Building Good Relationships with your Medical & Surgical Teams
Young Crohn's | Adventures with a Chronic Illness
by Admin
1y ago
I don’t remember the exact moment my health step up another level, but somewhere around October 2011 – yes, way back then – my disease began being labelled as ‘complex’ Crohns disease. I didn’t know what that meant at that time, but it didn’t sound good. In reality, I learned that it meant I had strictures in my bowel which typical medications wouldn’t solely solve. I would eventually need surgery to remove them or correct them. I did in fact need those surgeries, but many years later. I was also deficient in many key nutrients, was anaemic requiring iron infusions (seen below) and was a very ..read more
Visit website
How to Make the Most of your F2F, Telephone & Virtual Appointments
Young Crohn's | Adventures with a Chronic Illness
by Admin
1y ago
William Osler once said, “a good physician treats the disease, whereas a great physician treats the patient who has a disease”. As the pandemic changed how healthcare was delivered for those with chronic conditions; who still required medical attention during lockdowns and the subsequent period after, there has been such a great desire for appointments to take place in a variety of different ways. And for most, having a choice of how their appointment is delivered, is a huge step forward. Imagine, you are feeling unwell and travelling to and from the hospital is tricky or painful. You know you ..read more
Visit website
Let’s Talk About: Infusions in IBD
Young Crohn's | Adventures with a Chronic Illness
by Admin
1y ago
Welcome to my new mini-series, ‘Let’s Talk About” a place where I’ll be breaking down barriers to commonplace situations within IBD care. I’ve had Crohn’s disease since 2011 and have had a lot of both positive and negative experiences in my care within that time. I want to lessen the emotional burden of having IBD on the newly diagnosed as well as those who are established but experiencing new challenges. I’m always open to new topics for discussion, drop me an email or a message on my IG account here. Bar about a year or so, I’ve always had my IBD medication as an infusion. So for me, this is ..read more
Visit website
Coming out of IBD Remission
Young Crohn's | Adventures with a Chronic Illness
by Louise
2y ago
I’ve had a lot of time – a decade – to think about remission.  When my doctors said remission to me back in 2012 – I was less than a year into my official IBD journey – and I honestly thought “great, that’ll make things easier! Welcome back to normal life!”  I feel pretty foolish now because nothing about remission then was easy. It was harder than flaring because I didn’t know or fully understand all of my triggers. And they would ebb and flow as time went on. I learnt alot during the next six months to a year when I became so fearful of needles  – I was doing Humira injections ..read more
Visit website
Misconceptions about Living with a Chronic Illness
Young Crohn's | Adventures with a Chronic Illness
by Admin
2y ago
“When they said chronic I didn’t think. They meant every single damn day.” Chronic and invisible. Double whammy. Despite there being so much information out there about the basics of IBD, we as patients still experience misconceptions and misinformation throughout our patient journey. We need to do so much more to break down the barriers, stereotypes and general misconceptions about how we are perceived, living with a chronic illness. Below are twelve things I think are quite big misunderstandings about living with the general term ‘chronic illness’. Misconception 1: The way a person look ..read more
Visit website
PTSD & Medical Trauma
Young Crohn's | Adventures with a Chronic Illness
by Louise
2y ago
NB: This post talks about post traumatic stress disorder and medical trauma. If you find anything in those two subject areas triggers, please do not continue to read onward. Most people probably believe that PTSD only affects veterans, victims of sexual assault, or people who have witnessed death or tragedy. How could someone with chronic illness be in that same category? However, research indicates that people with chronic health conditions may be at risk. What is PTSD? Post-traumatic stress disorder (PTSD) is an anxiety disorder caused by very stressful, frightening or di ..read more
Visit website
Why Are PICC Lines used in IBD?
Young Crohn's | Adventures with a Chronic Illness
by Louise
2y ago
I’ve been on biologics for almost all of the time I’ve had Crohn’s Disease, which is a decade now. That is a lot of needles and IVs and as a result, my veins are troublesome. In recent years, Its become very difficult to get cannulated for infusions, surgeries and even draw blood. This wasn’t going to be such an issue when I could switch my current medication – Vedolizumab – from IV to subcutaneous injections at home, but I’ve developed an adverse reaction and back to infusions I went. As I can imagine, I was dreading getting an IV. It was always very painful – even though I’d become used to t ..read more
Visit website
Things I now Love about Living with a Stoma
Young Crohn's | Adventures with a Chronic Illness
by Louise
2y ago
If you’ve been following me for a while, you’ll know I live with an ileostomy – a type of stoma formed from the small bowel – after losing my colon to Crohn’s disease. Read more about my stoma and my journey here. Now having a major organ removed isn’t exactly easy. Nor is it straightforward. The surgeries performed to create stomas aren’t quick or without their complexities. But hopefully the reward – living without pain, disease or tumours in the colon – is worth it. But living with a stoma.. its a tricky business. For me, it’s been a love/hate relationship. I’ve had mine for 6 years now and ..read more
Visit website
When might you need a Liver Biopsy with IBD?
Young Crohn's | Adventures with a Chronic Illness
by Admin
2y ago
What does the liver do? One of the jobs of the liver is to act as a “processing plant,” taking in what we ingest and helping to break it down into waste as well as useable materials. The liver also produces cholesterol, acids, and bile salts that get stored in the gallbladder until required to help break down ingested fats. How IBD affect the liver? In some people with IBD, the liver can become inflamed or damaged. Most liver damage is reversible, but the serious liver disease can affect about 5% of people with IBD. Unfortunately, some drugs used to treat IBD may also damage the liver. Common ..read more
Visit website
The Digestive System Ebook
Young Crohn's | Adventures with a Chronic Illness
by Louise
2y ago
The post The Digestive System Ebook appeared first on ..read more
Visit website

Follow Young Crohn's | Adventures with a Chronic Illness on FeedSpot

Continue with Google
Continue with Apple
OR