Charity ..read more

  Graham’s mother shares his story: “Around 18 months at Graham’s checkup we mentioned that he didn’t have too many words. He grunted a lot. We applied for First Steps to get some speech assistance; however, he was denied. He was barely passed. We tried again 6 months later, and he got into the program. […] The post Meet the Kids – Graham! appeared first on Variety KC the Children's Charity ..read more