Ten years ago Dr. Peterson called the severely ill the “elephant in the room” that everyone had danced around for years. The elephant in the room got very visible recently. A recent coroner’s report and inquest into Maeve Boothby-O’Neill’s tragic death in 2021 brought the plight of the severely ill […] The post The “Elephant in the Room” Awakens: The Severely Ill with ME/CFS After Maeve’s Tragic Death appeared first on Health Rising ..read more

Money, Money, Money Why has Health Rising spent so much time on the RECOVER Initiative for long COVID? It’s simple – money.  Let’s not even think about the $1.15 billion Congress gave RECOVER over 4 years ago. That’s largely gone. In February 2024, however, RECOVER received a $515 million infusion […] The post RECOVERING The RECOVER Initiative? TLC Conference Promises a New Path Forward for Long COVID appeared first on Health Rising ..read more

We’ve had chronic fatigue syndrome (ME/CFS) moments and long COVID moments, and now we have our first post-infectious disease moment. “Moments” are indications that something significant has happened which suggests that better times are ahead. In this case, not just for ME/CFS or long COVID but for post-infectious diseases in […] The post A Post Infectious Disease Moment: Common Pathogens as Bad as COVID-19 in Creating ME/CFS appeared first on Health Rising ..read more

Geoff’s Narration The Blog   The time is now. Never did I dream that we’d have an opportunity like this. I still find the fact that it exists incredible. The fight for the $1 billion/year (yes, that’s billion with a “B”) “10-year Long COVID Moonshot Bill” is here.  We’re not […] The post Changing the World: the Fight for the Long COVID Moonshot Bill Begins appeared first on Health Rising ..read more

  ME/CFS was looking pretty darn good a couple of months ago. Led by Vicky Whittemore and Joesph Breen from the NIH, and Lucinda Bateman and Maureen Hanson, ME/CFS experts spent hundreds, if not thousands, of hours over the past year painstakingly preparing an 8-part Roadmap series and a 148-page […] The post NIH Smacks the ME/CFS Research Centers: Plus a Warning for Long COVID – and an Opportunity for Both appeared first on Health Rising ..read more

Have you ever tried to drink out of a firehose? Me neither. Until last week. That’s when I attended Ron Davis’s annual Working Group meeting. That’s where a roaring firehose of ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) science, research results, data and charts and graphs and concepts and theories and researcher’s […] The post Of Firehoses and Hope: An ME/CFS Advocate’s View of Ron Davis’s 2024 Working Group Meeting appeared first on Health Rising ..read more

An ME/CFS or long-COVID moment is an indication that something in the force has shifted – that these diseases are making headway in ways they have not before. As we go along in our day-to-day lives, it’s easy to forget that signs of significant shifts are occurring – and fairly […] The post A Long COVID / ME/CFS Moment Featuring NIH Director Monica Bertagnolli appeared first on Health Rising ..read more

Geoff’s Narrations The GIST The Blog (Please note that I have added parts to this blog that were not covered in our talk.) It was great to get an opportunity to talk to Daniel Clauw M.D. who, with his hundreds of publications, was a key figure in helping drag the […] The post The Central Nervous System Sensory Disorders: Dr. Clauw on Fibromyalgia, ME/CFS and Long COVID appeared first on Health Rising ..read more

The GIST is at the bottom of the blog. Studies often have a treatment section at the end of the paper, but I’ve never seen anything like the one that showed up at the end of a study Health Rising recently covered. The “Cardiopulmonary and metabolic responses during a 2-day CPET in myalgic encephalomyelitis/chronic […] The post Landmark Two-Day ME/CFS Exercise Study Pt 2: The Treatment Section appeared first on Health Rising ..read more

Haylie Pomroy – the leader of the Institute for Neuro-Immune Medicine at NovaSoutheastern University podcast series –  talked with Dr. Klimas and me about chronic fatigue syndrome (ME/CFS), fibromyalgia, and long COVID. It was a general discussion touching on the early days of ME/CFS, its unique beginnings, Dr. Klimas’s first […] The post A Talk With Haylie Pomroy and Dr. Nancy Klimas appeared first on Health Rising ..read more