Crying on the Steps of the Regional Center with Kelley Coleman
Brave Together
by Jessica Patay
6d ago
Hello Brave Friends! On this story episode, #166, we are stepping into the shoes of a brand new care-giving parent, who, like so many of us, left the hospital and was immediately faced with piles of paperwork, prescriptions to administer, insurance issues, medical supplies to order and the endless phone calls, transfers and holds that become our JOB to navigate. Kelley Coleman had a new baby with multiple disabilities, a toddler, and was getting no calls back from the Regional Center. So, on one particularly rainy day, she took matters into her own hands and started her journey towards figurin ..read more
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From Childhood Accident to Fierce Advocate with Kevin McGuire
Brave Together
by Jessica Patay
3w ago
Hello Brave Friends! Welcome to our first Practical Episode of Season 6. This is episode 164 and we could not be more thrilled and honored and in awe of our guest today, Kevin McGuire. Talk about the triumph of the human spirit, Kevin, personifies this. He was hit by a drunk driver at the age of seven and has used a wheelchair ever since.   He is now the CEO and founder of McGuire Associates, the nation's leading consulting firm specializing in compliance with state and federal disability laws, including, but not limited to, the Americans with Disabilities Act and Fair Housing Act. He's a ..read more
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How to Handle January Expectations When You are an Exhausted Caregiver
Brave Together
by Jessica Patay
1M ago
Hello Brave Friends! This is another Ask Us Anything episode in which YOU, the listener, get to write or call in and, you guessed it, ASK US ANYTHING!  In this episode, #162, we’re discussing how to handle the PRESSURE we feel after the holidays (while caregiving) to make resolutions and change our whole lives at the start of the year. Are we ready for this? How do we approach this thoughtfully? This episode is full of compassion and creative ideas to make the start of 2024 feel less stressful. Whether you have questions as a parent to a child with complex medical or mental health needs o ..read more
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ADHD & Honoring Your Kid's Experience with Debbie Reber
Brave Together
by Jessica Patay
2M ago
Hello Brave Friends! On this, our final episode of Season 5, we have such a great guest for you. Debbie Reber, who you guys probably know already, is a parenting activist, bestselling author, speaker and the CEO and founder of Tilt Parenting, a resource, top performing podcast, consultancy, and community with a focus on shifting the paradigm for parents raising and embracing neurodivergent children. Her most recent book, Differently Wired, A Parent's Guide to Raising an Atypical Child with Confidence and Hope, came out in 2018. Debbie is a wealth of information, and I highly recommend that you ..read more
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Traveling with My Sister with Kendall Albrecht
Brave Together
by Jessica Patay
2M ago
Hello Brave Friends! On this story episode we are exploring the sibling experience. As caregiving parents, it’s hard to give each child the same amount of attention. The neurotypical child’s experiences growing up are often overshadowed by their sibling’s complex needs. So it’s cathartic when we get the opportunity to put a big ol’ spotlight on their experience and talk about them on our podcast. Kendall Albrecht is a senior in high school, who goes on vacation every year with her family, including her older sister, Miranda, who has Autism Spectrum Disorder. It’s not always easy but as you wil ..read more
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Comparison within the Disability Community
Brave Together
by Jessica Patay
3M ago
Hello Brave Friends! This is another Ask Us Anything episode in which YOU, the listener, get to write or call in and, you guessed it, ASK US ANYTHING!  Today we’re discussing the topic of comparing. Whether it’s our stories, our parenting styles or our child’s outcomes, comparing, it seems, is just human nature. It’s a tool we use to identify and connect with others who are like us but can also turn competitive and ugly. How do we support and honor each other’s journey’s without feeling better or worse off than our sisters?  Whether you have questions as a parent to a child with comp ..read more
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Strength-Based IEPs with April Rehrig
Brave Together
by Jessica Patay
3M ago
Hello Brave Friends! Welcome to today's practical episode with April Rehrig. She's going to talk about strengths-based IEPs. Have you even heard of that? I don't think I'd ever heard of it until recently. It's an IEP that looks at abilities as well as weaknesses. It looks at what students CAN do, what the team wants them to do next, and how strengths might be used to set goals to help address a particular need.  April is a repeat guest because we love her and appreciate her. She's the founder of Rise Educational Advocacy and Consulting. She has over 20 years of experience as a school psyc ..read more
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How to Respond to Frustrating Comments
Brave Together
by Jessica Patay
3M ago
Hello Brave Friends! This is another Ask Us Anything episode in which YOU, the listener, get to write or call in and, you guessed it, ASK US ANYTHING!  Today we’re discussing how we handle it when family, friends (or people in the grocery store) say judgmental or insensitive things about our non-typical kids or how we’re raising them? Do we take the time to educate them? Is that our job?  Whether you have questions as a parent to a child with complex medical or mental health needs or you’re someone looking to support a care-giving parent, we would LOVE to hear from you.  If you ..read more
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How to Free Yourself from Mom Guilt with JoAnn Crohn
Brave Together
by Jessica Patay
4M ago
Hello Brave Friends! One thing I wish I could free all moms from is MOM GUILT. I know you've heard me talk about this before, and it is just in the way of us thriving for sure. It's like a boulder that we carry around and I wish I could just take the boulder off of everybody's shoulders. Well, I think our guest today is going to help us with this.  Joanne Crone is a parenting educator and a life coach who helps moms feel confident in raising empowered kids while pursuing their own goals. She's the host of the award winning podcast, No Guilt Mom, an accomplished author and speaker appearin ..read more
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Being a Neurodiverse Mom and Blameless Guilt with Becky Tilley
Brave Together
by Jessica Patay
4M ago
Hello Brave Friends! On this story episode we’re talking about being a neurodiverse mama and dealing with blameless guilt. What is blameless guilt? It’s guilt we feel when the unthinkable happens and we have no one to blame for it; like passing down genetics to our children. This guilt is tricky. It hangs around us, invisible, easily dismissed by our nearest and dearest but always finding its way back to us. How do we deal with it? Are we stuck with it? Our storyteller, this episode, is Becky Tilley, who found out her two youngest children have a rare chromosome disorder called Koolen-de Vries ..read more
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