Does anyone else get offended by certain things like this….? Obviously no one knows this but my feelings are still hurt when someone mentions how my daughter has all this hair and my son has none and “why” or how my baby is so bald. He wanted to go running with mom and dad today and was doing the best he could. He’s been in remission but the chemo still takes a toll. But even today he didn’t even want to get in the stroller today I was so proud. It just hurts my feelings when people say things I’m sure others can relate? submitted by /u/CassieLeeLeeLee [visit reddit] [comments ..read more

Hello! My name is Diana. I'm here for the first time. My friend has acute myeloid leukemia. No genetic damage, no mutations. 45 y.o. He started with 58% blast cells. Did the first chemotherapy "7+3". decreased to 20% blast cells. He did the same chemistry again. And now 50% blast cells. Is there anyone here who has had a further third chemo? FLAG. Did you manage to achieve remission and undergo transplantation? How long has it been since the transplant? we are upset now. Thanks for any ray of light! submitted by /u/Diana_Twinkle [visit reddit] [comments ..read more

I have aml I’m 19 and the doctors told me I have a slim chance of surviving a bone marrow transplant 1/20 and without it I’ll die I’m scared haven’t told my family yet I don’t know how to tell them I’m probably gonna die submitted by /u/Lucuiou [visit reddit] [comments ..read more

Not sure what else to say but went straight from labor and delivery to the oncology ward at another hospital. Baby had to stay behind. Shock is still wearing off and not sure what to do, just feeling a bit weepy and tired and alone. Dad is with baby and our 2 older kids. submitted by /u/Able-Mix-7620 [visit reddit] [comments ..read more

Hey I'm Esther! I'm 14 and have been living a... interesting life. I'm a youth activist in the Democratic Socialists of America fighting to try to protect basic human rights and dignity in my state Alabama, I'm a cliff climber and a caver who is the youngest member of a local cave conservation and exploration society, I'm also a classical guitarist! I've been on a great round of luck with a boyfriend who I love very much who loves me too but now well, blood tests and all that and am waiting to see if I have leukemia. My doctor told me it was very likely and my mom who was a nurse for 20 years ..read more

My dad has been diagnosed with aml and his specific mutation is called DDX41. All the information I'm finding online is like very medical jargon. Has anyone had this? Ever heard of it? Know about it? submitted by /u/PMOFreeForever [visit reddit] [comments ..read more

Hi everyone, just writing this to get it off my chest a little bit. My dad (70+) had a BMT in September, for atypical CML. He was doing great, his numbers were perfect and he got his energy back much faster than we expected. But over the last month, his numbers dropped a lot and he was called into the national center for an emergency appointment, a bone marrow test, etc. We are going back tomorrow to find out more. They are saying they might try giving some white bloodcells from the same donor that gave him the bone marrow. I feel like I was almost being a bit naive, thinking that he was all ..read more

What's the normal range and how long did it take you to get there? submitted by /u/Previous-Switch-523 [visit reddit] [comments ..read more

Curious if anyone can help me ease my moms mind: She’s 68 and was diagnosed with PH+ ALL back in December and her doctors are starting her on blinatumomab autoimmune therapy this week. I’m wondering if anyone can share their experience on how that went for them. We get the basics but wondering if anyone has any tips, tricks, could share the good, bad and the ugly that would be so helpful! I won’t share the bad/ugly her as my mom is unfortunately a glass half empty type of person and she just thinks this next stage is a death sentence, it’s more for me and my curious mind. My mom is honestly d ..read more

Hello everyone ❤️ Just checking in to see if anyone has an experience to share. Dad has CMV encephalitis. Thankfully, no symptoms, was just caught in routine MRI and lumbar tap was positive. The first 2 lumbar taps showed improvement in viral load from 20,900 to 6,500. The 3rd lumbar tap last week still detected CMV by PCR but counts aren’t out yet. Peripheral blood shows huge improvement as well. He goes to get Foscarnet everyday. It’s been a month and a week since he started therapy for it. Does anyone have experience on CMV in CNS? Was antiviral meds enough to clear it in the CSF? Thanks i ..read more