It's really hard seeing all the pain and anguish here
Reddit » Crohns Disease
by /u/reddit-lou
2h ago
..when there is something that helps so many people but it is a banned topic here. Something that has side effects, yes, but effects that I think most folks would choose over having life changing surgeries and losing their ability to function normally throughout all aspects in their lives. It is narrow-minded, irresponsible and cruel, in my opinion. submitted by /u/reddit-lou [visit reddit] [comments ..read more
Visit website
Should I push back with my doctor about starting another biologic?
Reddit » Crohns Disease
by /u/Acrobatic-Grass-2642
2h ago
Will TRY to make this short... I was on Remicade for a year and seen remission. Moved to another state and my new GI doctor (that I have now) recommended Humira. Was on Humira for two years and it never worked I was hospitalized and almost died. Same doctor put me on Skyrizi and I once again seen remission for 6 months but then SKyrizi started failing. Started Rinvoq and the loading phase was alright. I didn't get complete remission like with SKyrizi but probably 80% close to it. After the 2month loading phase my doctor switched me to 15mg. Full fledged symptoms it was almost like I wasnt tak ..read more
Visit website
Rinvoq -> skyrizi?
Reddit » Crohns Disease
by /u/niki0001
3h ago
has anyone had luck making this switch? I’ve been on rinvoq for 10 months and just moved up to 45mg because 30mg never really worked. my calpro and crp are great, but I have extreme flare sympoms/back on prednisone so my doctor is shifting me to skyrizi as soon as I get insurance approval. for context, I’ve tried every biologic except skyrizi (and tremfya which seems to be almost on the market)! submitted by /u/niki0001 [visit reddit] [comments ..read more
Visit website
Feeling down
Reddit » Crohns Disease
by /u/grace14680
5h ago
hey fellow crohnies. got some pretty bad test results today from my MRE after a day of shitting my brains out from breeza. i’ve had crohn’s for about 10 years now, and have never been in remission, it just always feels like it’s getting worse. for all u who have had crohn’s for longer, has it taken you this long or longer to reach remission? could use some positivity and hope after today. thanks to all! submitted by /u/grace14680 [visit reddit] [comments ..read more
Visit website
I wish...
Reddit » Crohns Disease
by /u/Illustrious-Trust718
6h ago
My palliative care nurse realized that no amount of antidepressants are going to make me not depressed. Thanks to crohn's I've lost everything. My jobs and ability to work. Because of that I've lost my independence so I'm stuck living with my parents. No female is going to date a loser that is constantly sick and can't work and lives with his parents at 38. On top of that I can't do anything I used to love. And I'm never getting any of that back. I'm just going to sit at my parents house until they die then I guess I'll just die. I mean seriously why would antidepressants help me? submitted ..read more
Visit website
Anything that makes MiraLAX easier to drink?
Reddit » Crohns Disease
by /u/IcedColdAvocados
6h ago
Im about to have my 5th colonoscopy soon and I wanted to see if anyone else has found ways to make the prep easier? Ive tried basic water with it, sprite (which my dad made me do when I was like 13 now I hate sprite lol), chicken broth (this was the worst; also my dads bright idea), and some juices but since I cant have anything red, blue, or purple it leaves me with limited options. Im autistic and have lots of trouble with eating things I've had issues with or have made me feel sick in the past. Just thought id pop in and see if anyone has things they mix with it that makes prep even the sl ..read more
Visit website
Stelara Dose Frequency?
Reddit » Crohns Disease
by /u/superfruittastic
8h ago
Sorry if that's a weird title. My partner has Crohn's and has just started stelara after taking a couple medicines didn't work out. They're kinda nervous because their GI is recommending they start taking stelara every 4 weeks and they haven't heard of anyone taking it more frequently than 6 weeks. Does anyone else have experience with taking stelara so frequently? Is there anything we should keep an eye out for while taking stelara? Thank you!! submitted by /u/superfruittastic [visit reddit] [comments ..read more
Visit website
Stopped infusions, in pain
Reddit » Crohns Disease
by /u/Strawberrious
8h ago
Hey, my insurance kind of dicked around with me, long story, not important, what’s what is that I’m no longer on remicade, it’s been 9 weeks now, and I’ll have to wait at least another week to get a new medicine, not remicade. My sides are sore, my stomach is delicate, I feel weak, I guess I’d just like some advice, what can I do to heal my inflamed joints? Help my gut? Is there anything at all? It’s been a very stressful week. submitted by /u/Strawberrious [visit reddit] [comments ..read more
Visit website
High pitched intestinal noises?
Reddit » Crohns Disease
by /u/iheartmonstera
10h ago
I recently developed really high pitched, screeching noises which I’m assuming is related to my crohns. It seems to happen every morning and after every meal I eat. I work in a quiet office environment and it’s so embarrassing the noises my intestines make all day long. Does anyone know if there is anything to get the noises to stop? For reference I have been flaring and was on prednisone and finally weaned off of it and the noises came right back. My doctor doesn’t seem to be concerned about the noises but from what I can see online it says it could be the start of a bowel obstruction? subm ..read more
Visit website
New Member to the Club
Reddit » Crohns Disease
by /u/LordShortBus
11h ago
Hi everyone, I just had a small bowel resection May 1st, ileocecectomy, and I’m recovering good so far. I got an official diagnosis with Crohns as well. I had never showed any signs before my diagnosis from this hospital visit. I admitted myself to the hospital due to throwing up, not able to have a bowel movement, and couldn’t eat anything- and upon a CT scan found myself with a blockage and severe stricture. I had an NG tube for several days on bowel rest, a colonoscopy followed days later, found the strictures and they refused to go back to normal which called for the resection. It was a m ..read more
Visit website

Follow Reddit » Crohns Disease on FeedSpot

Continue with Google
Continue with Apple
OR