6 months to go! Tickets on sale from start of May! Tables of 10 for £650 or individual tickets for £65pp! Sponsorship & auction/raffle prizes much appreciated! looking forward to raising vital funds for Mesothelioma UK with you ..read more

Firstly, thank you very much for all your words of support and advice further to my last blog – much appreciated. I feel incredibly fortunate as a meso patient to still be alive after 8 years despite typical meso prognosis, yet it is hard with no clear treatment path.  So throughout the end of last year, we sought a second opinion, researched heaps, had very helpful calls with Meso Uk and the fabulous nurses and received lots of supportive and very informative advice from Ali’s work colleagues.  When the time is right, Immunotherapy is my next course of treatment,  but we learnt ..read more

People ask if we think about my meso everyday, and some days we do manage to just get on with life but the last month has been very tough!  As written about many a time before, scan time is so tough and I had a few weeks prior to my latest scan, where I had some pain & was very fatigued.   Anyway, this time due to my second cancer, I could have my CT at the Christie’s so results turnaround was super quick (1week) which is hugely appreciated.  Results are mixed, for my adenocarcinoma on my right lung, they are now classing this as stable as the radiotherapy worked as hoped an ..read more

Today allows us to reflect and remember those MesoWarriors who have unfortunately lost their lives to this preventable, incurable disease. Our hearts go out to their loved ones, families and friends. We have known many whom are sadly no longer with us from the various Meso meetings & conferences.  This October, I will reach 8 years since diagnosis! With less than 5% globally of people only surviving 5years or more, it reiterates how incredibly fortunate I am, that Im still alive today, with many thanks to risky life saving surgery by Mr Waller at Glenfield Leicester Hospital, the amaz ..read more

ln brief it’s good news! My Meso full CT Scan report has not been written up yet, but 2 consultants have reviewed it and can’t see any growth in the 2 mesothelioma nodules on the right lung, so huge relief! We do need to wait about 4weeks for the report to be written up but hoping it remains this way.  The plan if all is well, is to have a scan in 6months time which would be big relief to go back to that timescale again.  For the adenocarcinoma, which I’ve had the 5 sessions of radiotherapy (SABR) @ the Christie, we have a follow up on 9th June. I will then need a further scan (likel ..read more

I had my first of 5 radiotherapy sessions on Thursday to try and remove the adenocarcinoma. (There is still some debate amongst the specialists, whether it’s Meso or Adeno, but we may never know as I can’t have a biopsy!). It’s felt a very long wait from first diagnosis so good to now just get on with it. Staff at The Christie were amazing. They allowed Erin & Ali in prior to treatment, so Erin could see the machine, & understand what would happen – Josh stayed home ‘GCSE revising’!! Treatment Room We were 30mins early & they were 45mins late so besides the wait & build up, it ..read more

Wythenshaw North West Lung Centre, Glenfield (Leicester) Hospital,  Wigan NHS and now The Christie Manchester – I’m getting around a bit with my cancers!!! We spent this morning at The Christie to learn about my next steps.  Its felt a long 4 weeks since diagnosis of the adenocarcinoma, and Ali & I have struggled these past few days in particular in anticipation for this next appointment and what the plan is! It doesn’t get any easier no matter how many appointments we have! However, as soon as we were at The Christie, the lovely staff looked after us very well. It became apparen ..read more

Thanks very much for messages/calls asking how we’re getting on this week. Results from lung function tests & PET scan are in:  In summary, it confirms findings from my CT scan – there is this new lung cancer on my remaining right lung – Adenocarcinoma.  In addition, there are potential small nodules of Meso on my left, near the heart which we weren’t aware of. So there’s potential ‘little bits of Meso’ on both sides!!! We say potential as they are small & biopsies can’t be performed due to the risk.  Proposal is still to prioritise the Adenocarcinoma, then review the Me ..read more

A massive thank you from the bottom of our hearts for all the love and support you have all given us, the messsges, offers of help etc. It means so much to the four of us and gives us huge strength to face the challenges ahead.  Aim of the blog is to keep everyone updated – thanks for your continued messages asking what’s happening -along with hopefully helping others going through similar situations. This time I have also started taking photos! The speed & care I have received from NHS has been excellent so far.  First up was Lung Function test at Wythenshaw Hospital on Tuesday ..read more

A huge shock to us but unfortunately, my February CT scan shows that on my right lung, I have a different lung cancer now – non smokers lung cancer called adenocarcinoma! Hopefully because I’ve been back on 3 monthly scans they have caught it early as it’s small!!! For people with 2 lungs, biopsies & surgery would be performed, but they cannot risk that with me just having the right lung left! Therefore, current plan is to have a PET scan, lung function tests & if all ok to proceed with intense radiotherapy – SABR @ The Christie’s. In addition, also showing they think are 2 small Mes ..read more