Here is the audio from the interview <3. Annabel Amos Radio Interview with Katie Berrill about Startgardts Disease. Katie Berrill with her curly hair holding a programme from the make a difference awards. The post BBC Radio Interview Audio – 30th January 2024 appeared first on Katies Vision ..read more

Tomorrow morning between 7am and 9am, I will be on the BBC Northampton radio station talking about life with stargardts disease. On the same day @themichaelowen’s son, James Owen’s documentary is out as he too has this rare condition If anyone would like to listen, the link is in my stories for tomorrow and I will post the link to listen again after it’s aired. Radio terrifies me but I did this interview pre recorded. Hopefully I have done ok and people can resonate with what I’ve said x A close up of Katie with her dark hair curled and a patterned strapy jumpsuit at the BBC make a diffe ..read more

Blindness is a spectrum. Many people with sight loss use what aids help and suit them. Some choose not to use a cane, others use just a symbol cane or a cane for mobility, guide dog etc, All sight loss is different, even the same condition can vary in progression between people. As someone with sight loss I don’t have to justify what I do and if you are questioning my disability because you can’t see it, that’s honestly your problem, not mine #Accessibility Video shows Katie walking with her 4 year old in a shopping centre, then with her 4 year old at bowling. Then there is a close up of Kati ..read more

2 years today I went to the opticians and they told me I could no longer drive, that my eyes had progressed and I was over the driving limit. I remember going home and just sobbing. The loss of something I loved and the independence I’d had taken away from me was crushing. All I could see for the next few months was the loss and the feeling of being trapped was suffocating. All the things I couldn’t do from losing my driving licence used to consume me daily and I still often feel guilt to my boys that I can’t freely take them places without relying on other people to get us there. Things I hav ..read more

Happy international women’s day to all the amazing women out there and all the amazing women I know, especially my mum who picks me up time and time again and has been my biggest role model and support through my life and who raised me to never give up Katie is standing in a hall at the national diversity awards holding a glass of champagne and smiling at the camera. She is wearing a floor length sparkly dress with her dark hair down and curled. Caption reads “there is no force more powerful than a woman determined to rise.” The post International Women’s Day appeared first on Katies Vision ..read more

Sawyer said to me earlier when I was lying in his bed whilst he fell asleep “we can laugh can’t we mummy”, as he giggled about another little joke he had been telling me. I can’t put into words how grateful I am for these little moments of joy at the moment. He will never know how much they are needed and how much they help me I hope so much that the difficulties of life never steal his sunshine and I will try my hardest to protect him from the rain as much as I can xx Katie and Sawyer in winter clothes, sitting on a log in the woods. Katie is smiling at Sawyer and he is looking forward and ..read more