Dear John: Lupus in a Pandemic
Lupus Interrupted | Changing The Game Of Chronic Illness
by Brynja Chleirich
3y ago
Nothing like a global pandemic to bring the blogging back from the depths of The Void, but here we are! So here’s The Thing: Since the end of February, I haven’t even gotten my head wrapped around my normal, somewhat chaotic (re: bat-shit crazy) life, when the pandemic started. Here’s a quick recap, for those unaware: February 24th; was involved in a motor vehicle accident when a driver blew through a red light. Jarring on impact = whiplash, mild concussion, and a flare-up of every condition and old injury I’ve ever had in my life. Missed a week of work. Missing a week of work was……….an issue ..read more
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If Brain Trolls were Boggarts
Lupus Interrupted | Changing The Game Of Chronic Illness
by Brynja Chleirich
3y ago
There is currently an immeasurable number of thoughts going through my brain at any given moment as of late. Like, a Googolplex of ’em. And, I’m tired. Exhausted. I am trying everything from finding #gladitude (the smallest of pleasurable things you’d otherwise not have noticed) to talking, to desperately trying to redefine my “self-care” practices as what once worked, may no longer. My nerves are shot. Just the sound of the neighbour’s kids thumping up and down their stairs next door makes me want to stab my own ears with a spork. The dog licking. The kids chewing. All of it. It’s getting WAY ..read more
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The Burden of Lupus #BellLetsTalk
Lupus Interrupted | Changing The Game Of Chronic Illness
by Brynja Chleirich
3y ago
Funny thing, mental illness, when dealing with a chronic disease: It’s not very fucking funny at all. Like, ever. In fact, as we arrive at yet another year of fundraising for yet another chronic issue, mental health, there’s a plethora of feedback on my Facebook and social media feeds regarding whether or not “One day isn’t going to make a difference.” It does. It always will. Because, I would like to highlight, Lupus (in my world) has a Walk. That’s “One Day.” Cancer has marathons and pink boobies races/walks. That’s “One Day.” MS has bike rides. Prostate cancer has motorcycle rides. “One Day ..read more
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To Choose a Memory…
Lupus Interrupted | Changing The Game Of Chronic Illness
by Brynja Chleirich
3y ago
I did A Thing. Again. I made my way for the annual Kaleidoscope Gathering to connect and join with hundreds of my friends to celebrate our spiritual communities and share the gifts of Time and Knowledge. I’d had a bit of a snafu getting there this year…but, being the theme was “Cosmos”…I was not going to go down without punching Lupus in the proverbial junk. See, I was leaving three days after yet another, though final, chemo infusion. I was puking up until the night before, after working my shift, after trying to do All The Things to ensure my younglings had everything set up for them prior t ..read more
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Coffee, Cosmos & Cavies on #WorldLupusDay
Lupus Interrupted | Changing The Game Of Chronic Illness
by Brynja Chleirich
3y ago
World Lupus Day May 10, 2018 It’s been real, ya’ll. Trying to manage All The Things in the midst of a STOOPID crazy flare (fibro *and* lupus). And, by “stoopid”…I mean bat-shit crazy levels of “oh my gods I want to run head first into a fucking wall…”  Then, one of my guinea pigs passed away. Y’know when you’ve been bottling shit up for eons, but don’t really know you’ve been bottling shit up, even though you probably sorta-kinda also should know you’ve been bottling shit up and then that ONE thing happens and…SPLOOSH…floodgates open down to the very fibre of your essence? That happened ..read more
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It’s a Lupus Inter-versary!
Lupus Interrupted | Changing The Game Of Chronic Illness
by Brynja Chleirich
3y ago
It’s totally a word. Because, reasons. Here I sit, finally at my laptop, writing on a blog (I just typed “blag” because it’s been One Of Those Days) that turns SEVEN YEARS OLD today! Facebook reminded me of of something I’d posted seven years ago (I think it was that I’d joined Facebook) and I remembered it was end of March and “hey-didn’t-I-start-my-blog-around-this-time” went through my mind powers. Indeed. Seven years ago today I’d started Lupus Interrupted with a hope to help friends and family understand Lupus and all of its dastardly ills. Seven? Honestly? It doesn’t feel right. I went ..read more
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It wasn’t time to sail…
Lupus Interrupted | Changing The Game Of Chronic Illness
by Brynja Chleirich
3y ago
I didn’t know how to re-start writing again. I tried, then, I stopped. Then, I tried, then, I deleted. THEN, I was like, “Omfg just fucking WRITE! Something, anything…anything at all.” I always seem to pop on to write when things are really snafu’d and weebly-wobbly, timey-wimey levels of bat-shit crazy, or just plain shitty. Like, spring cleaning of a yard of dog-shit, levels of shitty. Now is that time. Just fair warning. But first!! Let’s start with how this little cyclical  writing is gonna throw down: Lupus Fibro Attempted Murder A boat “Wait, what?!” The problem with wrapping ones ..read more
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A Canadian Journey Through Medical Marijuana: Part 2
Lupus Interrupted | Changing The Game Of Chronic Illness
by Brynja Chleirich
3y ago
Sealed up like a CSI package, I swear…. It’s been a few weeks since my “package” arrived. All wrapped up like an evidence bag, furthering my irritation at the stigma attached to medical marijuana, yet satisfying my need to have some anonymity. Ironic, isn’t it?   I have been waiting for this moment for MONTHS. Application snafu’s, time to process, yadda yadda….and now that it’s here? Frustrated as fuck. So many reasons. Grab a cuppa and let me tell you all about it. I now have marijuana in my house. I cannot even BEGIN to articulate the psychological issues I’m having with it being in my ..read more
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Friday #gladitude!!!
Lupus Interrupted | Changing The Game Of Chronic Illness
by Brynja Chleirich
3y ago
It’s funny. Not really funny, “ha ha!,” but funny in a, “you’re kidding me,” kind of way…y’know…how I always seem to manifest a magical (I’m supposed to do this weekly) #gladitude post on the days I really, REALLY, uber-extra need to find said #gladitude. Today is that kind of a day. What is YOUR #gladitude?   #gladitude is the purposeful choice to find those little, small, even minute things, experiences or moments that would have otherwise gone unnoticed in the regular “made-for-tv-movie” version of your life. We’d had a brief couple of days with sun this week…as Ottawa is inching it’s ..read more
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The Self Care Key of “Me.”…
Lupus Interrupted | Changing The Game Of Chronic Illness
by Brynja Chleirich
3y ago
It was like an epiphany! Not the kind that smacks you upside the noggin’ like a Mac Truck, no, but an epiphany nonetheless. I’ve been struggling to get the self care back into my routine because, amazingly enough, I am actually MORE productive if I’ve had time to do The Things that make me “Happy.” Seems simple enough. I’d spent the majority of last year working on finding the these very things, activities of some kind, that allow me the escapism to regroup and refresh and generally NOT end up on the News at 11. The best escapism for me is, video games. I’m not particularly good at them, no…bu ..read more
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