My life is ruined, I can’t do anything anymore. Nothing makes me better, it’s just hospital visit, after hospital visit, AFTER FUCKING HOSPITAL VISIT. I’m 13 and wasted half of my teenage years so far in hospital. It’s so unfair, I have nothing to do anymore cause I’m either in pain, or anxious about needing the bathroom. The steroids make me looks absolutely hideous, I barley sleep at night and when I do I wake up about three times with nightmares? I’m so tired. I miss my life before I got sick, I can’t have fun anymore. Will it ever TRULY get better? Will I be this miserable forever? submi ..read more

In my second colonoscopy my transverse colon looked like it basically collapsed, has this happened to anyone else? My doctor wrote it as "loss of architecture of colon". She also said my colon was really sluggish in movement. submitted by /u/kzachyt [visit reddit] [comments ..read more

Hello all, I’m gonna talk to my doctor about this I just want to know if anyone else has had a similar experience. I went to the doctor for mucus in my stool and blood as well. I had my colonoscopy on March 14th and afterwards the doctor said I had from colitis in my rectum up to my left side and ileocecal valve (which is the opening between the small and large intestine and I’ve read that that can be something with UC) and it was not patchy colitis. The doctor said it was more like UC than crohns. I got the biopsy back and it said that it was colitis and not crohns. My symptoms also align mo ..read more

Hi everyone! Has anyone who has been on stelara had chronic fatigue dissappear on a different medication? I know stelara often makes people tired for a day or two after injection, but I am asking about fatigue lasting weeks to years while taking the medication. For context, Stelara has worked great for my gi inflammation as seen on a scope and biopsy, but I continue to experience disabling fatigue for the course of the 4 years I've been on it. I hate to switch to a med that might not reduce gi inflammation as well, but we have systemically eliminated typical causes of fatigue: low iron, anemi ..read more

Hi everyone! My 2.5 year old has had Gi issues her whole life. She has a diagnosis of a rare metabolic disease (a form of carb malabsorption ). Since treatment - dietary and medicine - it has improved her symptoms a ton but not completely. Her stool ph improved a lot, but is still low with ongoing chronic diahhrea. She also has a confirmed dairy allergy and has been totally dairy free for 2 years. Her GI recently ran a # of stool tests which all came back normal ( Giardia/Cryptosporidium, stool culture, GI Profile stool PCR and C difficile Toxins A+B, ElA). The one result that came back quite ..read more

Hello, my son is 19 and has been having blood in the toilet for about six weeks. Yes we’ve gone to his PCP, who did standard bloodwork which all came back normal (except a slightly low Vit D). Oh and the first time we went, calprotectin was 499. High, right? Doctor recommended a low fodmap diet, and he’s been following that carefully for about four weeks now. There are blood blobs (clots?) in the toilet, that seem to have come out WITH the stool, but doesn’t look like blood is within the actual stool itself, if that makes sense. Most days, he sees blood (bright red), in the toilet and on the ..read more

So this whole immunity comptomized thing is hitting hard this year. I had Covid in January (only one in my house hold to get it) and got healthy and was doing great and Friday I got a sore throat and sinus trouble toughed it out through the weekend and began losing my voice went to the doctor negative for strep/covid/flu etc. could be sinuses or another virus. Long story short my husband really looks down on not going to work. I’m an art teacher 6,7, and 8th grade high stress and constant motion. I lost my voice completely after 30 minutes and cannot stop coughing. I see the importance of tak ..read more

My wife's been suffering from chronic diarrhea after she had a C.Diff infection. She's being followed up in one of the countries best university hospitals for the last 15 months, in which she's been hospitalized (malnutrition, dehydration and overall (nerve) pain attacks) for over a dozen times (up to 4 weeks). She's had probably every medicine to try and reduce her chronic diarrhea, but she keeps having 10 bowel movements a day, losing up to 1.2 liters of fluid while barely consuming 500 ml (rest is done by saline baxters). Not trying to get a diagnosis or something here, almost half of the ..read more

What supplement should I try? So for context I'm a man that's 22 and I've been recently diagnosed with crohn's disease at the terminal ileum but I put it in remission pretty fast with oral budesonide. I keep having these neurological symptoms like: -a strange buzzing/electrical shock feeling in legs and arms -sore tongue -sore lips -numb feeling around the nose, lips and the roof of my mouth -some ocassional twitching (been having this for 2 years but it got worse in the past 2 months) -itching of the skin I've done an ENMG (Nerve study + EMG) and it came back clear. Has anyone else experienc ..read more

hi all, background: i am 28f 130 lbs i have dealt with bowel issues since a child, often after eating ~ severe pain, constipation, and nausea followed by vomiting if i happened to like too much of something, unfortunately. i have seen lots of doctors over the years for the array of symptoms, and they said i had general ibs as a 10 yr old, but nothing was ever done other than being told to remove dairy and gluten. didn’t help. (also lots of kidney problems, figured that one out) the gut problem remains a mystery. my current pcp thinks my issues (diarrhea, constipation, nausea, dark stools, mu ..read more