Looking for Research Participants
Reddit - Pediatric Cancer
by /u/koyashope
6d ago
Hello, my name is Komal. I am a graduate student in the Kinesiology department at SFSU. I am researching the role of parents in the motivation to perform physical activity in pediatric cancer patients. I am looking for parents/guardians of children aged 6-12 years old who have been diagnosed with or have had pediatric cancer and are actively involved in their child's care. The study involves doing a survey and an interview over zoom. Please dm me if you are interested! submitted by /u/koyashope [visit reddit] [comments ..read more
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My Health Journey App
Reddit - Pediatric Cancer
by /u/PineappleHead123555
2w ago
The My Health Journey App is designed to help children between the ages of 5-15 navigate their health journey. Hoffy, the Sloth serves as a companion from diagnosis to post-treatment care. The app features interactive scenes and mini-games, helping families explore challenges such as the first doctor’s visit, taking a blood sample and managing hair loss during chemotherapy. If you're interested in delving deeper into the BTF app and understanding how its tailored to support children throughout their treatment journey, feel free to click on the following link to explore our website: BTF App De ..read more
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End of chemo treatment
Reddit - Pediatric Cancer
by /u/MacAttack418
1M ago
I have a dear friend whose son is ending treatment the day before his 5th birthday. Exciting all around and I want to get a gift to commemorate the day. Does anyone have any suggestions?? submitted by /u/MacAttack418 [visit reddit] [comments ..read more
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Novel combination therapy offers promising results for treatment-refractory hepatoblastoma
Reddit - Pediatric Cancer
by /u/Chipdoc
1M ago
submitted by /u/Chipdoc [visit reddit] [comments ..read more
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How did you know your toddler had leukemia?
Reddit - Pediatric Cancer
by /u/aria4088
1M ago
I have our pediatrician appointment set in 2 days but I can’t focus at all until then. Last week, my son had Petechiae on his front and back neck, about 1 day apart, one after the other. This preceded a 3 day fever during which he was extremely lethargic and lacked any other symptoms (no congestion). I’m on my way to my daughter’s soccer practice and I’m just in an all messed up state. What have been your experiences, and has anyone had petechiae coupled with fever (and no other conditions) end up being another condition like CMV? submitted by /u/aria4088 [visit reddit] [comments ..read more
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NICU and PICU Parent Support Services - Anonymous Survey for Class Project
Reddit - Pediatric Cancer
by /u/pre-med-researcher-2
1M ago
Calling all past or present NICU/PICU parents! Hi all! My name is Megan Michaels, and I am a college student, currently taking a course exploring healthcare issues. I joined this group as I am passionate about investigating the psychosocial and financial support services that are provided to parents who have had a child admitted into a NICU or PICU in a hospital in the United States. As support services are currently being accessed by parents and may or may not be bettering the inherently stressful situation a hospitalization may cause, I believe that more research should be done to determine ..read more
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Medical field
Reddit - Pediatric Cancer
by /u/baska_taska
1M ago
Hello! I am 5th year med student, finishing next year. I am trying to find my future field, for me it is very important what I will do … until now I was heading into plastic surgery, but I am more team player than “one man show” like it is in plastics, thats one of the few things I learned about myself lately. What character traits do you think ped oncologist should have? How am I able to find out if this is really for me? Deeply in my heart ped oncology is something I feel fullfiled. Thanks. submitted by /u/baska_taska [visit reddit] [comments ..read more
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Ways to cover central lines
Reddit - Pediatric Cancer
by /u/Amiiblee
1M ago
Hi all - Our son was diagnosed with neuroblastoma and we’ll soon be having a Hickman line placed. He’s 11 months old and very active - does anyone have any recommendations on how to cover the lines in a way he can’t pull at them, or how to make it more comfortable for him? Also wondering about outfit recommendations - I was thinking about finding sleepers that zipped both ways, hoping to find some snug enough to help keep the lines in place. Also if anyone could send advice on how to handle central lines please do. I’m incredibly anxious about him having one placed and making sure it doesn’t ..read more
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Retinoblastoma
Reddit - Pediatric Cancer
by /u/chkimben
1M ago
My baby was just diagnosed with retinoblastoma today. We are getting an MRI tomorrow but we are in complete shambles. I need to know if anyone here has gone through this or can offer any info/advice? submitted by /u/chkimben [visit reddit] [comments ..read more
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Stage 4 osteosarcoma
Reddit - Pediatric Cancer
by /u/Correct_Way_6547
1M ago
I dont even know where to start. My son was diagnosed with autism when he was 4. He has done so well to overcome that. He is now a out to turn 17. At the end of the school year he was diagnosed. We had been to the er a couple times and his dr, we were told growing pains and maybe something muscular. Then it was painful to walk, he was crying through the night and bending his leg was getting difficult. It was a tumor. By the time it was found it had metastasized to his lungs. 2 weeks before christmas we were told we are focusing on "prolonging his life". He is my mini me, his brothers best fri ..read more
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