One Soul
Lewy Body Dementia
by Gary C.
1M ago
My wife passed away last year due to complications of Lewy body dementia (LBD). Naturally, I have spent much time reflecting on our life and her journey that we shared together. I have listened to many caregivers relay their stories and express their frustrations while caregiving. I hope that my reflection might offer a little comfort and maybe revelation through your own journey as caregivers. I am not a doctor, and I don’t have any formal expertise; I’m just a former caregiver who cared, like you. I have come to believe that there are three main types of caregivers for those caring for loved ..read more
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Living with REM Sleep Behavior Disorder
Lewy Body Dementia
by Norma Loeb
4M ago
Written by M of NY, a Caregiver to her Husband: Several years ago, my husband began, some evenings, yelling and laughing, punching the air, and flailing his arms and legs around in his sleep–even once throwing himself into a corner of the nightstand. Other times, he had minor muscle jerks in his hands and legs, all without waking up. He would have no memory of these experiences in the morning, or if I woke him up during one of these times. To stay out of harm’s way in the evenings, I’d move to another bed to sleep. We had purchased a larger mattress, for more room for him, but that did not hel ..read more
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Struggling with Changes and Finding Support
Lewy Body Dementia
by Norma Loeb
8M ago
Written by M of NY, a Caregiver to her Husband: A topic I feel is very important is the loneliness of having a life veer off course from a newly diagnosed serious illness. You have already begun to notice things you don’t understand, and this can be confusing and unsettling. Knowing you are part of a community of people and their partners who are living with this illness, that you have peers to talk with who know what you are talking about, and that everyone has language for this conversation, is valuable. Even once you have been given the name for the illness, the early stage of living with L ..read more
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Coping with Hallucinations and Delusions – Part II
Lewy Body Dementia
by Pamela Rosenblum
11M ago
In the previous blog about Hallucinations and Delusions, we addressed handling the more simple, non-frightening hallucinations and how to keep from escalating the situation. But what to do when the person with LBD is experiencing a hallucination that is extremely frightening and by its very nature, throws the situation into a delusion that must be handled and dispelled to keep the person calm and safe. A person hallucinating is seeing (or hearing, tasting, feeling) something that in reality is not present. Most often it involves sight, but other senses can be involved as well. A delusion is a ..read more
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Coping with Hallucinations and Delusions – Part I
Lewy Body Dementia
by Pamela Rosenblum
11M ago
Being with a loved one who is experiencing hallucinations is a disconcerting experience and can actually feel very frightening. In this blog, we will address “simple” hallucinations. In part 2, we’ll talk about the more complex situation of delusions with or without hallucinations. Fear is often our first reaction when our loved one with LBD sees things that aren’t there, because it makes us feel disoriented and out of control. But it is often nothing to be frightened about. So, with the initial realization that your loved one is seeing something that is not there… Take A Breath. This may feel ..read more
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Auto Draft
Lewy Body Dementia
by Tony
1y ago
The post Auto Draft appeared first on Lewy Body Dementia Resource Center ..read more
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How Antipsychotics Affect People With Lewy Body Dementia
Lewy Body Dementia
by Sani Golriz
3y ago
If your loved one is among the 1.4 million Americans living with Lewy Body Dementia (LBD), you may be surprised to learn that many common antipsychotic medications can cause severe side effects. This is even more important to be aware of if your loved one hasn’t yet received a Lewy Body Dementia diagnosis. Since LBD is often challenging to diagnose, many individuals with the condition are misdiagnosed in the early stages and given medications that cause adverse effects. Here, we share more about how antipsychotic medications affect those with LBD and what to look out for: Why Individuals With ..read more
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Activities to Sharpen Your Mind During Quarantine
Lewy Body Dementia
by Norma Loeb
3y ago
The coronavirus pandemic has been a difficult time for all of us, but it’s been especially challenging for individuals with dementia. Many care partners have noted increased instances of disrupted routines, resulting in accompanying problems with memory, mood, and sleep. If someone you love is among the 1.4 million Americans affected by Lewy Body Dementia (LBD), you may be interested in finding creative ways to stay engaged during quarantine. Here, we share simple and fun ways to sharpen the mind that you can incorporate in your routine. Dancing Physical activity is often beneficial for those ..read more
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Sleep Disorders Associated with Lewy Body Dementia
Lewy Body Dementia
by Norma Loeb
3y ago
Lewy Body Dementia (LBD) is the second most common type of progressive dementia and approximately 1.4 million Americans have been diagnosed with this condition. Since Lewy Body Dementia symptoms are often similar to other diseases, it’s notoriously difficult to diagnose. However, receiving a timely and accurate diagnosis is essential for treating the disease appropriately. Symptoms of Lewy Body Dementia often include sleep disorders in addition to changes in cognition, movement, and mood. Here, we share more about the sleep disorders associated with LBD so you can be aware of what to watch fo ..read more
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How COVID-19 Is Affecting Those With Dementia
Lewy Body Dementia
by Norma Loeb
3y ago
As the COVID-19 pandemic rages on, those with dementia may be having a particularly hard time coping with the many changes to daily life. If your loved one is among the 1.4 million Americans who have received a Lewy Body Dementia diagnosis, you may have noticed a worsening of symptoms. Here, we share more about how the pandemic is affecting those with dementia and offer tips to help you and your loved one adapt: Why the Pandemic Can Worsen Dementia Symptoms Individuals with progressive dementia often thrive with a routine. The COVID-19 pandemic has disrupted routines for most people, from tho ..read more
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