Infinite Daze
290 FOLLOWERS
This is my illness narative. I have been sick since May 2010. I got my first diagnosis of Fibromyalgia on January 11, 2011 with a confirmation on April 8, 2011. I was diagnosed with CFS on March 31, 2011. This is the story of my journey.
Infinite Daze
2y ago
I'm watching tons of vids trying to learn about Autism. One of the things mentioned over and over again is 'Autistic Burnout' which is apparently different than muggle burnout. Something to do with the world just getting to be too much to deal with and you literally shut down and have to sleep. I'm still trying to understand it.
Looking back I'm pretty sure this happened to me in high school. I think life just got to be too much and I had to shut down for several weeks. I had always wondered if I had mono since I mostly just slept, ate and caught up with hom ..read more
Infinite Daze
2y ago
I have a new diagnosis. It happened very suddenly. I was chatting with some women in the CFS/ME support group I run on Facebook regarding autism. Now I had started to suspect that I might have autism after watching Hanna Gadsby's Douglas. Now the women in my group were saying that it was impossible to mask their autistic traits since contracting CFS/ME. Someone posted a list of traits of Asperger's in women and I matched 99% of the criteria. Two days later I asked my therapist if he thought it was accurate and he confirmed that he also strongly suspect ..read more
Infinite Daze
3y ago
I've been gone from this blog for a long time. Not because I've been too sick to write but because I started a Facebook patient support group for the housebound and bedbound folk. I was very involved and curated the group for the first year until it got enough members and the right tone for it to become self sustaining with a great set of admins. The group is great. It has over a thousand members now.
Thing is we have a couple of members that are very depressed because of illness, a couple who are suicidal, one who is suffering from medical abuse/negle ..read more
Infinite Daze
4y ago
I have a long and sordid history with food... mostly caused by the diet industry. I'm fat. I've been fat since I hit puberty. For the most part I've resisted dieting but succumbed once in high school and once in the late 80s. Both times I lost weight which I gained back during the couple of years afterwards which keeps me in line with the science studies on the matter. Then there is the health side of things. I knew my body reacted badly to some types of food. I was raised in the era of Wonderbread and Twinkies. My mother did her best to put meat and veg on the table for our meals but ..read more