MS: nineteen reasons to not let go
Ireland, Multiple Sclerosis & Me
by willeke73
19h ago
There’s only one you, and that you are damn impressive, even if your MRI scans light up like a Christmas tree ..read more
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Revisiting ‘3443 Needles,’ Ireland Best Blog Post Award winner, 2018
Ireland, Multiple Sclerosis & Me
by willeke73
3M ago
In 2018, Ashville Media Group in Dublin, Ireland, organised the Ireland Blog Awards Competition. I was astonished to find out that '3443 Needles', a post I published on April 25th, 2018, won the Best Blog Post Award. The quick-witted article dealt with changing from daily disease-modifying injections to one weekly injection, and the positive impact of having to do so much less. A sincere thank you must be said once again,  but I also have a request, which is to ask you to repost this in the hope of it reaching people who have since its publication been diagnosed or are awaiting diagnosis ..read more
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MS, a riddle wrapped up inside an enigma
Ireland, Multiple Sclerosis & Me
by willeke73
6M ago
MS and I share a common denominator of perseverance until we defeat each other. Neither of us knows where it’ll lead to. MS may have superior knowledge about oligoclonal bands; cerebrospinal fluid; the blood-brain barrier; Dawson’s fingers and so on, but that’s where it ends ..read more
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The first day, 18 years later
Ireland, Multiple Sclerosis & Me
by willeke73
1y ago
Fiercely independent as always, my first thought was that, "Erm...wait, what?! No, I am not adapting to anything. No way. Nope. Nada. Not happening. With all due respect, Professor... I moved to Ireland 2 years, 6 months, 12 days and about 23 hours ago. That change you ask of me? Ain't happening ..read more
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MS: the lies we tell ourselves
Ireland, Multiple Sclerosis & Me
by willeke73
1y ago
Schadenfreude must be MS's middle name because it seems to enjoy the trouble it is giving you by dragging other symptoms along in an orgy of severe fatigue, numbness, cognitive issues, neuropathic pain, and trigeminal neuralgia ..read more
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Chronically ill and single? Screw Valentine’s Day!
Ireland, Multiple Sclerosis & Me
by willeke73
1y ago
You don’t care about Valentine's Day because, seriously, you don’t have to go shopping to find sexy lingerie that’ll only cut off your air supply while wearing it. You also don’t care because you know that the only thing you can find in a chocolate box is a raised BMI ..read more
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MS: starting over again?
Ireland, Multiple Sclerosis & Me
by willeke73
1y ago
Changing neuropathical pain medicines: not as easy as it looks ..read more
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Life with MS… legs on fire!
Ireland, Multiple Sclerosis & Me
by willeke73
1y ago
I just didn't know, and frankly, I couldn't care less. A teardrop more or less wouldn't shake my world into either accepting or destroying neurodegeneration. Call me Waterloo so if you like. Neither the battle that took place when Napoleon Bonaparte lost face, nor the Eurovision ABBA song Waterloo could undo any hardship caused by the hands of MS. I've been told my dancing to ABBA tunes is rather epic though. My singing, not so much, so I gave up the dream of being a Eurovision song contest winner by age 6 ..read more
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All about MS heat sensitivity, or Uhthoff’s Syndrome
Ireland, Multiple Sclerosis & Me
by willeke73
1y ago
If you're like me, or you or a loved one who has multiple sclerosis and doesn't know where to hide from warm temperatures, below posts may help you find an answer ..read more
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MS, a cognitive kerfuffle of sorts
Ireland, Multiple Sclerosis & Me
by willeke73
2y ago
Q: "Mmm… where did I hear that before because I know that I know it, only I don't know in which part of my brain I dumped it?" A: "I can't recall, so do forgive the cognitive malpractice of millions of fiery neural explosions lost on pathways made of concrete-coloured brain matter. It's not their fault." Footnote: While I make light of said idiocy in the upstairs chamber, I find it best to address it with a sense of musical humour. Hence, I sing 'Do I know or do I not?' sung on the song 'Should I stay or should I go' by the Clash ..read more
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