Hey Guys What a crazy year 2020 has been. I will be glad to see the back of it as I'm sure you will. Nothing has really changed vestibular symptoms wise. I'm still dealing with it all on a daily basis. Since Covid appeared I have had no doctor appointments except a skype chat with a new neurologist recently. He thinks it's time I come off of my 50mg daily dose of nortriptyline ( I have been taking it daily for 8 years now) and wants me to try a different medication for my dizziness called Effexor (also called Venlafaxine here in the UK).  I have known about this medication for ..read more

Hi Guys Recently I decided to join a free online site called Prizerebel. Prizerebel allows people like you and me to complete online surveys, play games, for gift cards of your choice or cash. So far so good. I figure since we are all staying home right now (not much has changed in that respect for me, ha) then we might as well pass some time earning a little money. You are not going to become rich participating in something like this but if your after a little pocket money, some extra spends then you can't go wrong. https://www.prizerebel.com I hope you are all keeping safe and well. Swimmy ..read more

Hi Guys It's been a while since I last posted. A quick update about what is going on with me and my vertigo/dizziness. I had a coupe of appointments last year to see a neuro ophthalmologist. The reason? to find out if my now abnormal eye movements (nystagmus etc) are the reason for my ongoing chronic dizziness and vertigo or is it an underlying vestibular disorder that is causing my strange eye movements.  The conclusion? My neuro ophthalmologist thinks it's an underlying vestibular disorder causing the nystagmus and not an eye movement problem causing my symptoms. I have often thought th ..read more

Hi Guys The last time I posted I talked about my trip to Jersey. Well, in August I travelled a bit further and went on a short trip to Spain. I was a bit anxious about flying there as the flight was around 2hr 30 min but I did so well on my previous flights that I just had to do it. Thankfully the whole experience was great. Spain was beautiful. Hot sunny weather and the flights there and back were smooth except for the take off when heading to Spain. Wow, there was severe weather warnings in place that day. Very windy. We flew down the run way and lifted off the ground and the plane drifted ..read more

Hi Guys Just a quick update to say that I have been flying again. My previous post was about my experience flying with easy jet via there fearless flyer course. If you have read that you'll know that I went on that course in order to get on a plane for a short while to see how flying would impact my vestibular problem. It was a strange experience. Especially take off but it was worth it. It was worth it because I didn't let the disconcerting sensations I experienced whilst flying that day put me off flying in the future. Instead I booked a trip and jumped on a plane again. I admit I was a li ..read more

Hey Guys I thought I would drop in and give you a few updates about what's been going on with me. I didn't realise I had not posted anything for so long. So the last thing I told you was that I was having some new vestibular testing done and another MRI. Thankfully all tests came back normal. Great in that there is nothing seriously wrong but not so great in that I am no wiser about what could be wrong. Anyway I was referred to a hospital in Liverpool to further have my eyes examined since it has been found in the past that I have a few abnormalities regarding my eye movement. I won't go in ..read more