PS: My Parkinson's Takes A Morning Vacation Now
One Face of Parkinson's Disease
by
3y ago
Follow up to my previous post.  A P.S.: ​I just figured out my extremity swelling is gone this morning. I have ankles and my wedding ring is too big. I had it sized up from 6.5 to 8. And best of all I can suck in and hold my stomach in. That is one reason I lean forward. My center of gravity was around my knees putting pressure on them. Now it’s back in my torso. I can feel it. And I’m not purposely doing it. It returned on its own. My eyes also stopped darting around and squinting. Whoa!!!! I’m one happy PD symptom free girl this morning. Get back with you this afternoon. Let’s see if i ..read more
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My 56th Birthday at Disney during the COVID crisis
One Face of Parkinson's Disease
by
3y ago
Rob asked me this year, 'what do you want for your birthday?  I answered and he said. "you want to do what?"  "Yes." I said enthusiastically.  When will we EVER get a chance in the future to go to Magic Kingdom with the park filled to a mere 10% of normal average day capacity?  There are no lines. The. longest we had to wait was 20 minutes.  We finished each park in an unprecedented half-day.  We also seized the opportunity to stay on-property as a Florida Resident at Saratoga Springs in a premium one-bedroom villa for $250 per night (regularly $500+ per might.)&n ..read more
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"How Can I Help Find A Cure For Parkinson's Disease?"
One Face of Parkinson's Disease
by
3y ago
If you have Parkinson's Disease or know or love someone who does or you are a caregiver for a PD patient, you can help us win our fight to stop PD in its tracks.  The researchers have already found their biomarker target and the substance that is eating away at our brain cells thanks to the MJFF. Now it's the #RaceToACure for researchers. What do we need to get there?  More funding.  Especially in today's economic climate it will take a village of grassroots efforts that all add up together to make this happen. I have been gifted a little help from the Universe and my job ..read more
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Thank you Michael J. Fox
One Face of Parkinson's Disease
by
3y ago
For those who dream BIG (like me), here is someone who didn't wait for his future to slowly & progressively rob him of his faculties.  He dreamed big, took the first step and then the next.  Because he didn't stop, he began steering not only his, but the entire PD community's future.  The Michael J. Fox Foundation for Parkinson's Research was born in 2000.  None of us with the disease today would look anything like we do because of his success in bringing PD to the front page with his celebrity status and early diagnosis.   Prior to MJFF, if you were diagnose ..read more
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This is MY story - NY Times Article
One Face of Parkinson's Disease
by
3y ago
This is my story. My doctors believe my Parkinson's is environmentally connected. My DNA was tested and do not have genetic markers for Parkinson's yet I have just completed a second DATSCAN (2013 & 2020) confirming that I have PD. Need proof? Click here for a 1976 South Florida Ecological Study of soil samples in my neighborhood: https://pubs.usgs.gov/pp/1011/report.pdf. From 1973-1975 I, along with my neighbors, were overhead crop dusted with DDT numerous times in order to eradicate the mosquito population coming in from the Everglades. Pests to residents, it was also meant to stop the s ..read more
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I Love My Conscious Ink
One Face of Parkinson's Disease
by
3y ago
..read more
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What is Love?
One Face of Parkinson's Disease
by
3y ago
My heart spoke to me.  I wrote down what it said.  To no one in particular.  Perhaps it was meant for you.  If it is, my heart goes out to you........... Pure love was all you were on the day you were born. You were a bundle of cells that formed and thrived and lived and entered the world with a fresh start.  From that moment you took your first breath, time began to build your personal journey with the world around you.  You were influenced by people who surrounded you.  They taught you everything you needed to know in order to communicate your needs so th ..read more
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"How Can I Help Find A Cure For Parkinson's Disease?"
One Face of Parkinson's Disease
by
3y ago
If you have Parkinson's Disease or know or love someone who does or you are a caregiver for a PD patient, you can help us win our fight to stop PD in its tracks.  The researchers have already found their biomarker target and the substance that is eating away at our brain cells thanks to the MJFF. Now it's the #RaceToACure for researchers. What do we need to get there?  More funding.  Especially in today's economic climate it will take a village of grassroots efforts that all add up together to make this happen. I have been gifted a little help from the Universe and my job ..read more
Visit website
Thank you Michael J. Fox
One Face of Parkinson's Disease
by
3y ago
For those who dream BIG (like me), here is someone who didn't wait for his future to slowly & progressively rob him of his faculties.  He dreamed big, took the first step and then the next.  Because he didn't stop, he began steering not only his, but the entire PD community's future.  The Michael J. Fox Foundation for Parkinson's Research was born in 2000.  None of us with the disease today would look anything like we do because of his success in bringing PD to the front page with his celebrity status and early diagnosis.   Prior to MJFF, if you were diagnose ..read more
Visit website
PS: My Parkinson's Takes A Morning Vacation Now
One Face of Parkinson's Disease
by
3y ago
Follow up to my previous post.  A P.S.: ​I just figured out my extremity swelling is gone this morning. I have ankles and my wedding ring is too big. I had it sized up from 6.5 to 8. And best of all I can suck in and hold my stomach in. That is one reason I lean forward. My center of gravity was around my knees putting pressure on them. Now it’s back in my torso. I can feel it. And I’m not purposely doing it. It returned on its own. My eyes also stopped darting around and squinting. Whoa!!!! I’m one happy PD symptom free girl this morning. Get back with you this afternoon. Let’s see if i ..read more
Visit website

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