It's Official! The Polka-Dotted Penguin book has launched!
Evie the Extraordinary and Her Mommy: The Journey As We Go
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2y ago
It's official! My new children's book, "The Polka-Dotted Penguin" has launched today!  How fitting that my labor of love launches on Labor Day. The writing of the book and putting all the parts together took about a year. It was definitely a pandemic-worthy project.  I wrote this book because I wanted more books available for sharing with Evie's class for World Down Syndrome Day on 3-21 and for Down Syndrome Awareness Month in October. I'm happy to release my new book just in time for October! My hope is that this book will be used as a tool to start conversations with child ..read more
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Our New Book: "The Polka-Dotted Penguin"
Evie the Extraordinary and Her Mommy: The Journey As We Go
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2y ago
 Dear Evie Fans, I am so excited to share with you that my new children's book, "The Polka-Dotted Penguin," is coming out soon!  I've been setting up the hardcover, paperback, and electronic versions, and I'm close to the finish line!  Evie has read it and insisted on reading it to ME instead of the other way around. I'm very ok with that.  Here's a sneak peek at one of my favorite page spreads!  The reason I started writing this book was because I didn't feel there were enough books to choose from to read to Evie's class for World Down Syndrome Day.  I also wa ..read more
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Evie's Adventures in Storyland, from a sensory sensitive kid's point of view
Evie the Extraordinary and Her Mommy: The Journey As We Go
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2y ago
Hi Evie fans!  Our first post-pandemic trip was to the Storyland amusement park in Glen, New Hampshire!  Evie did well with the 2.5 hour drive--there was a lot of sing-shouting to Laurie Berkner songs on the way there.   About halfway to New Hampshire, I had the sickening feeling of realizing that I had forgotten all of Evie's carefully calculated and labeled blended food. :(   Mom of the year right here!  Thankfully, she isn't on formula anymore, and there was a super Walmart in North Conway, so we made a stop to buy a hand blender and some prepared foods for me ..read more
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Jumping and Friendship Crafts with Evie
Evie the Extraordinary and Her Mommy: The Journey As We Go
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3y ago
This Youtube video was at first made to showcase Evie's first real jump on a trampoline. Then it became a video with a message about making new friends, because I was just so impressed with how Qole gave Evie the space she needed to feel comfortable enough to say yes to getting on the trampoline.   And then as we were making a paper craft about friendship, and we were pulling out different pieces of color, I was struck with how it became a teaching moment for my daughter that people of all colors can hold hands and can look out for each other. May it be so. The world needs it now more t ..read more
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Evie's Double Whammy and Why I'm Speaking Up About Anti-Asian Racism
Evie the Extraordinary and Her Mommy: The Journey As We Go
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3y ago
My first memory of really recognizing I was different was in 4th grade in a mostly white town.  I was riding a different school bus with my friend to go to her house.  A boy (whose name I will always remember) started chanting "Ching chong, wah wah..." over and over again throughout the bus ride.  I ignored him. I had no power on this bus. I was stunned that a boy I didn't know would tease me like that. I went home and told my parents, and my dad joked about it, saying next time I should tell him he speaks "Gobble Gobble." We all laughed, and laughing was what I needed that nigh ..read more
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Evie Plays with Potato Head
Evie the Extraordinary and Her Mommy: The Journey As We Go
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3y ago
We are up to 121 subscribers in 2 months!  Please click Like and also Subscribe so that we can reach the 1000 subscriber requirement to be on Kids YouTube (right now we are on regular YouTube, in a vast sea of home videos. :)   We would love to have representation of kids with Down Syndrome on YouTube, so that other kids see that differences can be special!  Thanks for subscribing and spreading the word!  ..read more
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Evie's new movie channel on YouTube!
Evie the Extraordinary and Her Mommy: The Journey As We Go
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3y ago
During the pandemic, Evie and Mommy have ventured into the art of making videos.  Once we became better at it, we started a Kids' Youtube channel, called Evie the Extraordinary!  My goal in these videos is to show our audience that Evie is more alike other kids than different. Sure, her expressive verbal skills are slower to develop, but her receptive skills are all very much in tune, and it's so fun to show everyone how smart she is!  I mean, the kid taught herself to read!  Evie's favorite movies we've made so far are the Ice Cream truck episode and the Juice making episo ..read more
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Evie's Last Step--A Tubie Journey
Evie the Extraordinary and Her Mommy: The Journey As We Go
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3y ago
Hi friends, Evie is 6 years old and has had a feeding tube all her life. Yesterday was the first day ever that she had no formula put through her g-tube.   At 5 weeks old, we broke out of the NICU (finally!) after getting a g-tube placed in her stomach so that she could gain weight at home. We started from using an overnight feeding pump and feeds every 3 hours on Pediasure formula, and praying she wouldn't spit up or set off her pump alarm overnight.   We then figured out how to space out the feeds to transition from a NICU schedule to a real-life schedule.   We then dealt ..read more
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Evie's Favorite Masks
Evie the Extraordinary and Her Mommy: The Journey As We Go
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3y ago
 Hi all!  This is Evie, and I want to share with you about my favorite masks. Mommy tried a few different types, and this is the one that I don't whip off right away.  Why is this type my favorite? I think because the ear loops fit me well and don't make my glasses fall off.  Mommy likes that they are made of cotton muslin and the ear loops are adjustable with a plastic adjuster.  Mommy asked the Etsy shop owner if she would share a promo code with me and my friends, and she said yes!  If you search for BeWellGroup in Etsy, you can use the promo code "EVIE20" a ..read more
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Quarantining with Evie
Evie the Extraordinary and Her Mommy: The Journey As We Go
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3y ago
Quarantining with a preschooler (soon to be kindergartner) is both wonderful and terrible.  Mostly wonderful. But sometimes I feel like I'm doing a terrible job as a mom and as a sudden teacher.  And then other times I feel like I deserve an award for working my full-time job and still teaching her things.  I oscillate between these feelings as fast as I find snacks throughout the day, because why not?  Here are some things Evie has learned during this time of quarantine: 1.  How to say I Love You.  As of August, she now says, "I love you SOOOOO much!" 2.  H ..read more
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