FDA Approves For Rinvoq for Crohn's Disease (My Take As A Patient)
Crohn's Zone
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10M ago
Recently on May 18th, 2023 approved Rinvoq was finally approved for Crohn's disease. The study was published in the  New England Journal of Medicine and can be found here. In terms of clinical remission in one trial 39% of patients received clinical remission when taking the 45 milligram dosage. In the same trial 35% of patients achieved endoscopic response compared to a placebo response of only 4%. In a another trial 49% of patients received a clinical response and 46% of patients achieved in endoscopic response. For both studies this was the end point measured at week 12. Currently the ..read more
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10 Year Anniversary of Humira for Crohn's and Still in Remission!
Crohn's Zone
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1y ago
Time really does fly by! This month marks 10 years since I first started taking Humira (my first shot was June 6, 2012). I posted about the experience here, a 3 month post here, a 6 months post here, a 1 year anniversary post here, a 2 year anniversary here, a 5 year anniversary here, a review of Humira literature here .  In the summer of 2012 (around May 2012) I can remember crashing pretty bad with a major flare up with Crohn's. I can still remember waking up in the middle of night (at 2 A.M.) with blunt sharp pain in my stomach, throwing up, and couldn't get out of bed. These ..read more
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FDA Finally Approves Skyrizi for Crohn's Disease
Crohn's Zone
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1y ago
Yesterday the FDA approved Skyrizi for Crohn's disease. As someone who actually lives with Crohn's (but currently in remission) I am always grateful that there are continually more FDA approvals coming for Crohn's disease given how many people/families have to deal with it.  The FDA has three phases of drug development. The first phase generally looks at whether a drug is safe or not. The second phase looks at safety and if the drug is effective. The last phase looks at how effective the drug is. The two major phase three trials done were the ADVANCE and MOTIVATE studies. Between the tw ..read more
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Minor Flare Up, Right Shoulder, and Upcoming Trip
Crohn's Zone
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2y ago
Overall my health has been pretty good the past couple of months. This past week I have felt a little on the tired side even though I have been getting the right amount of sleep. It was strange since I went to the doctor this past Thursday (more on this later) and went for an x-ray and after the x-ray I noticed a minor flare up on Thursday and Friday. During the flare up I actually gained weight to balloon up to 171 pounds (currently back down to 168 pounds). Lately I have had some cramping and just taking it easy with light sandwiches and soups to not have anything too greasy or salty. I wen ..read more
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Cramping Appears To Have Resolved!
Crohn's Zone
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2y ago
My cramping has seem to have dissipated today (Saturday). Thursday was probably the worst in terms of feeling an overall blunt cramping near my lower abdomen. Also late Thursday night I kept having to go to the bathroom around 11 P.M. and midnight. My bowel movements were normal but I could feel what I call the "alien" or massive pain/cramping until I completed my bowel movements. It was interesting because the cramping was always in the exact same area. I know sometimes the cramping or pain can move around but this  In terms of what I have been doing to help out the pain, I have been m ..read more
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Cramping Past Few Weeks Part II
Crohn's Zone
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2y ago
  As a follow up from my last post I still have had cramping for the past week or so. Compared to my post though I am sleeping pretty regularly (roughly 8 hours of sleep per night) and the cramping has gradually appeared to have gotten better.  I asked my GI given the constipation if I should do anything different. He told me to keep taking hot baths and make sure I eat fruits and vegetables. In addition to my GI I also work with a nutritionist who had told me to add more fiber to help the constipation. In addition to this drinking more water as well would help.  The other thi ..read more
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Cramping Past Week
Crohn's Zone
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2y ago
As usual I don't blog too often here since my overall health has been generally good and I have been in remission with Crohn's for almost a decade (thanks to Humira). This past week (starting probably Sunday night) I felt cramping in my stomach. To be more accurate it was more of a blunt pain in my lower abdomen and not any type of sharp pain. The pain was right below my belly button but above the groin area. The pain lingered on and I tried to do my usual routine of: eating lighter (okay and sometimes not so light)/hot baths/cold packs on my stomach which seemed to help some. Monday and Tues ..read more
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10 Year Anniversary of Crohn's: My Journey and What I Have Learned
Crohn's Zone
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2y ago
Time really does seem to fly by. On December 7, 2011 I was diagnosed with Crohn's disease. I remember being in the office of my gastroentologist (GI) with my parents and him telling me my diagnosis. During Thanksgiving 2011 I was hospitalized and my weight had declined to 125 lbs. Normally during this period I was around 150-170 lbs. Before I had Crohn's I was diagnosed with IBS and had this pain in my side (the kind of pain when you are running laps in P.E.) and took some medication to keep the IBS at bay. At first when I was diagnosed I was unaware of what Crohn's disease was. I can still ..read more
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Eating Right, Relaxation, and Crohn's Remission
Crohn's Zone
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2y ago
 Recently I took the past Thursday and Friday off from work. This comes after passing the Enrolled Agent exam (3 exams) last month and I really haven't taken much vacation from work this year. Friday I felt the best I had in quite a while. The nice thing about not going to work is you don't have the stress of worrying about what you need to do/have to do when you are off. However, I do still have a tendency to check my e-mails even when I am off (you know to make sure things don't blow up). Related to this I have been listening to an audio book called "A World Without E-Mail" by Cal New ..read more
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Rhino Virus and Current Health
Crohn's Zone
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2y ago
Recently the past couple of days I have felt quite stuffed up with a runny nose and lots of congestion. At first I thought it was allergies (and even when I took an allergy pill it helped) however today I woke up pretty tired and was concerned I may have some type of infection and didn't want to go into work and possibly infect other co-workers. Last night as I drove home from work I was my nose was just dripping with gross stuff.  This morning I called my doctor's office to schedule an appointment (since it is a Friday) and it would stink to not be able to have any relief before the wee ..read more
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