MRI showed no signs of inflammation!
Reddit » Crohns Disease
by /u/Electrical-Shallot-2
3m ago
Here is me now, and after surgery. I first had a small bowel resection and then I developed sepsis and had a second resection to fix any more problems. I had a colonoscopy last month and there was no inflammation there either. I’m in shock honestly. It’s been a five year journey and I’m finally getting great results!! If anyone ever needs to reach out, don’t hesitate. I was diagnosed at 19 so it was a difficult time of my life. Looking back on that second photo is scary sometimes but it makes me realize how lucky I am. We are so so much stronger than we realize!! submitted by /u/Electric ..read more
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Repeat colonoscopy within 4 months
Reddit » Crohns Disease
by /u/sdadsww
3m ago
Had a colonoscopy end of Dec. Everything looked good, no ulcers. I’ve been on Inflectra + mtx since 2022 - no change in medication since then. The last 1.5 weeks I’ve been dealing with a flare (increased bm, bloating, fatigue, chills, sweats etc.). I let my GI know and he has me do blood & stool tests. For blood test, my CRP has increased to 5.5 from <0.6, ALT was flagged at 60 and fecal calprotectin was 150. I’m feeling better now and the symptoms have subsided but by GI still wants to do another colonoscopy ASAP next week. Can I skip this and do it at a later date or ask for an ultra ..read more
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Prednisone taper
Reddit » Crohns Disease
by /u/thankaphoenician
1h ago
I was diagnosed about 3 weeks ago with a colonoscopy. I was given prednisone starting at 40mg for a week, then 30mg for a week and 20mg for two weeks. Seeing posts here with other prednisone tapers I am worried about going from 20mg to nothing. I’m going to call my GI tomorrow and check as I have a bit more than a week left of 20mg. Is the 20mg to nothing as concerning as it seems? Also I’m diabetic so my sugars have been crazy for the past 3 weeks. submitted by /u/thankaphoenician [visit reddit] [comments ..read more
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Stool test (rant)
Reddit » Crohns Disease
by /u/HovercraftWeird4871
1h ago
I’ve been having stomach cramps, diarrhea/constipation, inability to tolerate solid foods and lost about 15 pounds in the last month without trying. I went to urgent care and the doctor mansplained some crap to me and finally ordered a still test. Today my result came back “normal.” I was looking on here and it seems like my night sweats, fatigue, irregular periods, and yellowish/white gobs in my poop (and blood i think) might need some looking into. I just don’t understand how my stool was labeled normal smh. End of rant. Does anyone have recommendations ions for a good primary in LA that wi ..read more
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Fatigue
Reddit » Crohns Disease
by /u/unicorntales66
1h ago
How do you guys fight against the fatigue? Since I found out that I have crohn's disease in 2022 I never felt this level of fatigue like right now It's being really hard to fight while working I started to feel more since october of last year when I had an intestinal abcess even when I had my intestinal perforation I didin't felt this fatigue. Ps. I started a new treatment I'm on stelara right now since I failed on infleximab submitted by /u/unicorntales66 [visit reddit] [comments ..read more
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Identifying with/without a disability while applying for jobs...
Reddit » Crohns Disease
by /u/IAmYourDas
1h ago
Been applying for jobs and under the section where you have to disclose if you have a disability, almost all companies list Irritable Bowel Disease, i.e. Chron's Disease as a disability. Just wanted to know people's thoughts on that. https://preview.redd.it/y94l7yirfpwc1.jpg?width=1096&format=pjpg&auto=webp&s=223c6bc8a57bb347f44e7443dca76054a6e6f733 submitted by /u/IAmYourDas [visit reddit] [comments ..read more
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Does abdominal pain go away once in remission?
Reddit » Crohns Disease
by /u/eddddddddddddddddd
3h ago
Had a really bad flare this year, currently on 40mg of Prednisone everyday for the past month. My bowel movement frequency/urgency is better, but I still have diarrhea and INTENSE abdominal pain every single day. The pain usually comes a couple hours after eating, so I usually have a light shake in the morning (Orgain or Compleat). But once lunch comes around and until the end of the night (even when I'm sleeping), the pain comes in waves and is unbearable. I use Bentyl, Levsin, weed, and a heating pad, but honestly none of them help that much other than maybe weed. I just failed Entyvio and ..read more
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New to this ... Does it change your life lots ?
Reddit » Crohns Disease
by /u/Kitchen-Bathroom5924
3h ago
I will try to make this short but I'm autistic and I'm no good at telling short story so please bare with me if this is too long :) ​ I had diarrhea since March 1 , 3 to 5 times a day . Ended up at ER twice with bloating and pain . Got every blood tests and fecal tests under the sun .Also got a ct scan. Doctors have no clue what's wrong with me . Finally I was told I had to have an endoscopy and a colonoscopy to see what can be wrong inside me ​ Got a consult with the surgeon today to sign the paper giving my ok to do the scopes . He went over all the tests and results and then he said :" oh ..read more
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7 year old daughter possible Crohns
Reddit » Crohns Disease
by /u/Bandybizzle
4h ago
I am 37F and was diagnosed with Crohns in 2012, currently in remission thankfully due to Humira then Stelara. My 7 year old daughter has had severe stomache pains since Sunday. Took her to our GP (we are in the UK) on Tuesday morning who sent us home saying it sounded like a bug. Tuesday evening it got worse so ended up in Urgent Care, the doctor there said it was a bladder infection and has given Nitrofurantoin antibiotic on a 3 day course. We are 48 hours in and still no sign of the pain subsiding. It's in the middle of her stomache, around and under the belly button. Could this be the firs ..read more
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Crohn's disease and gum disease
Reddit » Crohns Disease
by /u/Unlikely_Pepper_1037
4h ago
I was dismayed to learn at a recent dental cleaning that I have started to develop gum disease. I do a reasonably good job of flossing and with dental hygiene, not perfect but okay overall. I'm wondering if my Crohn's diagnosis has contributed to this development. Does anything have any experience with developing gum disease, or something similar, due in part to their Crohn's disease? Thanks. submitted by /u/Unlikely_Pepper_1037 [visit reddit] [comments ..read more
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