Parkinsons.Me
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Parkinsons.Me UK based charity offering support, advice and information to families affected by Parkinson’s disease.
Parkinsons.Me
2y ago
Thank you Lester for this brilliant poem inspired by MoveMe classes we run.
,For full details click here.
We gather together on Thursday
All of us come for a cause
Not just another keep-fit
To rattle through with no pause.
Fighting ‘gainst bad Mr P
He is an unwelcome guest
But we hold a special key.
For Thursdays we assemble
Together to have a play
For Thursday for one hour
Is bashing Mr P, day.
Our teacher kits us out
With scarves and theraband
Some balls complete the look
We are anything but bland.
We start by marching on the spot
But rhythm can avoid us
So we are not army standard
But the ..read more
Parkinsons.Me
2y ago
Today was my first visit to the Parkinsons.Me MoveMe group held at the Loyd Lindsay Rooms in Ardington near Wantage.
MoveMe is an exercise programme for people with Parkinson’s Disease led by Physiotherapists from the Oxford Health NHS Physical Disability Physiotherapy Service.
Whilst everyone was involved in their exercise group, friends, family and partners are invited to a group called MoveMe Mates.
My partner has PD and although I am the champion for encouragement, I have always been a little sceptical of joining a group myself. This time I was the one feeling a little apprehensive. Well ..read more
Parkinsons.Me
2y ago
Parkinsons.Me is a charity that aims to help families affected by Parkinson’s to enjoy the best possible quality of life.
We want to improve how we communicate with our local communities – both to offer more support and find out which new services we should be developing.
That is what this new job is all about – talking to people and organisations; developing new materials to raise awareness; building and maintaining our social media and online presence; and getting involved in events and fundraising.
Contact Mike Ayre on Parkinsons.me@gmail.com if you would like to know more, or click on thi ..read more
Parkinsons.Me
2y ago
From our special correspondent....
I am sitting next to him whist he writhes unwillingly from the effects of his most recent dose of medication. To be honest at any time of day he struggles to control the extra movement given by the very drug that is prescribed to help him. I liken his movement to him being in his own earthquake and let me tell you that it takes some balancing tricks for him to stay upright. You’ll often see our dog running for cover and I constantly fear for his safety and the safety of the things around him. If he falls lives could be lost!
He was 6ft 5ins and so proud to s ..read more
Parkinsons.Me
2y ago
From our Special Correspondent...
Someone once told me that friends come into your life for one of three things, “a reason, a season, or for life”.
Time and again this has been proven to me over the years and knowing that friendships work this way has certainly helped me understand why some people stay around and others simply move on. I find its best not to judge people’s intentions early on, time will tell where they fit into your journey and where you fit into theirs.
With every life change we make, or is made for us, we get the opportunity to enrich our souls with the influence of others ..read more
Parkinsons.Me
2y ago
From our Special Correspondent...
I’m always touched by how many people ask me how he’s doing. In fact, I volunteer information about his health whenever I speak to or message with family and friends. The support he has is heart-warming.
When the COVID 19 lockdown was advised we decided to shield him less than a mile away at his parents’ home. It made sense to keep him safe whilst my daughters and I kept ourselves available to support my Mum and other family members, albeit from a distance. In hindsight it was such a good judgement call as in the first week of lockdown I began having symptoms ..read more
Parkinsons.Me
2y ago
From our Special Correspondent...
It’s inevitable that as a relationship evolves the roles within it change, and change again and again. At different times during the life of a family we all take on different responsibilities and challenges in response to the demands put upon us. The growth of careers in the early years and then the nurturing and managing of babies, children and teenagers inevitably cause chaos and disruption. Despite these shifts in responsibilities the team copes well and life goes on.
Something the team won’t be prepared for is the diagnosis of a chronic disease. There wil ..read more
Parkinsons.Me
2y ago
By Martin Cowell, a member of the MoveMe group.
I absolutely echo and underline everything that Rhonda says about MoveMe : it is wonderfully led and managed, before during and after, and is a great way to sustain one’s exercise regime whilst mixing with a lovely bunch of people – who all know what life can be like with Parkinson’s.
I was diagnosed in March three years ago, much to my surprise (my GP had twice told me I did not have it, and that my fairly mild tremor was something else) and initial concern – not least because I knew very little about it. I probably saw the same specialist as R ..read more
Parkinsons.Me
2y ago
By Rhonda Telford, a founder member of our MoveMe group.
MoveMe is all encompassing. From our fantastic leader/physiotherapist Jo Preston and assistant Tessa, to the wonderful tea and coffee fairies who supply us with much needed sustenance (including yummy cakes) and friendly conversation after an exercise class. Thursday mornings are literally like a beacon shining in my week.
I was diagnosed with Parkinson’s Disease two years ago much to my surprise and initial upset. I had been suffering from numerous “problems”, in addition to several other existing medical conditions, for quite some tim ..read more
Parkinsons.Me
2y ago
By Peter Cook, Trustee of ,Parkinsons.Me. Like all medical diagnoses, Parkinson’s is a bit of a downer.
For me I went to my GP for something unrelated. She said I wouldn’t worry about that, but I am concerned about the tremor in your fingers, I think it might be Parkinsons. At that time it was a mild wobble on the 4th finger on my right hand, which I had hardly noticed. It was another couple of years before I had a diagnosis as initially the consultant I saw could not be sure if my condition was benign essential tremor or not. I pressed eventually for a DAT scan, which showed the conclusive la ..read more