Guest Post:  Patrick Bailey is a professional writer mainly in the fields of mental health, addiction, and living in recovery. He attempts to stay on top of the latest news in the addiction and the mental health world and enjoys writing about these topics to break the stigma associated with them. Compounded Health Problems, Alcohol and Lupus Never assume you have lupus based on the signs and symptoms you may display. It takes your doctor’s expertise to say whether or not you have this chronic disease of which there are no cures. However, certain medications can help to keep your lupu ..read more

The holidays can be a stressful time for many people but especially for those living with a chronic illness like lupus.  I find the holidays to be one of the most stressful times for me personally and also a time when my lupus flares become more active. Dealing with holiday events, cooking, decorating, and planning a holiday with kids always seems to stress me out but even more so since I was diagnosed with lupus a few years ago.  Last year, I dealt with a horrible trigeminal neuralgia flare at the holidays and was weeks out from my kidney cancer surgery.  Needless to say, I did ..read more

 Lupus and Cold Weather The cold weather never used to bother me like it does these days. In the last few years, my tolerance for cold temperatures has really gone down a lot.  Living in Northwest Ohio, I have had my fair share of Blustery Winter days.  Living in an environment such as this makes it difficult to enjoy any sort of outdoor activity.   I experience significant joint pain especially in my hands as soon as the temperature begins to drop.  My joints lock up and stiffen and it can take hours for them to return to normal once I get out of the cold.  ..read more

I recently shared my Block UV unboxing video and review of their amazing sun-protective zip-top and UPF leggings.  If you didn’t get a chance to check it out, you can find it here.  As a lupus warrior, sun protection is extremely important and UPF clothing can help make that a lot easier. Today, I wanted to share my experience in trying out their sun-protective hoodie dress!   For the particular one I tried out, the style number is 2009 and the color was lavender. I will first say that the color is a beautiful lavender that is very light in color.  It is almost a past ..read more

After spending the last 6+ months on prednisone, I have become more serious about eating healthier.  The last year has been a whirlwind for me in the terms of my health. After dealing with lupus and a kidney cancer diagnosis in November of 2019, I have finally realized how extremely vital it is that I really get a hold on of the things that I am putting inside my body.  With that said, I struggle with this A LOT. As a chronic illness warrior, it is really important that I find ways to ease my meal planning and meal prepping.  I don’t always have a ton of energy to spend planning ..read more

If you have been following my blog for a while, you probably have noticed that I am a huge advocate for sun protective clothing.  One may even use the word OBSESSED to describe how much I love and advocate for sun protection clothing.  As a lupus warrior, it is extremely important for us to utilize any protection from the sun that we can.  I am honored to have had the chance to review BloqUV sun protective clothing recently. I was really excited to review this specific brand because I had not tried any of their UPF clothes yet.  When I received my package, I could not wait ..read more

If you have been following my blog for a while, you probably have noticed that I am a huge advocate for sun protective clothing.  One may even use the word OBSESSED to describe how much I love and advocate for sun protection clothing.  As a lupus warrior, it is extremely important for us to utilize any protection from the sun that we can.  I am honored to have had the chance to review BloqUV sun protective clothing recently. I was really excited to review this specific brand because I had not tried any of their UPF clothes yet.  When I received my package, I could not wait ..read more

Hey warriors! If you have been following my blog, you know how serious I take sun protection these days. You also probably know that I love doing reviews lol. I received a special package from @bloquv and I am so excited to share my unboxing video with you all! I will be reviewing these products soon and sharing my review on my blog & on my social media accounts so make sure to stay tuned Bloq UV is also offering 20% off to my followers if you use my code: LupusLyfe20 Check out their UPF products here:  www.bloquv.com   The post BloqUV Sun Protective Clothing Unbo ..read more

If you or a person you love suffers from a chronic illness like lupus or fibromyalgia, you know that there are days when getting out of bed is nearly impossible.  There are mornings when your joints may ache, your muscles may be sore, or you simply need to rest.  During the holidays, many people are thinking about the gifts they are going to buy and the gifts they would like to receive.  This year, instead of Aunt Suzie buying you another Christmas sweater because you told her it didn’t matter what she got you, maybe help her out with some guidance.  We have compiled a list ..read more

Guest Post: Jessie Ace is a podcast host, writer, public speaker, and illustrator. She’s the founder of the chronic illness podcast ‘DISabled to ENabled’ where she interviews everyone from celebrities to patient advocates and charities, founder of the empowering ENabled Warrior tribe, and her blog jessieace.com where she shares tips and advice for living your best life with chronic illness. She’s worked with the National MS Society, MS Trust, MS Society, shift.ms, and MS-UK and been featured on CNN, Huffington Post, Yahoo, and The Mighty among others. My diagnosis came as a shock. Within three ..read more