Reflections from an awful week
Epilepsy and me
by sharonrossblog
4M ago
Over the past week, I have been trying to understand why the attack on Israel has left me so personally bruised and enraged living thousands of miles away from the horrific scenes. What has happened makes no sense at all, but somehow we all have to make sense of it. This is what I concluded. My feelings towards the events, of course, have a very personal dimension. The Jewish community is closely interconnected – there is only one degree of separation. I have friends with family or friends who have been murdered or kidnapped. This isn’t like the Manchester Arena attack or 9/11. It isn’t distan ..read more
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4/7/21 A New Venture
Epilepsy and me
by sharonrossblog
2y ago
In my blogs I often talk about epilepsy, mental health and how I scrape around endlessly trying to find something that will help my cognitive deficit.  It sometimes seems that all I do is hit brick walls. But not all of it has been dead ends.  Undoubtedly the ketogenic diet has helped but other things have been just as important to my road to recovery. Being grateful for the important things in life helps.  Connecting with others in a similar position helps.  Writing helps.  Faith helps. I will still go on looking for medical interventions but I realise that it is not ..read more
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23/03/2021 – We Need Time to Heal
Epilepsy and me
by sharonrossblog
3y ago
Here is my latest piece for Herts Mind Network. Quite rightly the impact of the pandemic on mental health has received much attention. The Office of National Statistics (ONS) found that in the run-up to the first lockdown, roughly 10% of people showed moderate to severe symptoms of depression, compared with 19% in June 2020[1]. So, the question arises – What can be done to ease the mental health crisis going forward? …… https://www.hertsmindnetwork.org/news/we-need-time-to-heal ..read more
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Faith and Epilepsy
Epilepsy and me
by sharonrossblog
3y ago
I am always heartened when I look through the posts and comments on the various epilepsy Facebook groups.  There are, without exception, always signs of courage and hope.  There are, of course, people who are depressed, angry and frustrated – it is quite easy to feel that way if you have epilepsy, or indeed any chronic condition, but hope, strength and often, faith, always shines through. Let’s make no bones about it – epilepsy is an awful condition to live with: it has a history of thousands of years and still not enough is known about it; it’s unpredictable – seizures can take plac ..read more
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What does living with epilepsy and living in the coronavirus pandemic have in common?
Epilepsy and me
by sharonrossblog
4y ago
I was like most of the world, also thinking about coronavirus and so decided to write my first public blogs in over six months about my thoughts on it.  My musings on feminism will have to come later……If you were asked what epilepsy and coronavirus have in common, you might look perplexed and then answer ‘not a lot’ and you’d be right – after all, one is a neurological condition and the other an infectious disease.  Physiologically they just work in completely different ways.  However, as someone living with epilepsy, in this blog, I would like to argue that actually living with ..read more
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52. Withdrawal Agreement
Epilepsy and me
by sharonrossblog
4y ago
Every conversation I have these days seems to be a microcosm of Brexit – the UK’s seemingly never-ending attempt to leave the European Union.  A dinner conversation about something mundane and inconsequential and can in a split second turn and all of a sudden voices are raised; those involved in the discussion start to look agitated and neither side is going to give in and I think to myself ‘This discussion is just like Brexit – it is no longer about the issue in hand – it’s just about egos and who can win.’ I also have Brexitish discussions with myself about logistics – it starts with ‘How do ..read more
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Sharon: ‘More than a Seizure Disorder’ – This Is Epilepsy
Epilepsy and me
by sharonrossblog
5y ago
This time somebody has written about me! Beth, a writer, has epilepsy and is using her skill to raise awareness. We had a bit of a chat and this is what she said……. https://thisisepilepsy.com/2019/07/31/sharon-seizure-disorder ..read more
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50. 21st July 2019 – Present-ing Policy
Epilepsy and me
by sharonrossblog
5y ago
I am now approaching the batmitzvah year of my eldest daughter and can foresee that this year my family will spend and receive more on gifts than the norm.  As such I thought it prudent to write myself a Present-ing Policy.  For those of you who have never seen a Present-ing Policy before – neither have I – but I do think that they are circulating around somewhere in most people’s heads – I’m just writing mine down to clarify my thoughts on this important matter. This policy makes reference to both giving and receiving gifts and applies only to large gathering such as bar/batmitzvahs and weddi ..read more
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49. The present spectrum
Epilepsy and me
by sharonrossblog
5y ago
I’m on the spectrum.  The present spectrum.  I haven’t seen anyone about it but I have self-diagnosed myself as a three on the ten-point scale.  ‘What’s this about, Sharon?’, you ask yourself.  Well it goes like this: Everyone is on the present spectrum – if you score a one then when somebody asks you ‘What do you want for your birthday?’ you say ‘I don’t know.  Nothing really, I’m fine’.  Your loved one/ friend knew that this is what you were going to say and buys you either a gift voucher (which stays in a drawer until it expires/ you spend on someone else) or flowers (which die through maln ..read more
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48. Children’s Birthday parties – the Great Money Exchange Project
Epilepsy and me
by sharonrossblog
5y ago
I would like to tell you about a bit of a scandal that I am involved with; it’s something I have been part of for a very long time; lots of people, including my family and friends are also implicated; it’s not illegal but on the other hand it’s not economically sound – I call it the Great Money Exchange Project (GMEP). I would appreciate any feedback as to how I can get myself out of it.  About the project The background to the Project is this: Like many others, each of my three primary school-aged children, get invited to school-friends’ birthday parties.  I estimate, that over the course of ..read more
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