I have to ask, know if this is a fibro thing. I'm recently diagnosed and not sure. The best I can describe it, is like a feeling you're going to faint, lightheaded and sweaty, but you don't faint. Mixed with the feeling of being week and shaky, like you haven't eaten for a week. This is worse wen standing ore walking. Is this a fibro thing or a flair up thing? Thank you for reading. submitted by /u/Wolfenights [visit reddit] [comments ..read more

I find that I can sleep sometimes for 15 hours straight and still be able to fall back asleep. Even if I've had enough sleep (usually 9 hours for me) I still can't tell I've had enough sleep at all until I've been awake for several hours. I take beta blockers which do help with this to an extent but not as much as I would like. Other than setting alarms and trying to convince yourself that you've had enough sleep, does anyone have any strategies? ​ submitted by /u/TheHomesteadTurkey [visit reddit] [comments ..read more

Feeling so frustrated. I posed a question on a local fb group asking for a rheumatologist that is well-versed in treating fibro and also good with plus size patients and I was met with every other suggestion other than rheumatologist. Pain management, psychiatry, alternative medicine, etc. Ugh. Why must people do that? Anyhow… in case someone is in the Raleigh/Durham area that knows of a rheumatologist that the believes in fibro and is plus-size friendly (doesn’t just say you need to lose weight - btw I’ll still have fibro and related pain even when I lose weigh), please let me know who you r ..read more

Has anyone found any good methods/tips or tricks for pacing please? I feel like I have a negative mindset around the idea because of my trait of rigid thinking, how I keep feeling like life just doesn't allow me to pace and there will always be more expected of me than I can give. But with the knowledge I struggle with this, I'd like to ask those most knowledgeable if there's any links or information sources they've found useful for this. I've heard of spoons theory but my mind works in extremes so the minute I have any energy at all I'm catching up on the things I haven't done due to not hav ..read more

I've seen physio and rheumatology (sounded like I was being demanding/dramatic in the referral letter to rheumatology however), because I was getting clicking, popping, crunching, in my joints with pain a lot of the time. Bloods came back fine minus higher inflammation markers but "not so high that they were concerned because it was winter and most people have higher results"? I haven't found IBS treatment to help much at all of anything. Ibuprofen/naproxen doesn't help either, my only other option is anti depressants and I'm worried about going onto these alongside my ADHD medication because ..read more

Hello everyone! I have a close friend recently diagnosed with fibromyalgia, and I’m trying to figure out the best ways to support them. It's a tricky balance between offering help and respecting their independence. For those of you who have fibromyalgia or know someone who does, what actions or words have you found helpful? And what should people avoid doing or saying to not come across as overbearing? I want to be as supportive as I can without stepping over any boundaries. submitted by /u/HakaLifeAndrew [visit reddit] [comments ..read more

Does anyone feel their heads shake internally? But it’s not visible? Whenever I am stressed or tired or even happy…strong emotions in general. I can feel my head shaking, but my Mother says it’s not visible. Anyone have this? Or should I be talking to my Doctor about something else other than Fibromyalgia? Thanks submitted by /u/WheelieWonderful88 [visit reddit] [comments ..read more

So I'm just going off my personal experiences. When I experience a flare it's easy for me to experience negative emotions as a reaction towards the pain but I've noticed that it makes my pain significantly worse. I've been documenting my pain for awhile now and I notice when I don't give in to my emotions during a flare up, I still have the same level of pain but it decreases the risk of worsening the pain. It's so weird but I imagine it's to do with the nervous system. Has anyone else had the same or similar experiences? submitted by /u/PeaceWithFibro [visit reddit] [comments ..read more

Hey guys, I (M29) was recently diagnosed with fibromyalgia due to high level of stress and insomnia as my doctor puts it. I’ve been on 900mg-1200mg Gabapentin 3-4 times a day. 60mg Cymbalta Muscle relaxants I started physiotherapy that I don’t see much improvement from but it is what it is. Ever since the pain started my life changed drastically. I’ve been more depressed, I started struggling with work. Can’t commit to plans and might have bad flares while at work that forces me to leave or not show up in the first place. I was wondering if you guys have any advice/hacks for someone w ..read more

Anyone ever feel pain relief from further pain? My right arm has been killing me today and for some apparent reason stabbing said arm multiple times with a dull object reduced said pain. I think momentarily but I’ll know more soon. Anyone else have experience with this? edit: yeah hours of relief. Some bruising but honestly I’ve done much worse to myself lmao. submitted by /u/lilith_-_- [visit reddit] [comments ..read more