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Me to anyone who has asked me how I’ve felt this week:  ..read more

So my referral for Shands came through today, but I almost feel like it’d be a wasted trip. From what I’ve read, Entyvio is supposed to be the best thing out for IBD right now, but my parents keep reminding me about Sterlara. At this point, I feel like I’m just bouncing around from treatment to treatment. I’m afraid I’ll get the answer that this is as good as it gets, but I plan to call on Monday and make an appointment anyway ..read more

Spent the better part of my day in a Benadryl coma and it wasn’t until I asked whoever was talking to shut up that I realized I had fallen asleep watching The Golden Girls, so I hope that gives you a little insight into my life. Also, my port didn’t work today. Go figure. Who even knows at this point.  ..read more

My referral for Shands, a hospital that’s the best in the state for GI related illnesses, came through today. It’s located in Gainesville, about three hours from where I live, so it’s more than likely going to turn into an overnight trip, but hopefully this will mean better answers coming soon.  ..read more

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I haven’t posted in a while. After being diagnosed with Fibromyalgia, my symptoms stemming from that, going back into a severe depressive state and trying to deal with my Crohn’s symptoms at the same time has made life kind of….shitty as of late. No new info to add. Just trying to not give into all of my self-destructive tendencies.  ..read more

universitywithmecfs: bpd-hyena: Thing is, when it comes to a chronic illness, physical OR mental, there isn’t a ‘feel better’ or ‘get well soon’. Sometimes that isn’t an option, and there will never be a ‘better’.  So instead say: “I hope your symptoms will become more manageable” “I know your having trouble with x and I’m here for you if you need it” “If you need help I’m here” “I can try to offer advice or comfort, or would you like some space?” “I’m sorry today was hard.” “Would you like to talk about it, or do you want to get your mind off of it?” Or simply: “I don’t ..read more

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