In memory of a cherished colleague, M&G Wealth Advice recently organised a heartfelt day of fundraising. This vibrant event, aptly named the Festival of Colour, brought together colleagues across all office locations, uniting them in a celebration of life and legacy. The Festival of Colour was more than just a fundraising event; it was a testament to the impact of their colleague’s life and the enduring bonds of friendship and community. Through their heartfelt efforts, M&G Wealth Advice not only honoured the memory of their colleague but also made a meaningful contribution to a cause ..read more

How art has helped me on my brain tumour journey, and will continue to do so… In June 2022 I had my 3rd craniotomy.  The surgeon managed to remove the regrowth as well as some remaining tumour from previous debulking. Once I was healed up again I was put on a different chemotherapy, Lomustine. This was over 6 months. Although I started having seizures from August 2022 and in January 2023 I had two full tonic-clonic seizures in one day my husband called the ambulance as they lasted over 5 minutes I had to be taken to hospital and was then given a much higher dose of anti-seizure medi ..read more

Vorasidenib and its potential for brain tumour treatment has made the headlines again. You may recall the phase III INDIGO study showed that Vorasidenib may help some people with grade 2 glioma live longer without brain tumour growth. Vorasidenib targets specific genetic changes called IDH mutations that are commonly found in grade 2 gliomas, which mainly affect people who are young and otherwise healthy. It showed that Vorasidenib delays disease progression in grade 2 glioma with an IDH mutation by an average of 27.7 months, compared to 11.1 months for those taking a placebo. A ..read more

The National Institute for Health and Care Excellence (NICE) has approved the combination of dabrafenib and trametinib for patients aged one and over with either low-grade or high-grade glioma with the genetic mutation BRAF V600E. Gliomas are the most common type of brain cancer in children and young people. These tumours develop from the glial cells, which support the nerve cells of the brain and spinal cord. A BRAF mutation is present in around 15%-20% of low-grade gliomas and around 5%-10% of high-grade gliomas in children. This decision will benefit about 30 children in England. The new dr ..read more

Come and join our monthly blether where you’ll have the opportunity to meet, chat and connect with others in our community. It’s for anyone affected by a brain tumour diagnosis, and just like our face-to-face meetups it is a warm, welcoming safe space for you. There’s no agenda, it’s just an opportunity to connect and chat with people who understand, so pop along and say hello! The post Tea and a wee blether – Tues, 7th May 12.00 appeared first on Brainstrust, brain tumour charity ..read more

Virtual cuppa for those with a colloid cyst diagnosis and their loved ones The post Colloid Cyst Group – Thurs May 30th 13.00 appeared first on Brainstrust, brain tumour charity ..read more

Patrice Surley is doing a return visit! Come and join our webinar as she chats about nutrition based on her experience with GBM patients The post GBM and Nutrition with Patrice Surley – Fri May 17th 16.00 appeared first on Brainstrust, brain tumour charity ..read more

We are exceptionally fortunate that three leading experts in the areas of fertility, oncology and psychology have offered to run this webinar for us. This webinar will focus on fertility preservation for patients with a brain tumour diagnosis. They will also present on the recently published resource Cancer, Fertility and Me which was developed to support people to make fertility preservation decisions in the wake of a cancer diagnosis and treatment. As well as being an information giving session, this is a unique opportunity for you to have an audience with three experts in this area wh ..read more

An Acoustic Neuroma diagnosis can be a very difficult thing to come to terms with. Come along to meet others who are going through a similar experience. Grab a coffee, say hello, you will be glad you did. The post Acoustic Neuroma (Vestibular Schwannoma) – Fri 10th May 13.00 appeared first on Brainstrust, brain tumour charity ..read more

Come along and have a virtual cuppa and a chat with others living with a high grade diagnosis, just like you. The post High Grade Group – Thurs, May 2nd 13.00 appeared first on Brainstrust, brain tumour charity ..read more