A Plea to the Politicans of Ontario
Jacob's Healing Rooms
by
3y ago
Dear Politicians, Today is World Health Day; a day to help promote healthy communities, and the importance of healthcare worldwide. As a person living with several chronic health conditions, healthcare is absolutely vital to my survival. I fear that the direction that the Ontario government is going with healthcare, may not be supportive or benefit the health of us living with chronic illness. Seven years ago, I was diagnosed with severe Crohn's disease, a form of Inflammatory Bowel Disease. Despite my doctors best efforts, I have yet to reach remission in those 7 years, which has led to 19 ..read more
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Giving Tuesday 2018
Jacob's Healing Rooms
by
3y ago
Giving Tuesday 2018 starts with a picture: They say a picture is worth a thousand words, so what words would you use to describe this room? Imagine being a child, how would you feel walking into this room? What comforts do you see in this room for a child who is feeling scared, alone, worried, or sad? How would you feel if I told you that for the next 8 hours, this room would be a place that you couldn't leave? Now what if I told you that this is an outpatient treatment room at a children's hospital?  My first impression of this room goes along with words like "heavy", "depressing ..read more
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A Musical Experience of a Lifetime
Jacob's Healing Rooms
by
3y ago
Anyone who knows anything at all about me, knows of my love of music. Music is powerful. It helps distract and relax, or it can help you recharge and get pumped up to meet the world head-on. Music has the ability to heal the soul and make your spirits soar. It's always awesome to discover new songs and new artists that help express all of the many emotions you feel at any particular time. And there is nothing better than going to a concert to see your favorite band. Since my life is anything but that of a "normal" teen, concerts are a way of allowing me to escape my medical world for a few ho ..read more
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Mom's Got Guts: My Mom explains why she is walking in Gutsy Walk 2018
Jacob's Healing Rooms
by
3y ago
As a parent, you have dreams for your kids. You dream that they will find their passion in life, that they will be successful, that they will have lasting happiness. You dream of sports teams, sleepovers and birthday parties. You dream that their life will lead them places you never thought possible. You don't dream of weekly medical appointments, of hearing the words "we're not sure what's going on" in relation to your kid's health, or of what it's like to wait in the Operating Room's Waiting Room. You certainly don't dream of your child's early death. Next week will be the 18th time Jacob's ..read more
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What I Would Teach to New Doctors
Jacob's Healing Rooms
by
3y ago
Dear New Doctor, Congratulations! All of your hard work and long hours has paid off, and now you will be part of the next generation of the medical community. Your role and service is so critical to those of us living with chronic illnesses, without your help, the quality of our lives would take a really big nosedive. We depend on your knowledge and skill that you have cultivated and grown over the years in order to be successful in our lives, just as you depend on us in order to have people to provide services to. Thank you for your commitment to trying to help your patients to achieve their ..read more
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Education for all? Well... Sort of.
Jacob's Healing Rooms
by
3y ago
Some things we take for granted. Take education: many of us kids wish and dream for snow days, or extra p.a. days so that we don't have to go to school. Education in Ontario is a guarantee with educational opportunities available free of charge to all kids living in the province up until high-school graduation. Courses are offered at various levels from basic to advanced and gifted depending upon the student's goals: the workforce, college or university. Although we don't often appreciate the homework that comes with school, it's school that opens the door to the future. For me, the system is ..read more
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UPopolis - Social Media for Sick Kids
Jacob's Healing Rooms
by
3y ago
Can you imagine being a child and living with chronic health problems? How many areas of your daily life do you think are effected? What are some of the biggest challenges you see for kids like me? I've been living with severe, refractory Crohn's Disease for almost 6 years now, having been diagnosed when I was 8. That first year alone following my diagnosis, I missed just under 80 days at a brand new school due to repeat hospitalizations, complications, and surgeries. As my classmates were all making new friends, it was a real challenge when I wasn't there to have that opportunity. Being "dif ..read more
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Opportunity Knocked, Or Tweeted, and I Answered: My Patient 2 Patient Education Project Experience
Jacob's Healing Rooms
by
3y ago
Opportunities. Every day we are faced with opportunities; the opportunity for change, to learn, to help make a difference in this world, to make choices. Even just waking up is an opportunity in that you get the chance to do another day. Late last fall, I was given a major opportunity to represent the child-adolescent patient voice at an IBD (Inflammatory Bowel Disease) conference called "Patient 2 Patient Education Project", or P2PEP, for when that name sounds way long! Of course, I immediately grabbed for this amazing opportunity. To be the first pediatric patient that the University of Mich ..read more
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Be Unique, Be You!
Jacob's Healing Rooms
by
3y ago
As I sat down to write this year's #BellLetsTalk day post, I didn't know what to write. I am fortunate enough that mental health is not one of the demons that I face, although I know that I am at risk of developing problems due to my multiple health battles. But how do I blog about something that I haven't experienced? Do we have any experiences in common from our struggles? So I got to thinking, what does mental health mean to me?  Today I want to talk about differences, as I think that is something I have in common with a lot of people who live with mental illness; the feeling of being ..read more
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Halloween - Hospital Style!
Jacob's Healing Rooms
by
3y ago
Happy Halloween. This year I'm doing something different for Halloween. I've been in the hospital for the majority of the past month, having spent a week at home before being readmitted. When I found out that I was likely going to miss Halloween outside of the hospital, it kind of bummed me out.  Thankfully the hospital thinks of that important part of growing up and tries to make it as normal a day as possible so that kids don't have to completely miss out on marking the holiday. So how does a large hospital like Sick Kids celebrate Halloween? Spooktacularly of course! Thanks ..read more
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