Protected: Advancing Science
Herpes Cure Advocacy
by Patient Advocate
2w ago
This content is password protected. To view it please enter your password below: Password ..read more
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 Healthier Together: Herpes Cure on the Horizon, presented by KIRO 7 NEWS in Seattle
Herpes Cure Advocacy
by Patient Advocate
2w ago
NEWS FROM FRED HUTCH – DR. KEITH JEROME  Dr. Keith Jerome shares updates on HSV 1 & HSV 2, notes “fatalism” surrounding the diagnosis, says that there is “not a cure yet” but “we are getting closer to a cure.” Dr. Keith Jerome’s lab is making progress enough to say that their gene editing technique has “reduced the virus by 90%” in other words, their treatment eliminated up to 90% of the virus, however he is going for “99% to 99.9%” as Dr. Jerome says, “we are always improving this, 10-15 years ago we started down this path, started talking about a cure for he ..read more
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HRSA Training on Genital Herpes Management
Herpes Cure Advocacy
by Patient Advocate
3w ago
We’re pleased to share insights from a recent HRSA training session focused on the diagnosis and management of genital herpes in primary care settings. The session, led by Dr. Christine Johnston, a distinguished member of our medical advisory board and Associate Professor at the University of Washington, covered crucial aspects of herpes management. Dr. Johnston provided a comprehensive overview, discussing effective strategies and current guidelines for healthcare providers. The session aimed to enhance understanding and improve patient care in managing this common condition. For those intere ..read more
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The Landscape for Herpes is Changing: Our Impact
Herpes Cure Advocacy
by Patient Advocate
3w ago
Herpes Cure Advocacy Impact Have you been following the transformational changes Herpes Cure Advocacy has initiated in the landscape of herpes? We have, since organizing as the country’s only patient advocacy organization for HSV, have done the following: Lobbied US Congress to direct The Dept. of Health and Human Services (HHS) to develop a national strategy for herpes with $250,000 in funding for an FTE and HSV strategy development In 2022, National Institutes of Health (NIH) convened a 2-day workshop on herpes cure, vaccine, and treatment research In 2023, NIH assemble ..read more
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Diagnosis and Management of Genital Herpes in the Primary Care Clinic
Herpes Cure Advocacy
by Patient Advocate
3w ago
HCA is excited to announce that an informative webinar geared towards clinicians and healthcare providers has now been made available for your viewing! Held in late April, dive deeper with the Bureau of Primary Health Care and the University of Washington into an insightful discussion regarding the complexities in genital herpes management.    Genital herpes is the leading cause of genital ulcer disease which is caused by HSV Types 1 and 2. Due to these infections being very prevalent with 11.9% of the US population affected by HSV-2 and 47.8% by HSV-1, this webinar addresses th ..read more
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STI Engage Conference 2024: Highlights from Herpes Cure Advocacy
Herpes Cure Advocacy
by Patient Advocate
1M ago
This past week, Herpes Cure Advocacy attended the STI Engage Conference in Washington D.C! It was a great turnout and we were able to connect with a lot of individuals and spread the word about Herpes Cure Advocacy. It was great to see HSV being an included topic at this years conference! Herpes was included in the workshop about federal action for STI’s; the NIH listening session, and was mentioned during the Tuesday lunch plenary! Check out the clip below as Dr. Klausner, who is on the Medical Advisory Board for our organization, mentions Herpes Cure Advocacy during the lunch plenary ..read more
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HCA Welcomes Terri Warren
Herpes Cure Advocacy
by Patient Advocate
1M ago
Talk and Q&A with Terri Warren BA, MEd, BSN, MSN, Adult Nurse Practitioner Terri Warren will present some of the preliminary data from the herpes survey. The survey can be found on her website here. Make sure to bring your questions, as there will be a q&a after. Herpes Talk and Q&A July 18th, 5pm PST/8pm EST About Terri Warren Terri Warren, nurse practitioner, is the owner of the Westover Research Group (formerly the Westover Heights Clinic). She received her bachelor of arts degree from Tarkio College in Tarkio, Missouri; her master of science in education and counseling degre ..read more
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New Data Confirms High Burden and Cost of Neonatal Herpes
Herpes Cure Advocacy
by Patient Advocate
1M ago
Recent CDC data confirms the high burden and cost (over $100,000 per case) of newborns impacted by herpes. Herpes infections in newborns are preventable but few obstetricians test mothers and even fewer people know their herpes status.  HCA calls on the CDC to immediately require newborn herpes case notification by states and for better testing and awareness in the community. The CDC STI Surveillance and Data Science Branch has been hard at work re-evaluating neonatal herpes (nHSV) data. Earlier this month, they presented an abstract that was accepted at the American College of Obste ..read more
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Herpes Cure Advocacy Receives GSK Grant Funding
Herpes Cure Advocacy
by Patient Advocate
2M ago
Herpes Cure Advocacy is very pleased to announce that the organization has been awarded grant funding from GSK to support it’s organizational capacity. Additional partners for supporting organizational capacity are being sought. Supporting organizational capacity allows HCA to continue to advance it’s mission of eradicating the world of herpes simplex virus types 1 and 2 with professional resources. We’re extremely grateful to one of the world’s largest pharmaceutical companies for believing in the value of Herpes Cure Advocacy and increasing our capacity to do our work. Herpes is a critical ..read more
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Summary of the Centers for Disease Control and Prevention (CDC)/National Institute of Allergy and Infectious Diseases (NIAID) Joint Workshop on Genital Herpes – 3-4 November 2022
Herpes Cure Advocacy
by Patient Advocate
2M ago
Kristie L Connolly, Laura Bachmann, Thomas Hiltke, Ellen N Kersh, Lori M Newman, Lydia Wilson, Leandro Mena, Carolyn Deal OVERVIEW In November of 2022, the CDC and NIAID sponsored a joint workshop on Genital Herpes. Participants included members of the herpes research community, industry representatives, public health advocates, government agency staff, scientists, patient advocates and individuals suffering from genital herpes. Topics covered a wide range of issues related to Genital Herpes; including treatment, Neonatal Herpes, diagnostics, and prevention ..read more
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