It's been 124 days since I was listed. At first, I was able to not think about it every single time the phone would ring. About a month into waiting, that started to change. I'd hear my phone ringing and jump to see who was on the caller ID, only to disappoint myself when it wasn't my hospital calling, and even more anxiety when a Grand Rapids/Spectrum Health number would roll across the screen, followed by disappointment when it wouldn't be someone on the other end calling to tell me they had lungs... Waiting is definitely difficult at times, maybe even more so than the evaluation process (I ..read more

My foster dad, Chad. From my visit in July to MinnesotaIt's been a year since my last post, again... I'm so bad at updating! There's been some big things happening over the past year, and here's the recap: My best friend, Lucas! Visit to Minnesota in JulyShortly after my last post, the "T" word was brought up by the CF team I was seeing at Saint Joseph here in Indiana. Transplant. The entire winter 2017-2018 was a struggle for me. My body could not adjust to or tolerate the drastic climate difference between North Carolina and Indiana, and I spent essentially all of the winter alternating di ..read more