SpoonFull of Strength
6 FOLLOWERS
Welcome to our new podcast for the chronic illness community! We are Rachel and Tina, sisters both with multiple chronic issues. We want to create a community where we can learn and share informtaion.
Some of our topics will include:
Mental Health, Depression and Anxiety
Being the Caregiver
Tips for Managing Flare Days
Interviewing People With Chronic Issues to Learn About Other..
SpoonFull of Strength
1w ago
In our penultimate episode of Season 1, we dive into the perceptions surrounding chronic illness. We explore how we viewed our conditions before receiving a diagnosis and how those perceptions evolved over time. We'll also discuss the impact of disease progression on personal identity and how society often perceives those living with chronic illness ..read more
SpoonFull of Strength
2w ago
Meet Kim, a resilient Lupus warrior who faced two major surgeries before finally receiving her diagnosis, all during the height of the COVID pandemic. Now an ambassador for the Lupus Foundation, Kim has transformed her journey into one of advocacy and awareness. With an unwavering spirit and deep faith, she shares her inspiring story of learning to become her own best advocate. Follow Kim here: Blog https://beautifleye.blogspot.com/ LinkedIn https://www.linkedin.com/in/kimberlyaboddie/ Facebook https://www.facebook.com/kimberly.boddie Twitter https://twitter.com/bodybyboddie Snapchat beautifle ..read more
SpoonFull of Strength
2w ago
On today’s episode, we sit down with Pam from Rare Patient Voice, an organization dedicated to giving patients and caregivers a platform to share their experiences and insights. Through surveys and interviews, they help shape the future of medical products and services for better patient care. Sign up here: https://www.rarepatientvoice.com/rp/Spoonfullofstrength Follow them on Instagram at: https://www.instagram.com/rarepatientvoice ..read more
SpoonFull of Strength
3w ago
In this episode, we chat with Julie, who has faced scoliosis since childhood and also lives with Chiari Malformation. She shares her inspiring journey of improving her scoliosis through horseback riding and details her experience undergoing surgery for Chiari Malformation. Now, Julie dedicates her time to helping people with disabilities enjoy outdoor activities. Her positive attitude and resilience are truly admirable. Follow Julie on Instagram here: https://www.instagram.com/slooper.at ..read more
SpoonFull of Strength
3w ago
Join us as we meet Miranda, a passionate dancer and entertainer who left the West Coast to chase her dreams in New York City, all while navigating life with POTS (Postural Orthostatic Tachycardia Syndrome). In this episode, Miranda shares her remarkable 15-year journey to finally receiving a diagnosis and how she’s built a supportive and inspiring community on Instagram for others facing the challenges of POTS. Follow Miranda here: https://www.instagram.com/undefinedbypots ..read more
SpoonFull of Strength
1M ago
In this episode, we introduce you to Dani, who shares her journey living with Rheumatoid Arthritis. She recounts the pain she has endured since infancy, beginning with an ankle injury at birth that went untreated until adulthood. Dani also discusses how her pregnancies triggered the onset of her RA symptoms, offering an intimate look into her experiences and resilience. Follow Dani on Instagram here: https://www.instagram.com/flarefreecreations ..read more
SpoonFull of Strength
1M ago
In this episode, we have an insightful conversation with Kait, who lives with Miserable Malalignment Syndrome (MMS). Kait shares her journey with MMS, detailing the multiple surgeries she has undergone to alleviate the lifelong pain caused by the condition. She opens up about her shift from pushing through the pain to learning to listen to her body. Kait's story is one of strength and resilience, offering valuable perspectives on managing chronic pain and advocating for one's health. Follow Kait on Instagram at: alignedk8 Read more of her story here: https://miles4hips.org/kaitlyns-story ..read more
SpoonFull of Strength
1M ago
On this week's episode, Tina talks with Em West, all the way from Australia. Em details her story of being diagnosed of MS at the age of 19, her scary relapse that affected her vision, and how nutrition and exercise helped her manage her illness. Em also tells us how she got into only the 2nd trial of HSCT in the entire country. Has this treatment helped her? Well, you'll have to listen to find out! Connect with Em on Instagram here: em. westy and chronicallywell.club ..read more
SpoonFull of Strength
1M ago
In this episode, we talked about our must have essentials for chronic illness. Some of these items we have tried, some of these items we can't wait to try. All these items are available at the link below and every item is a four-star item and above! Don't forget to like & subscribe. Follow us on Instagram and Facebook at SpoonFull of Strength Item List: https://1drv.ms/w/s!Ag8cYKv0DCY5u2jEt7olmkiwTF3z?e=39TcXc ..read more
SpoonFull of Strength
1M ago
**THIS EPISODE CONTAINS DISCUSSION OF SENSITIVE SUBJECTS, SUCH AS SEXUAL ASSAULT, DOMESTIC VIOLENCE, SELF HARM AND SUICIDE. VIEWER DISCRETION IS ADVISED** In today's episode, we sit down with Kali from Puerto Rico to explore her profound mental health journey. Kali opens up about her experiences from childhood to the present, sharing the therapeutic steps and wellness practices that have helped her cope with her chronic illness. She recounts a pivotal incident at work a few years ago that triggered past childhood trauma and profoundly impacted her mental health. Kali’s resilience and strength ..read more