Surviving Wonderland: Living with TLE
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Medical experts agree epilepsy affects between one and two percent of the world’s population with Temporal Lobe Epilepsy accounting for about half of that number. With nearly 7 billion people on earth, and about 310 million in the United States, the numbers of TLE sufferers become staggering. Surviving Wonderland is my attempt to share my experiences and research with others who struggle..
Surviving Wonderland: Living with TLE
4y ago
“Curiouser and curiouser!” Alice, Alice in Wonderland by Lewis Carroll
Life has changed for pretty much everyone with the introduction of COVID-19 into the world. The virus has made it difficult for everyone to find interesting entertainment within new closed environments. My husband and I decided to take a break from our usual confinement refinement by opening the jigsaw puzzle I received as a Christmas gift last year.
I used to love putting together jigsaw puzzles. And we worked on many puzzles during the first years of our marriage. It’s an opportunity to engage in a Zen ..read more
Surviving Wonderland: Living with TLE
4y ago
“It would be so nice if something made sense for a change.”
― Lewis Carroll, Alice in Wonderland
Several weeks ago, I started doing research for a blog entry on bell curves in health care and how these bell curves impact those of us with TLE and autoimmune diseases. I continue to try to share information this information because we are more at risk than the non-epilepsy population for developing one or more autoimmune diseases.
Doctors often overlook them in epilepsy because health care, in general, tends to be siloed. Many doctors concentrate on their specialty and do not consider complement ..read more
Surviving Wonderland: Living with TLE
5y ago
Look after the senses and the sounds will look after themselves. ― Alice in Wonderland by Lewis Carroll
I have been thinking of writing this post for a while, but each time I end up frustrated when I try to find the science to match my experience. Apparently, the effect I am reaching for is not well documented. It has to do with noise, sound, seizures, and pain. It wasn’t until I read a rather good article from the American Kennel Club on undiagnosed pain in dogs that I decided to just throw my experience out there.
The study looks at how dogs with musculoskeletal pain are more broadly sensiti ..read more
Surviving Wonderland: Living with TLE
5y ago
“But it’s no use now,” thought poor Alice, “to pretend to be two people! Why, there’s hardly enough of me left to make one respectable person!” —Chapter 1, Down the Rabbit-Hole, Alice in Wonderland by Lewis Carroll
The whole purpose, I once thought, in writing these blog entries was to provide a small amount of direction toward “surviving” this condition we all live with in one way or another. We are either individuals with Temporal Lobe Epilepsy or caretakers, family members, or friends of those with the condition. I can’t imagine anyone else reading, much less caring about, what is written h ..read more