Sunshine and Spoons
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EDS mama of 4 little zebras and lover of Jesus, chai lattes, and sewing. Blogging about special needs, chronic illness, parenting, and life in general. The mission of Sunshine and Spoons is to help raise awareness for and support special needs and chronic illnesses.
Sunshine and Spoons
1y ago
This post contains referral links which means that if you purchase from one of my links, I will receive a small percentage of the sale. Don't worry, this won't cost you any extra!
I did it!
I set a reading challenge goal of 150 books on Goodreads at the beginning of 2022.
At 10:45ish pm on December 31st, I finished reading my 186th book for the year. Normally, I would've been at our church's annual New Year's Eve game night with the rest of my family, but I was under the weather so I got to spend a peaceful (and kind of lonely) evening at home with the dog.
In no par ..read more
Sunshine and Spoons
2y ago
This post contains referral links which means that if you purchase from one of my links, I will receive a small percentage of the sale. Don't worry, this won't cost you any extra!
There are a lot of myths and wrong beliefs about autism. We've run into quite a few since Davy's diagnosis in 2021 at the age of 7. I actually first suspected he had autism when he was 3, but thanks to some of the common myths about autism, I had a hard time getting anyone to take my concerns seriously, including medical professionals. So, I thought it might be a good idea to address some of the most common myt ..read more
Sunshine and Spoons
2y ago
Have you ever had a gut feeling about something? A nagging thought in the back of your mind that just wouldn't go away?
I had that when I was expecting my third child. From the moment the second line appeared on the stick, I had a feeling that there was something unusual about the pregnancy, that there was a surprise waiting for me at the end of it. I didn't know what it was though. Maybe twins? No other possibilities came to mind and when I had my first ultrasound at 20 weeks, there was definitely only one baby. A little boy. The ultrasound technician printed a fuzzy black and white pictur ..read more
Sunshine and Spoons
2y ago
I recently got a glimpse into my son's future.
Davy has CDK13, a rare genetic disorder that affects his development, speech, muscle tone, facial features, and more. It can also cause autism, which it does in Davy's case.
I was at the bookstore one day when a boy about 13 or 14 years old came in with his mom. He was loudly vocal about his dislike for books in general and instead selected several dvds, he told his mom she was slacking when he was ready to check out and she was not, he did not seem to realize that he was in the cashier's bubble when he leaned way over the counter, and he ..read more
Sunshine and Spoons
2y ago
Thursday, April 29, 2021
Davy had an appointment with his geneticist that day to find out the results of his Whole Exome Sequencing or WES. It had been a few years since we'd done any genetic testing for Davy, and I was fully expecting the results to be the same as the other tests we'd done with nothing significant found.
Several years earlier, our geneticist had told me that despite diagnosing Davy with hypermobile Ehlers Danlos Syndrome, she felt that he had another genetic syndrome as well and wanted to keep looking. EDS explained a lot of his issues, but there were still some ..read more
Sunshine and Spoons
2y ago
At the beginning of July, Hubby and I packed up the whole family and we went for our fourth year to Camp Chetek's family camp.
The week started off HOT and humid with temperatures reaching almost 95 degrees Fahrenheit on Monday. If you've been around here long enough, you probably know that heat and I don't mix. At all. Anything higher than about 70, and I'm headed straight for heat exhaustion. Generally speaking, if I get overheated, it takes me at least a week or two to recover depending on how bad it was.
This time, I didn't have a chance to recover and gain any spoons b ..read more
Sunshine and Spoons
2y ago
This post contains referral links which means that if you purchase from one of my links, I will receive a small percentage of the sale. Don't worry, this won't cost you any extra!
48 years ago today on January 22nd, 1973, Roe v. Wade was decided.
35 years after that day, I gave birth to a beautiful baby girl.
Today, she turns 13, a privilege that 62 million children will never get.
If you're struggling, know that there is help and hope. Please call one of these numbers or visit the website.
How to observe Sanctity of Life Day:
Recognize the value of every single life at ..read more
Sunshine and Spoons
2y ago
This post contains referral links which means that if you purchase from one of my links, I will receive a small percentage of the sale. Don't worry, this won't cost you any extra!
It finally happened.
After 10 months of caution and feeling like it was hanging over my head the entire time, I came down with COVID-19.
I have severe asthma that has nearly killed me many times. I also have Ehlers Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, and Mast Cell Activation Syndrome. Generally speaking, I pick up just about every germ that I come across, and I get pretty sick ..read more
Sunshine and Spoons
2y ago
This post contains referral links which means that if you purchase from one of my links, I will receive a small percentage of the sale. Don't worry, this won't cost you any extra!
When you think of Christmas movies, I bet there are a few that immediately spring to your mind as ones that you absolutely have to watch every year. Maybe they're movies that you grew up watching with your family or maybe they're new ones that you've recently discovered and with which you've fallen in love.
Every year, we try to watch our favorites along with a few new ones for some variety. I es ..read more
Sunshine and Spoons
2y ago
This post contains referral links which means that if you purchase from one of my links, I will receive a small percentage of the sale. Don't worry, this won't cost you any extra!
If you're looking for the perfect gift for the Ehlers Danlos Syndrome or rare disease zebra in your life (or maybe for yourself), look no further! I've put together a list of gift ideas with something for every budget. Enjoy!
Holographic Ehlers Danlos word cloud sticker from Etsy
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Personalized mustard zebra mug from Etsy
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