Giving Tuesday: Uplifting the Endometriosis and Infertility Communities
Endometriosis Support & Advocacy Services
by Casey McNamara
1y ago
Giving Tuesday is a great way to give back to the community after exercising one’s wallet on Black Friday and Cyber Monday. There are so many incredible advocates and nonprofits in the endometriosis and infertility communities. Diseases like breast cancer and heart disease are well-funded and well known, with billions of dollars being spent each year on raising awareness and coming up with new treatments. Meanwhile, endometriosis nonprofits who do not take Pharma money, struggle to raise funds, with the majority of their leaders doing the work in their spare time, while juggling full time emp ..read more
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Coping with The Holidays
Endometriosis Support & Advocacy Services
by Casey McNamara
1y ago
For so many, the holidays can be a stressful time, but it can be especially so for those struggling with endometriosis, chronic pelvic pain and other health challenges. The holidays can be time of obligation overload! Holidays work parties, friend and family social events, and additional items on the to do list that derive from holiday traditions, like intricate dinner planning and gift giving, can all add immense amount of stress and pressure to a person who is feeling overwhelmed on an average day. Those with endometriosis and other health challenges often feel like they are in physical cri ..read more
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The Gift of Accessible, Multidisciplinary Healthcare this Holiday Season
Endometriosis Support & Advocacy Services
by Casey McNamara
2y ago
Every year my family has a Christmas tradition of picking a tag or two off of an angel tree to help those who may be struggling this holiday season. As we scanned the tree this year, I saw this tag and my heart sank. This particular tag was for a parent gift, for a female labeled “Parent 1,” who was asking for a heating pad to use in the car. I started thinking about the life of this individual, the physical and emotional pain and all of the challenges that can come with being a parent with chronic pain. My experiences with working with patients in the endometriosis and fertility-building com ..read more
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The Inconvenient Truth Regarding Endometriosis Advocacy
Endometriosis Support & Advocacy Services
by Casey McNamara
3y ago
Women's Health Facts          “Big Pharma” is a term used to describe large companies that make money selling pharmaceutical drugs to patients.           Medical organizations like the American College of Obstetricians and Gynecologists “ACOG” and the American Society of Reproductive Medicine “ASRM” represent thousands of medical providers that treat patients.         Medical organizations publish practice bulletins based on peer-reviewed science based-evidence and expert opinion. These bulletins summari ..read more
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The Problem with the ACOG Website
Endometriosis Support & Advocacy Services
by Casey McNamara
3y ago
The ACOG's website reflects what is stated in their practice bulletin. We know there are serious problems with the policies and practices that the ACOG maintains regarding endometriosis. Their website is a tool to help patients and practitioners receive up-to-date guidance on diseases that impact their patients. Having wrong information is quite harmful and not only contributes to the delay in diagnosis that patients face, but also obstructs their ability to get proper and timely care. The ACOG even put forth the wrong definition of the disease on the site. If the ACOG cannot properly define a ..read more
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Mini Holiday Self-Care Support Program
Endometriosis Support & Advocacy Services
by Casey McNamara
3y ago
  The holidays can be a stressful and overwhelming time for patients! Often during this time of year, it feels like we are being pulled in many different directions, juggling many things all the while,  being stretched beyond our physical and emotional limits.  At the request of a few patients, starting the week of December 3rd, I am organizing a 5 week, online, mini holiday self-care program with the goal of providing support  to patients through the new year. This program aims to help patients manage stress and find viable ways to incorporate self-care into daily ro ..read more
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Dear ACOG...
Endometriosis Support & Advocacy Services
by Casey McNamara
3y ago
    September, 8, 2017     Dear Dr. Zahn, As the Vice President for Practice Activities for The American College of Obstetricians and Gynecologists, the person who oversees the “development of essential recommendations for best practices and other clinical guidelines for Fellows, such as Practice Bulletins, Committee Opinions, and Task Force Reports,” I am hoping you can help transform the lives of 176 million patients worldwide. Your Practice Division’s activities are wide-reaching in its goal to provide guidance to obstetrician-gynecologists in order to enhance and impro ..read more
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Petition to ACOG to Improve Standards of Care for Endometriosis Patients
Endometriosis Support & Advocacy Services
by Casey McNamara
3y ago
Below is a picture of what ACOG uses as the standard of care for the management of endometriosis:  If you do not agree with this standard of care or if you or someone you love has suffered because of a delay of diagnosis or a lack of effectual care, please sign this petition. ACOG needs to: Immediately confer with the endometriosis community to update their standards of care and management of endometriosis. We are asking that ACOG set up a public meeting with a panel consisting of patients, advocates, non-profit leaders and medical experts, to learn how their current standards are harmi ..read more
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ACOG Proposal: Improving Healthcare for Endometriosis Patients
Endometriosis Support & Advocacy Services
by Casey McNamara
3y ago
The American Congress of Obstetricians and Gynecologists: Improving Healthcare for Endometriosis Patients Casey Berna, Patient Advocate Proposal: By combining the knowledge and experience of endometriosis advocates and medical professionals, with ACOG’s dedication to “continuously improve health care for women and lead advocacy for women’s health care issues,” new standards of care can be set to treat endometriosis patients that will empower both patients and practitioners. Current Challenges in Endometriosis Healthcare Endometriosis can be overwhelming for both practitioners and patients. End ..read more
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Dear Infertility: Listen Up! National Infertility Awareness Week
Endometriosis Support & Advocacy Services
by Casey McNamara
3y ago
  Dear Infertility, Listen up! We have kept up a professional relationship for some time now. For the past few years, I have been working as a counselor and advocate with those whose lives you have impacted most.    But, it has been awhile since I addressed you personally.  I have some things to say to you.  I will be turning 38 years old this August. Exactly ten years ago, you were the center of my life.  I had tried conceiving naturally for some time with no luck. I had pushed my gynecologist to send me to a fertility specialist, even though she state ..read more
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